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Pandoranitemare

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Pandoranitemare

  1. Pandoranitemare
    Thank you My blood test is at the end of March, and I will be sure to post with the results. I know if I my test is positive I will have to get my daughter tested. Even if it is negative, I can gently suggest that she joins me going gluten free when I go back to it, and see if it helps her too, and she can judge for herself if she sees an improvement...
  2. Pandoranitemare
    Thats great, thank you. So I have potentially been doing myself some good I don't suppose it matters if I am taking the vitamins during gluten challenge?
  3. Pandoranitemare
    I don't eat meat (but I do eat fish, but not every day), so I regularly take multivitamins, omega3 oils as well as a calcium+vitD supplement (because I don't really have dairy either, apart from a little yogurt), I prefer almond milk etc. I know that vitamin deficiency is often seen in celiacs, but I am wondering if taking vitamins would counter that, or...
  4. Pandoranitemare
    I did go gluten free for a week, as I thought it may be the problem, and certainly did start to improve, but I read about having to continue eating it if I was to be tested, so went back on it and book in with the doctor, who has now got me on a gluten challenge for 4 weeks (because I was gluten free for a week 3 weeks ago) just to be sure I have as much...
  5. Pandoranitemare
    Thank you for your suggestions, I already have tried coffee, and have even tried 'Pro Plus' caffeine tabs-(neat caffeine) which are supposed to keep people awake and alert...but not me..lol. I am on a lot of pain meds, so more pills are not really an option in case of reaction.(I get side effects really easily too) I have always had night time insomnia...
  6. Pandoranitemare
    I found out that my maternal grandmother had a history of stomach problems, and was eventually treated for diverticulitis (I am not sure what tests she had). Also my mother had been to the doctor and had been blood tested for celiac, which came back negative although sadly now she has an ulcer which has become cancerous (and inoperable) and in light of that...
  7. Pandoranitemare
    Thank you, You pretty much confirmed what I thought. I know that the blood tests are not always reliable, so I really want to give it the best chance, if I am going to put myself through this, I want to make sure I do it right! I guess the best thing would be to switch to a wheat based cereal to be sure I am can spread the gluten, and get some at every...
  8. Pandoranitemare
    I am new here, and just on the road to being tested for celiac, but I was curious to see a post mentioning hypermobile joints as I have Ehlers Danlos Type III (Hypermobility). I was diagnosed with M.E several years ago as a reason for my constant fatigue, brain fog, joint pain, numbness and tingling in my extremities, dizziness etc. Then a couple of years...
  9. Pandoranitemare
    I have Raynaulds, but I am on so many meds for other things that I don't even want to consider taking anything else. I have found a great handwarmer that runs on lighter fuel, it stays warm for several hours at a time, so is much better than the gel type ones which only last an hour or so. Check out Ebay, there are also ones which run on charcoal blocks...
  10. Pandoranitemare
    I already have problems sleeping at night due to other health issues, and now I am doing a gluten challenge I am literally falling asleep about 15 mins after I eat every meal! I end up sleeping for about an hour, at least, and I literally cannot stay awake no matter what I do, then I cannot sleep at night time, but when I do drift off I wake up about every...
  11. Pandoranitemare
    Thank you, I was hoping that was the case. I really did begin to feel an improvement when I did go gluten free, even though it was only for a short time and I was reluctant to go back on to gluten... However, I knew it was better to go back on it and get tested sooner rather than go gluten free for a long period then have to undo it all and face the...
  12. Pandoranitemare
    I am currently on a gluten challenge (eugh!) and I am wondering about oatmeal. It has been my staple breakfast for quite some time (apart from my brief gluten free period when I switched to millet porridge). Anyway, the brand I buy specifically says on the pack it contains gluten, although I am not sure if this is just a small amount due to cross contamination...
  13. Pandoranitemare
    Hi, I saw my GP today and having described my symptoms she is going to do a blood test for Celiac Disease in 4 weeks time. I tried going gluten free for one week about 3 weeks ago (and it did begin to improve things) . The only reason I stopped was I read that it was necessary to be eating gluten if you got tested, and as I was hoping that I would get...
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