becca42

Thanks everyone!

A positive blood test is positive for celiac.

As Karen says, the biopsy could be wrong or you just have patchy erosion at this point and he missed it.

Your doctor is partly correct--you should be gluten free, but there is always a need for follow up care.

You need lab work to make sure you do not have any vitamin deficiencies for starters.

What the hell is wrong with your GI doctor? You don't just dismiss a patient with that insufficient info.

Start reading about Celiac yourself so you can know what you are dealing with.

For starters, it is not a "gluten allergy", hon----it's an autoimmune disease. Not an allergy.

Try to find a doctor who knows what the hell he is talking about.

call the local celiac support group and see which MD is on their advisory board. They can help you find a good celiac-savvy doc.

Start reading about celiac here

Open Original Shared Link

and search celiac.com for more help.

I'll start you off:

Thank you

Possible the biopsies missed the bad spots. if 25% of your small intestine is " bad" you would feel awful. Every biopsy he takes has a 1 in 4 chance of getting a bad spot. If he did 2 biopsies, he probably missed it.

Get a copy of the procedure report, blood tests and pathology ( biopsy) report. Read them yourself. Sometimes docs don't know what they are reading. Also, perhaps your regular doc should call the GI and get some info?

Thank you. I have an appointment to get the pathology report.

Hi, I am new. I am confused. I had the celiac screening test in back in March. All 3 tests came back positive; tTG ab, IgA = 48.3, Gliadin Peptide Ab, IgG = 50.6, Gliadin Peptide Ab, IgA = 121.0 (for all the tests >25 means positive0. My doctor said there was greater that 90% chance I have celiacs.

I had the endoscopy in April and the results came back negative for celiacs. I did NOT stop gluten before the biopsy.

The gastroenterologist sent me the results, but did not explain anything to me. They said there was no need for follow up and to continue with the gluten free diet. I went to my regular Doctor, he was surprised and couldn't explain it either.

How could my numbers be so high without having celiacs? Am I allergic to gluten or do I have gluten sensitivity? What is the difference?

I would appreciate any advice. Thank you