lushgreen

sorry for the delay in responding. tiffany, i feel like i've got no choice but to take the time to research all this - osteoporosis is scary. and though i had plenty of time to prepare for the diagnosis which i had anticipated a year before i got the scan - it was still a big shock (no pun intended). i feel like i've got to do whatever it takes to take...

thanks for the replies. mark, what tiffany said is right. running is weight-bearing - as is any exercise that involves having to bear the entire weight of the body (unlike cycling, swimming, etc.). my doctor did not explicity approve a running regimen, but did give me the green light to exercise (previous appt. in which she diagnosed the osteo, she had...

I'm looking to you all you very knowledgeable folks on this forum once again. Soon after being diagnosed with celiac I found out I have osteoporosis (am now 36) and want to get on a regimen to build up bone density. I understand I have to do weight-bearing exercise and since I live next door to a park, thought running would be the best way to go. I have...

I just noticed that I seem to be having dental enamel loss - my teeth have become translucent. I too am now looking for a dentist that would know how to treat dental enamel hypoplasia secondary to celiac disease, in the New York City area. The Columbia Celiac Disease Center recommended someone in Connecticut - too far for me! If you have any names, please...

just went to my first meetup yesterday

Thanks for all the very useful tips, all. In my two and a half weeks of living gluten-free, I've found myself saying "wheat allergy", "gluten intolerance" and "celiac disease" depending on the company and their clued-in-ness (which I assess very quickly!). Unfortunately I have not yet risen to the challenge of waiters. I did go out once with a large...

It's a simple blood test that includes TSH and various T3 & T4 levels. Be careful about what range they use to diagnose hypo. If you've got symptoms, family history and your TSH is above 2.5, insist on getting treated! Too many doctors rely on outmoded TSH ranges to diagnose hypo!

I am a lifelong lacto-vegetarian who recently went gluten, dairy and soy free. I eat plenty of legumes and nuts, besides rice and corn and do not at all feel like I'm not getting enough protein. From my experience, it is quite doable, though it definitely requires planning and cooking a lot at home. There are plenty others out there who are also gluten...

Oh, I just saw this thread - never thought to look in this forum. I live in NYC! And would love to meet other people with gluten issues. Just got diagnosed. lauriechick, Is the vendor fair accessible by public transport? No car!

have you had your thyroid functions tested? ridged and brittle nails are a sign of hypothyroidism. they were one of my first signs. please beware!

It's just been a few days since I got Enterolab results and a day since I got biopsy results which show gluten and casein intolerance. I've been gluten-free/CF for five days. I haven't yet noticed any symptom change. One change that I have seen is that I'm feeling very emotional - I can't stop crying. I don't know if this is due to the dietary changes...

Does anyone know of any support groups in New York City? I know there's one in Westchester and stuff that happens upstate but have not heard of anything in the city. Any information would be helpful.

If I were you, I would never see this guy again and let him know why. I told the the celiac "expert" I've consulted that no one would consider celiac or any type of malabsorption condition for me as I was not underweight. She thought it was absurd - of all the hundreds of celiacs she has seen, she said that only 5% are the supposed "classic" type with...

duodenal biopsy. what made your biopsy "inconclusive"? I just received such a diagnosis. see Open Original Shared Link

I feel particularly obligated to share this, since I had sounded the false alarm about testing at CDC (shame-faced). My doc called and clarified - apparently the discharge nurse had completely misinformed me. THe doc did indeed do 8-10 biopsies from TWO sites - the stomach and the duodenum. The stomach because she wanted to check for H. pylori (all clear...