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Type1CDE

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Everything posted by Type1CDE

  1. Type1CDE
    Sorry for the typos! My fingers are too big for the iPhone keyboard /:
  2. Type1CDE
    Just last night since being gluten-free for a couple of weeks, I was telling DH how much better I feel!! Today I got some beef jerky but they were out of my regular kind do I bought teriyaki not even thinking about it... Sure enough after I ate half of the bag it occurred to me that I hadn't checked the ingredients and there it was(from the soy sauce) I wanted...
  3. Type1CDE
    Yikes! I will be watching this closely b/c I want my sons tested too... Sorry I don't know of any for you.
  4. Type1CDE
    I second the idiot doc comment (: mine was clear that it is very specific to celiac and that it wouldn't be caused by anything else...
  5. Type1CDE
    Thanks for the replies! I saw my PCP this morning who referred me on to my regular endocrinologist.... PCP thinks early celiac as well... she says since I don't want a biopsy ( for exactly the same reasons you listed) that the eat thing now is to go gluten-free and see if my symptoms improve....she even checked all of my meds to make sure there weren't any...
  6. Type1CDE
    Oh I see... That's if they happen to get a spot from the biopsy that is affected by celiac disease right? (: from what I read it is patchy? Interestingly last night I had to work a fundraiser at school where we were rolling dough out and using flour too and my hands flared up (red knuckles and itching). also I started coughing a lot... I told my Mom who reminded...
  7. Type1CDE
    Ps... Crazy autocorrect! Lol Emmanuel immunologist was supposed to say an immunologist...
  8. Type1CDE
    It sure does! Thanks (: I am thinking that my low-ish total IGA could be the reason for the negative ttg-IGA... ? I would like to see emanuel immunologist perhaps to explain exactly what is going in my body... I can't think of anything else it could be ( and I have googled til my fingers hurt-lol) and I just want confirmation.... If it is early stages of...
  9. Type1CDE
    Also I went thru and re-read the whole thread... Somehow I didn't read some of the responses as thoroughly as I should have! Sorry for the reposts.... I am definitely in denial a bit... ): 3 autoimmune diseases now and a kid in the spectrum...oy! What is next!? ):
  10. Type1CDE
    Skylark- Now I see these but for some reason didn't get any alerts that I had replies ): Anyway my original labs: TTG Antibody, IGA: <3 (in range) Immunoglobulin A: 106 (but much lower than average adult numbers- just not low enough to be deficient) DGP-IGA: >100 (high) Newer Labs- EMA-IGA- Negative TTG-IGG <3 (<7 normal) DGP-IGG 16...
  11. Type1CDE
    ): I feel so much the same!! I am definitely mourning the change....
  12. Type1CDE
    Not to hijack the thread but skylark you seem so knowledgable about the labs... Why would my DGP-IGA be over 100 but my DGP-IGG be negative (16)? Any ideas?
  13. Type1CDE
    Well the IgA test I had (ttg)was negative but the DGP-IgA was positive at >100. Just got my IgG results back- both negative with the ttg <3 and the DGP-IgG at 16. I am so confused! Still waiting on the EMA-IgA results... Thoughts???? Please explain these to me! Thanks in advance! Cari
  14. Type1CDE
    Total IgA being high probably doesn't mean Celiac....but I am not well versed on the differences between kids/ adults IgA... Mine was only 106 which according to the reference range from the lab was "normal" but most info out there says the average adult is around 200.... So my pcp dis some more labs (my ttg-iga was begative but my deamidated gliadin -IgA...
  15. Type1CDE
    I just got mine back and had the same high lab as you- mine was >100. /: I am assuming from what I've been reading that it is some sort of immune response to gluten...just not sure of the nature (celiac disease or not). I requested some more tests and my NP obliged so I had the IgG labs drawn today...my total IgA was only 106- "normal" by the labs but...
  16. Type1CDE
    My labs were by Quest as well and it stated demidated gliadin AB-IgA right on the sheet../
  17. Type1CDE
    Yes immunoglobulin A is the total and what I read is that they include it in the testing for iga subtypes....they didn't do the TTg for you either? Wondering if you have the lab sheet or did you just get the results over the phone? The nurse who gave me the results over the phone didn't mention the total IgA to me.... But I requested a lab sheet and saw that...
  18. Type1CDE
    Thanks! I have been combing through the posts and I do intend on having that lab added on...Hoping my doc will call it in so I can have the results when I go there next week (: Thanks for the advice!
  19. Type1CDE
    Lol! There I go stuck in my DM box! Just clicked that you meant endoscopy (: sorry!!! Guess I have "gluten brain"
  20. Type1CDE
    That's what is so confusing.... I have had an endo for the diabetes since I was 16(not the same one as I have moved a few times)....my endo seemed to think if my ttg wasn't off I didn't have to worry about it.... I wish I could speak with an immunologist or maybe a gastro doc? I know I am going in next week but I am sure you know the joys of anticipation...
  21. Type1CDE
    OK- I am brand spankin' new to the site. My name is Cari, I am 36 years old- Diagnosed with Type 1 DM 20 years ago! Also have autoimmune hypothyroidism. I am a RN and also a CDE (though not working in nursing at the time- I also have a photography business and am doing that full time now). I have 2 sons- youngest is on the spectrum (dx'd ASD- Asperger's type...
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