aquaholical
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Hey everyone. I’m still waiting on biopsy results from my scope a week ago. I used to post here back in 2011 when me and my gastro first suspected Celiac. I think what happened was in 2010 I cut gluten out of my diet because I was diagnosed with lyme disease (most lyme docs make their patients remove gluten from their diets regardless of sensitivity because o... -
Hi there, I'm still trying to figure out if I have full blown celiac or just gluten intolerance myself, but I have had issues with food intolerances for over 7 years and my blood pressure is absolutely reflective of a food reaction. My normal BP is around 110/70, but if I eat a food (ANY trigger food, not just ones with gluten) my blood pressure jumps...
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Thanks! I found one in town
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No, I haven't heard of compounding pharmacies. But that does sound exactly like what I need, though. How would I find one? And yes, I realize healing is going to be extremely rough. I met with my new Lyme doc today and she actually has Lyme disease AND Celiac disease herself, so I feel like I'm in good hands.
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Exactly. It's like the treatment for one of my conditions contradicts the other. Oy. So where do people who react to trace amounts of gluten get their probiotics? It seems like anything that is processed I can't handle, so I'm scared to trust any brands. For the last week or so I've just been drinking kombucha.
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My god, I'm so sorry to hear you're having to go through that. I'm pretty convinced now it could be all the herbs putting my immune system into overdrive / making the celiac so severe plus trace amounts of gluten I've been possibly ingesting in those herbs. I'm going to see a new Lyme doctor tomorrow to see what she thinks. I have a feeling I'll have to...
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Yeah, I'm realizing that absolutely nothing processed is safe for me. I verified some mustard that is tested at 10ppm and still react to that. So I'm thinking I've been ingesting trace amounts without knowing for the last year. Now I'm worried that the damage from that might be significant. So where do people that are as sensitive as I am get their probiotics...
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Yeah, the more I'm calling around the more I realize that some may be "Certified" but they still share manufacturing facilities with other glutenous products. I've learned the hard way that I react to levels below 20ppm, so that's a no go for me. There's only been one brand I've found with dedicated facilities (Country Life) (not only do they have dedicated...
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I've found out the hard way that I am SUPER SUPER SUPER sensitive and I really need to take a bunch of supplements/vitamins for another health condition. Where do you get your supplements? What are the safest brands?
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I'm aware I need fruits and veggies but I react to all horribly. Anything with any amount of fructose is by far the worst. The pain is so awful I spend the rest of the day debating about whether or not to go to the emergency room. I'm also highly suspicious of the herbs. Over the last week I quit taking them just to see if I missed something there and...
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So I've only been able to eat white potatoes, white rice and seeds for the last few months without violent pain. I'm about to try chicken stock, my first bit of meat in over a decade. My doc was originally suspecting Small Intestine Bacteria Overgrowth as the cause to this severe malabsorption, and because the tests for it aren't too reliable he decided to...
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ARCHIVED Easy/processed Meat For Super Sensitive?
aquaholical replied to aquaholical's topic in Super Sensitive People
Good ideas, thanks! I actually read a lot about how untrustworthy the SIBO tests are. When I brought it up to my gastro she looked at me as if I had stated that the moon was made of cheese. She was very dismissive. I called yesterday and left a message pleading to find some other solution. There's no way I can make it a month to a test (and an... -
ARCHIVED Easy/processed Meat For Super Sensitive?
aquaholical replied to aquaholical's topic in Super Sensitive People
Oh I know, believe me. Turkey is actually starting to look GOOD after 2+ weeks of nothing but potatoes. I did try chia seeds today and so far they're sitting alright, fingers crossed no reaction from those since they're pretty heavily nutrient dense. (my reactions usually seem to land in the evenings/night for some reason..) -
ARCHIVED Easy/processed Meat For Super Sensitive?
aquaholical posted a topic in Super Sensitive People
I am having extremely serious complications and within the last few weeks my body won't tolerate ANYTHING other than baked potatoes or white rice with lemon. (my last post here) I appreciated all the input from my last post and some of it was especially helpful--my gastro does think it sounds like I have Small Intestine Bacteria Overgrowth. The problem... -
ARCHIVED Can Only Eat White Potatoes And White Rice Without Pain
aquaholical replied to aquaholical's topic in Super Sensitive People
Wow! thank you for all the information!! All extremely helpful. Now that you mention it, I remember one of my friends telling me about that bacteria/meat allergy article. I'm holding off until I talk to my doc to see what he says on all of it. Thank you so so so much for the info! I'll definitely be bringing it up with my doc tomorrow