MistyRG

I read on the University of Chicago website about what you should be tested for each year after diagnosis. My doctor isn't very knowledgeable on Celiac, and I am coming up on 2 years since diagnosis. At my last appointment (which was the first since diagnosis), I asked her to run the testing again to see if my numbers look good. She ran a "Celiac Panel" ...

I have 5 kids, and these days are the WORST!!!! I recently purchased some sublingual vitamin B that seems to help. I also grab some caffeine. I know it's bad, but it is harder when I have 5 kids needing my attention when all I want to do is nap!!!

I have said since I was diagnosed that I don't have the "normal" symptoms. I only had the rash that started this whole ordeal. Now, 4 months into gluten free, my slip ups or unknown gluten is known immediately. I get a heavy, bloated feeling in my stomach, and it cramps up a little. It isn't bad, but it has progressively gotten worse with every exposure...

I was diagnosed in June, and I decided to get my oldest 2 kids tested. My daughter (5) has complained of stomach pains and issues for the past year. My son (9) has no issues. Ironically, her tests were all normal, but my son's tests came back abnormal. Being new and not really doing anything but asking the pedi to run a celiac panel, I didn't know what...

Do you get retested to make sure you are healing your body after going gluten free? I don't have a lot of symptoms or issues. Yet my biopsy came back "severely damaged." So I am wondering if my doctor should retest my blood work or something to make sure I am on the mend and not eating hidden gluten since I may not even know.

I had my testing ordered by my allergist after doing some research. She was happy to order the lab tests (Celiac panel), but she couldn't do anything for me beyond that. I would go see a GI doctor. He has been the most knowledgeable for me! After my lab results came back positive, I did have the intestinal biopsy. It was a VERY easy procedure!! Good...

Anyone have an idea on this one? Of the Celiac panel, 3 of my 5 tests were positive. Endoscopy is positve. So I have Celiac. However, during the wait, I had my rash biopsied. It came back negative for DH but could be 4 other issues including lupus. So they ran an ANA test on me. Negative is < 1:40 Mine was extremely positive at 1:640 I...

I got the results back from my endoscopy, and I do have celiac. I am relieved that I wasn't crazy!! I am VERY thankful to have a great team of doctors that listened to me and ran the tests I requested without question!! I am extremely lucky that my diagnosis took only 2 months from rash to positive diagnosis (though rash is negative for DH! Go figure!!)....

While waiting for my endoscopy, I had 2 biopsies of my rash. Both came back negative. Actually, one came back with 4 other possible issues, and they ran some more labs. But I don't believe it!!! The rash was the reason I started this "could I have celiac" journey. I do have a positive intestinal biopsy. So celiac is confirmed . . . I just can't see how...

It's amazing to me how many light bulbs start going off when you figure something like this out. I know for me, I went back through my life and kept making check marks on the "list of symptoms!" It was amazing . . . and while I didn't want Celiac, it's nice to know that all these problems I have dismissed all my life actually have a cause!! And one I can...

My rash is extremely itchy red bumps. Some are clusters and some single. Some had fluid filled blisters. I have had 2 outbreaks, and they started on my elbows ans went up and down my arms. Then spread to my knees. Pics. Thank you for your replies! It is hard yo be patient!!

I had my intestinal biopsy done today. Preliminary report is that everything looks normal. I should be happy, but I am confused! I know we have to wait for the results for a definitve answer, but I guess I assumed they would see something. Has anyone has a normal looking preliminary result followed by a positive biopsy? I am also waiting on biopsy...

I've been going through this as well. Do I want to put my kids (5) through testing so we KNOW . . . or just have them go gluten free? If there was a rash, I wouldn't hesitate to get that biopsy. It's quick and painless!! I am more leery about the endo on them. Personally, I am getting the celiac panel on all the kids, and we'll go from there. I would...

I posted a similar question a couple weeks ago . . . my version of grasping at straws!!! I was told by my doctor that with the EMA positive, he would be shocked if I don't have a positive biopsy. It is Celiac specific test (as others mentioned). Welcome . . .