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My 3 year old daughter dx in May will be starting preschool next week. Her teacher has been really great, and she wants to send a letter home to all the other parents about Celiac disease. Parents will be very involved in the classroom, and help out during parties, field trips and everyday things. We want them to be aware as well of the precautions they need...

My daughter was diagnosed in May, and will be starting preschool in September. She has a twin brother, who will be in the same class. He does not have celiac (as far as we know right now...blood test was neg, but we aren't convinced). Anyway, I was very overwhelmed at first, but now feel like we have found a new normal at home. BUT adding preschool into...

Thank you SOO much for taking the time to help me understand all of this!

Kudos to all of you that "get" the gene stuff and have done the research! I have read and read and read about it over the last few weeks but it is SO confusing to me! So THANK YOU for all your help! I have been back on gluten fully for about a week and a half, maybe 2 weeks. If I haven't eating much gluten during the day, I will eat a few pieces of...

Beachbirdie, thanks for your response! So is it the DQ alpha or DQ beta that looks like it is DQ7? Still trying to figure out the other gene. No CLUE how this stuff works! Very interesting articles. Now that my daughter has been diagnosed, I am very curious to know what her genes are...if she has DQ2 or 8 or not.. we may get her tested just to know. ...

Also, what genes does this mean I have? I see people posting I am DQ2 and DQ8 or whatever they are. I can't tell why my 2 genes are from these results. Can someone help? Thanks!

Also wanted to add... I do think I will go gluten free with my daughter anyway after exhausting my options with testing, but I would like to try to get a diagnosis if I DO have Celiac disease, because I feel that if I don't have that, I won't a basis to ask for other testing. I broke both of my femurs in a car accident 12 years ago, and my bones took years...

I did have other tests done, kind of in backwards order though! We have since realized that the Medifast weighloss program I was doing at the beginning of this year has alot of certified gluten free foods, so I was pretty much gluten free for 10-12 weeks without really realizing it or thinking gluten had anything to do with my health issues.(and I thought...

My GI ordered the gene test for Celiac, and I requested a copy, but I have no idea how to read it, can anyone help? DQ Alpha 1 01,05 DQ Beta 1 03,5:01 Then it says under Interpretation: see comments. But there are no comments. It just says gene pairs not present. My 3 yr old daughter was diagnosed with celiac through blood and biopsy. And I have...

Hi, I am wondering if anyone has ever seen Dr. Kinney in Minnesota? He is who I am seeing, and I am wondering if he is very educated about celiac disease. I was having a biopsy done for other reasons, and I asked them to biopsy for Celiac as well. The nurse said fine, but that celiac disease wouldn't cause my abdominal pain I am having anyway. They took...

I need some opinions on what to do in the situation I am in, and also wondering how common it is to get a false negative on a biopsy and blood test? A little background info... I will try to keep it as brief as I can. I had my gallbladder out last december, after 4 years of uncomfortable pain in my upper middle abdomen. After having my gallbladder out...

Interesting question.... I am curious to know what others have experienced too! My husband and I were just discussing this issue tonight! Our 3 1/2 year old daughter was just diagnosed with celiac. She does not have a speech delay, but her twin brother does, and is in speech therapy. He does not have the digestive issues she has had, but they both have...

1974girl, I am hanging in there ...while it is a relief to have answers as to why my little girl is so miserable, it was also really hard for me to hear that the biopsy confirmed Celiacs, and honestly, I was devastated. Even though we knew chances were very high she had it after getting the blood test results, and had already gone gluten free for her as...

Yes, it is definitely a relief to have answers, but it was also hard to hear the results even though I was not surprised. The other 3 kids got their blood tests today and I had mine yesterday. Just my hubby left to do the test. I will be happy when we get the results back and I don't have to make gluten food for the other 3 kids and gluten free for my...

Just thought I would post an update. My daughter had her biopsy done, and the results came in today confirming celiac disease.