Mom2-2girls

That was my feeling Mushroom. She has been living in a gluten-free house for 5 months now, but I did give her one serving of gluten a day, plus she had gluten when we went out. I still worried it was not enough though although the GI doctor said it just had to be a serving the size of her palm. My older daugther was originally tested by a naturopath...

Hello, My daughter is 2.5 and her big sister has Celiac (the only person we know of in our family). She has had a couple of weird things happen. 1./ rectal prolapse several times over the last 8 months. 2./ Constipation since birth despite being breastfed exclusively for 8 months, and she still nurses. 3./ She has had ear pain, and loss of balance...

What a wonderful post! I have also noticed a HUGE difference in how my 5 year old daughter is feeling emotionally. Previously she would have horrible tantrums and become totally unreasonable and we just couldn't understand why. It is amazing how since being gluten-free all that unreasonableness and irritability are gone. Hope you see some good weigh...

Thanks for the reply. Our whole house is gluten-free. My mom's is not nor is the daycare providers since no one has celiac in those families. I know my mom is super vigilant and the daycare provider is careful too, but maybe my daughter is just that sensitive... I think we will put her on a whole foods diet (we already mostly eat whole foods but could...

Thanks so much for the replies. We mostly eat a whole foods diet and don't eat out at all (except for that one smoothie). I feel like we are so careful. I think maybe we need to go to basically 100% whole foods though. I was reading about people having to replace pots and pans etc. I wonder if she could be sensitive to things cooked at the home daycare...

My daughter has been gluten-free after being diagnosed with Celiac in early October. Not sure if it matters but her Marsh score was 3B. Anyways after a HORRIBLE first month with really bad withdrawal symptoms we have seen big improvements. However it seems like she is really sensitive to CC. Our whole home is not gluten-free and we got rid of a lot of...

Not sure if you are close to Toronto but could you get your doctor to refer you to the GI clinic at Sick Kids? I wish we had done that first... the wait list was pretty long. It might be worth it to try and get in there. If you do the full panel that is great but if you are going to choose between TTG and EMA go with TTG (if you think you will end up...

My daughter was also a beast. Constant meltdowns... waking up kicking and crying at night... so grouchy and kept saying awful things about herself (out of character)... also had constant tummy aches. This lasted an entire month and finally started improving. Hang in there!

I am in agreement with this. We actually had our daughter go gluten-free when she was 3 after a naturopath said she had a gluten/ wheat intolerance. Not thinking it could be celiac we eliminated 95% of the gluten in her diet and saw no improvement, so we figured the ND was wrong. If only we had had more info and known she couldn't have ANY gluten at all...

My daughter was 5 when she went gluten-free after being diagnosed. First month: It was HORRIBLE! She was SO moody. She was having huge tantrums all the time, her tummy was constantly hurting her too. I was so frustrated and upset. It was very difficult. After that: All her sensory issues have been getting less and less apparent. Previously she...

My daughter is 5 and has been diagnosed with Celiac recently. She has been gluten-free for 2.5 months. The first month was so horrible. She was having meltdowns everyday and her behaviour was just out of control. She likes the gluten-free diet and had no problems cutting it out. Since November she has been getting better and better and her moods have...

My 5 year old daughter had an endoscopy just under a month ago (which confirmed celiac). That day we went gluten-free. The first week she was super cranky and we thought maybe it was withdrawal but looked forward to her feeling better... especially her moods. It feels like things have only gotten worse since going gluten-free. How is that possible? ...

THis is exactly the kind of information I was interested in. Thank you so much for your help. I am so thankful to have this board as a resource.

My daughter had her scope yesterday so we are one day in to being gluten-free. Right now she has had intermiten stomach aches etc. She gets very agitated too. I am wondering how long after going gluten-free is it before you started really being able to notice if you ate something with gluten. I have read about some people being sensitive to Chex ...

Thanks so much for the replies! All this waiting is driving me nuts!! It has been over 4 months since her first positive blood test. At least now we can go gluten-free.