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jnh380

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by jnh380

  1. jnh380
    I am frustrated. I went to the Ear Nose THroat doc today who basically said I need to see and endocrinologist for this type of stuff. I wrote my primary care doc asking for the t3 and t4 tests and she said that because my TSH was fine 5 months ago that there is no reason to order these new tests. I wrote her back a long email telling her how things have...
  2. jnh380
    This is a great statement. I have been struggling with this a lot. It boils down to the notion of whether or not one believes that the mind can cause such severe psychosomatic pain. I mean, can a fear or worry have such a profound effect on the physical state as to cause damage to the intestines and make us feel all the symptoms of celiac? Or does one believe...
  3. jnh380
    I believe that my biggest symptom is anxiety, just like the other posters on this thread. I have been an anxious and worried personality my whole life, but I had gotten it under control and was really doiing well, emotionally and mentally. Then about two years ago I started to feel not quite right, after 6-8 months it developed into a full blown panic/anixety...
  4. jnh380

    ARCHIVED Feeling Low

    jnh380 replied to vbug8's topic in Coping with Celiac Disease

    Yes, for me the emotional symptoms were and remain the most powerful. After the first 2 weeks I felt really good and felt like I was making strides. Then it hit me again and i felt so dissapointed and discouraged, and I went into a deeper hole than i was even before i found out. It is a roller coaster ride, i would say even now 5 months into the diet it is...
  5. jnh380
    I have only had the TSH level checked, which came back normal range. But I have read that does not really mean anything and the full tests should be done. Thanks for all the responses. I just get this feeling from kaiser that they know better than me what I should be suspicious about, and that the TSH was normal there is no reason to go any farther. I really...
  6. jnh380
    Quote from: Open Original Shared Link "Symptoms of Graves disease are those of hyperthyroidism and may include anxiety, restlessness, irritability, emotional instability, inability to concentrate, fatigue, muscle weakness or cramps, heat intolerance, and increased sweating. Periodic paralysis with low potassium may occur in men with hyperthyroidism who...
  7. jnh380
    I was recently diagnosed with Celiac, but my first indication anything was wrong was 6 years ago when I saw a GI doc about elevation ALT and Bilirubin tests. I was diagnosed with Gilbert's syndrome, which is a naturally occuring elevation Bilirubin. Now that I know I have celiac I think this was a precursor or indication of something not quite right about...
  8. jnh380
    Hi Marie, Just wanted to say that your post echoes my own experience very closely. I am now exactly 3 months into it and have been struggling with a lot of ups and downs. I now know exaclty what a glutening reaction is, but most times cannot pinpoint what it was I ate. I know I should be hypervigilant and only eat things I know are ok, but it is really...
  9. jnh380

    Hi J! Just wanted to say hi, I haven't been on the forum too much lately. How are you doing? Feeling any better since your last post?

  10. jnh380
    I used to play volleyball and would love to get back to that. i tore my ACL 2 months ago so unfortunately I can't be very active. I just need to keep telling myself that this is a disease with very powerful symptoms. I have to disconnect the ill feelings with the negative thoughts. I have to accept that this disease has caused a lot of pain and will take...
  11. jnh380
    Hi guys, its been about a month since I posted this topic. My experience since than has been a lot of ups and downs. Today is a bad day and I needed to share. I have had many good days this last month and have been trying really hard to watch my food. I have found that dairy is really bad for me right now, but have caved in a few times and had some ice cream...
  12. jnh380
    I didn't even think of it until now, but I had physical therapy 18 months ago for upper back & neck pain. Just believed it was bad posture, but now looking back and at the same time I developed neuropathy in my fingers it now all makes sense... BTW i am now 33 so this started when I was 31.
  13. jnh380
    Ok, just need to vent. I am currently with Kaiser and I my history of this diagnosis is as follows: 1. Primary doc orders TTG test, comes back positive. She told me it is possible celiac, tells me to avoid gluten and refers me to GI department. 2. GI doc calls me for 5 minute phone call and orders a endoscopy. 3. Different GI doc performs endoscopy, tells...
  14. jnh380
    Sounds about right. I was feeling much better 2 weeks ago, then it slowly crept back. Now I am looking into the other foods, such as milk, cheese, coffee, nuts, etc. to see if removing any of them helps me.
  15. jnh380
    My Vitamin D was on the very bottom of the normal range. Have been taking supplements Just started taking a probiotic I think I am, but it might not be as filling as before. Lots of salads and fruits. I have kept one since April 17th, the day after my endoscopy. I know they are there, and I guess its a little selfish to expect people to...
  16. jnh380
    Hi Calgarian, This post won't answer any of your questions, but I was just thinking about posting almost this exact same topic but had not gotten around to it. I was diagnosed in mid april through blood test and biopsy and have been gluten free for a little more than a month. At first I sensed some big changes in my mood and symptoms. Now a few weeks later...
  17. jnh380
    This looks like the test Kaiser Permanente does. I had this happen to me 2 months ago. I got the IGA result of 1.56, which the PCP told me was in the "High" range, yours potentially is in the very high range and is a strong indicator that you have celiac. I had the biopsy done a few weeks later (not bad at all, i was knocked out). You need to be careful...
  18. jnh380
    Thank you mitzi, that is what I needed to hear. I just have such high standards for myself that when I feel unable to cope it makes me feel even worse. Like i am letting myself and others down by not being 100%. I need to allow myself to feel bad and be selfish so that I can get better in the long run. It's hard to be realistic in the middle of the worst...
  19. jnh380
    Why has my reaction to gluten gotten so much more severe now that I have tried to stop eating it? I mean it was only a few days ago I was eating a ton of bread, pasta, and beer. and now it seems like i may be having strong reactions to it, like i have one thing the night before and i feel like utter garbage for the whole day afterwards. How come that didnt...
  20. jnh380
    Hi everyone, I woke up this morning with a terrible stomachache and wanted to cry. I still want to cry. I just don't know anymore what is going on. I was given a diagnosis of celiac after a positive blood test and positive biopsy a few days ago. I have been on a gluten free diet for about 2 weeks. I just don't know if this is the answer for my troubles...
  21. jnh380
    first off, no i did not get the EMA blood test. just the TTG test and it was in Kaiser's units. My PCP told me i was in the 'High" category but not the "extremely high" category. pretty vague. Skylark, I guess the way I think about things makes me want certainty. Having a doctor tell me it is celiac clinically would make me feel like it was totally valid...
  22. jnh380
    Thanks for the responses everyone! I will try to speak with the GI doc soon and find out more. I will let you know what I find out. In the meantime I am staying on the gluten-free diet and feeling better.
  23. jnh380
    ok, so I got an 3 sentence email from my doctor that said my biopsy did not show the classic features of celiac. i'm pretty annoyed that it was so brief. now I dont know what to do. I guess for now I follow my 'gut' and stay on the diet since I see improvement every day with it.
  24. jnh380
    Brewless- I got my biopsy results and they came back positive. Looks like I definately have celiac. Hope you get the answer you are looking for.
  25. jnh380
    Thanks Skylark, I am actually happy that I found out it is true. I have had so many weird symptoms and episodes of anxiety, depresion, irritability, tingly hands, heartburn, etc. that it is great to have a concrete reason for them. Something that has a relatively simple treatment and prognosis. But boy will I miss coffee cake, french bread, doughnuts, etc...
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