
sce2012
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by sce2012
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Yes, I am gluten free now...I sure wish I had known! How did your recovery go?
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ARCHIVED Two Months Gluten Free, Still Have Issues
sce2012 replied to sce2012's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Well I had a follow up appointment and I told him I had felt better on the antibiotic. I'll give it a day or two and then contact him again I guess. Thanks for your help! -
ARCHIVED Two Months Gluten Free, Still Have Issues
sce2012 replied to sce2012's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Rifaxim for 10 days. I have thought about asking him to treat it again, although he has never done the breath test for it. Diagnosed based on symptoms. -
ARCHIVED Two Months Gluten Free, Still Have Issues
sce2012 replied to sce2012's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Early to mid march -
ARCHIVED Two Months Gluten Free, Still Have Issues
sce2012 replied to sce2012's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I guess? I had a colonoscopy in addition to the upper endoscopy. Had a ct scan...normal. Have been treated for small intestine bacterial overgrowth. He's calling it ibs but idk. -
ARCHIVED Two Months Gluten Free, Still Have Issues
sce2012 replied to sce2012's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
He did say I could just stop it...I don't know if it was because I was on a low dose? 25 mg. Thanks for chatting w me about this. :-) -
ARCHIVED Ladies, Did Anyone Notice A Change In Your Menstrual Cycle?
sce2012 replied to mommyof4's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'm afraid all the time that the docs have mised somehing. I am two and a half mos. gluten free and not sure how much I have improved. I feel like the docs just assume that I am or will improve...same for others around me. This thing is a real beast... -
ARCHIVED Two Months Gluten Free, Still Have Issues
sce2012 replied to sce2012's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
The brand you mentioned - digest gold. I just ate a plain chicken breast, peas, and homemade gluten free brownies. I had been taking pamelor but stopped because I was getting dry mouth. I don't know if withdrawal from that can cause D. I am also on my period (sorry if this is tmi) which usually upsets my stomach, but today has been pretty excessive. Feeling... -
ARCHIVED Two Months Gluten Free, Still Have Issues
sce2012 replied to sce2012's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I tried the digestive enzymes last night for the first time with dinner...had terrible diarrhea this morning. Is that normal when starting on them? -
Is anyone else dq2 homozygous? I am and am a bit skittish because I guess it means the disease can be more difficult to manage?
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I'm so very sorry! I was diagnosed two months ago, right after the death of a family member, and it is a lot to go through all at once. I don't know that I have any good advice, as I am still trying to figure all this stuff out too, but I do hope things settle down for you.
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ARCHIVED Two Months Gluten Free, Still Have Issues
sce2012 replied to sce2012's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I had held off on getting the enzymes b/c I was waiting the results of a fecal fat test...I figured he may write a prescription anyhow. The results still aren't in, so I guess I will go ahead and get them since the lab results are taking forever! -
ARCHIVED Confused Why I Have A Good Day & Then A Rough Day
sce2012 replied to mommyof4's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Is there somewhere that shows that cooking pasta releases gluten molecules? Just for my own information/sanity? My husband does not cook gluten free and I am stressing about this possibility. Thanks! -
ARCHIVED Two Months Gluten Free, Still Have Issues
sce2012 replied to sce2012's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes, I have been doing a lot of rice. I took the suggestion about eliminating something, and I eliminated corn. It seemed to help for a few days, but now the pain is back. This is going to make me totally batty!!! -
ARCHIVED Gene Test Question
sce2012 replied to 1974girl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I meant double DQ2! DQ2 homozygous -
ARCHIVED Two Months Gluten Free, Still Have Issues
sce2012 replied to sce2012's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I am taking a probiotic, Culturelle, although it only has one strain of bacteria so I am not sure if it is the best. I looked for digestive enzymes at the grocery store yesterday and didn't see any. Maybe I was looking in the wrong place. I see people talk about L-glutamine, too...does it work? -
ARCHIVED Gene Test Question
sce2012 replied to 1974girl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am double DQ as well...Gemini, how long did it take you to heal? -
ARCHIVED Two Months Gluten Free, Still Have Issues
sce2012 replied to sce2012's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thank you everyone for taking the time to respond...very helpful and greatly appreciated! -
ARCHIVED Two Months Gluten Free, Still Have Issues
sce2012 replied to sce2012's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Meggielynn, you don't get the mucous anymore? -
ARCHIVED Two Months Gluten Free, Still Have Issues
sce2012 replied to sce2012's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
For awhile I was eating just chicken and rice...I will probably have start something similar to that again. Thank you :-) -
ARCHIVED Two Months Gluten Free, Still Have Issues
sce2012 replied to sce2012's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
How do you test for intolerances? -
ARCHIVED Two Months Gluten Free, Still Have Issues
sce2012 replied to sce2012's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thank you, that is what I needed to hear. I have been so anxious about all of this. It seems as though everyone has this amazing quick fix after going gluten free and while I have had some improvement, I am still very stressed. My first gi doctor scared the life out of me about celiac potentially being lymphoma and I've never really recovered from that. -
ARCHIVED Two Months Gluten Free, Still Have Issues
sce2012 replied to sce2012's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I haven't. I asked my gi doc but I guess I have to go to an allergist? That doesn't seem right to me, but maybe it is? -
ARCHIVED Two Months Gluten Free, Still Have Issues
sce2012 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I am gluten and dairy free and still passing mucus in stools and still have stomach pain...doc thinks I have ibs in addition to celiac. Does anyone else still have these problems at two months?