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KendraAnn

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by KendraAnn

  1. I'm on day 26 of being gluten free and I'm still having headaches everyday. They are the kind that don't go away, even with excedrine which always works for me. Our bodies are detoxing trying to get all of the poison out of us and some people get worse before they are better. I sure hope these headaches stop soon though. I am happy to say my GERD has...
  2. I have a lot of the same symptoms as you and have for years. I did things a little backwards and first demanded a biopsy (positive) followed by blood work (negative). I've been gluten free for 20 days and can tell things are looking up but that its going to take a while. I think I read in another one of your posts talking about tingling hands/feet...that...
  3. I also have muscle and joint pain, especially my sesamoid bone in my right foot for years....I haven't read of anyone else with that exact same pain, so that's interesting to me. I have had symptoms for over 10 years and just this year had a positive Celiac biopsy, but my blood work was negative. I'm sick of stupid doctors as well, so I went gluten free...
  4. It is very hard to find a doctor who knows anything about it. I had the colonoscopy and scope at the same time, so I was put under with IV sedation, so I don't remember a thing. I think if you just get the scope/biopsy they might not put you clear under, but I've heard it's not bad and doesn't hurt. Talk to the doctor before hand and make sure he will take...
  5. Since November I have just continued to get a lot sicker and demanded a colonoscopy and scope. I had to ask for the Celiac biopsy, which came back with "villous atrophy" which means the villi are flattened and damaged. They then did the Celiac blood panel but that came back negative. I've heard of a lot of false negatives and all of my symptoms point to gluten...
  6. Yes, exactly the same symptoms! Mine started when I was about 17 when I had shingles, I'm now 27 and just this year got a positive biopsy, although my Celiac blood panel was negative. I've met with countless doctors over the years and they just say, IBS, acid reflux, depression, chronic headaches, etc. The last doctor I saw was supposed to be a "specialist...
  7. My Doctor prescribed Osmoprep Tablets for me to take. You take 20 pills with ginger ale the night before...4 pills every 15 minutes. The morning of the colonoscopy, you take 8 more tablets. Obviously we all know what the prep is like but I was extremely happy with the pills and not having to drink that nasty drink.
  8. Hi HGMama, I too had negative blood work, but I had a postive biopsy. I have been gluten free for 13 days now and overall am feeling better. "Normal" bowel movements (haven't had that in over 10 years!), basically no acid reflux, but I have been having gluten withdrawals resulting in headaches for all 13 of these days so far. I've read that it might take...
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