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amy31

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  1. Hi Amy, My daughter only had high TTG IGG too and I am to trying to figure out what that means.  Do you have any update as to what you found out.  She is not IGA deficient either.

  2. Thank you Iguana and mbrookes for chiming in! Mbrookes, I appreciated hearing your understanding of the warnings on product labels. Recently I called Great Value about the "May contain traces..." warning on two of their products. The lady looked each one up and found that each is listed as being produced in the same facility with wheat. One of the products...
  3. Adalaide, I appreciate your explanation. I think I am starting to learn the ropes of all of this a little bit. Shauna, thank you for the idea about getting retested after some time. Unfortunately I was never diagnosed with celiac. I had one positive blood test that is supposed to be not highly specific for celiac disease and all of the others were negative...
  4. Annie, I am sorry that you are going through that. I wish that I knew what to tell you. Remember that it is not your fault that you are trying to do what is necessary for your health. Even if your husband is unhappy about what you are doing, you are trying to do the right thing, so don't allow yourself to feel guilty. (By the way, I'm so glad you are now...
  5. Hi and welcome! Yes, your labwork looks normal, but even if a person gets a normal blood result, this still does not guarantee that the person is not celiac, or is not intolerant to gluten. Since your child has experienced improvement on the gluten-free diet, and since you also have symptoms, you may want to do a strict gluten-free trial and see if it...
  6. Thank you so much, Adalaide and Psawyer, for taking the time to write such careful responses to my questions. I really appreciate your taking the time, and I appreciate the two perspectives too. Since I'm just starting out, it is hard to say how sensitive I may be. It also seems like there is not one hard and fast rule for some of these things, but that maybe...
  7. No one needs to answer all my questions, and I don't mind getting a variety of different opinions either. I know some people experience symptoms more easily than others from very small amounts of contamination. A bit about me: I am new at gluten free living, although I've read quite a bit. I am a frugal shopper, like to buy the store brands or in bulk...
  8. Thank you all for your perspectives on flour and contamination. I like the idea of a mask. For now I have the bread maker down in the basement and I guess I will see how that goes. I may have to change that arrangement eventually too.
  9. Thank you, MitziG, for your encouragement. I really do appreciate it! Was your positive TTG and IGA or IGG, if you don't mind my asking? It seems like there is more confidence out there in the IGA, for someone who isn't IGA deficient, than for the IGG. When I called the University of Chicago Celiac Center, the lady that spoke to me thought that if I were...
  10. So the verdict is...that I do not have a definite diagnosis. I had really been wanting something definitive. Some here will recall me posting earlier about my complete celiac panel, which included DGP (IGA and IGG), TTG (IGA and IGG), EMA IGA and total IGA. Total IGA was normal and all celiac markers were normal except TTG IGG, which was 11, with the...
  11. Hi Mammato4, It appears that you had the same celiac panel, from the same lab, that I did, and your results are also strikingly similar to mine! I too, only had the TTG IgG positive. It was 11 with the normal range 0-5. TTG IgA was <2 (range 0-3). The other tests were also negative. Understandably, I have the same question as you do! I had also...
  12. Thank you, Ravenwoodglass and MitziG. Your input is much appreciated. I plan to make an appointment with a GI tomorrow. Today I've had dizziness and increase of my problem with balance. It has me quite concerned. I do not know if that is connected with the other problems or not, but I do hope to get to the bottom of it. Even if I end up having to do the...
  13. Thank you, Takala. Yes, I do have small children and I am involved with their feeding during meals. I would always brush my fingers off but it may not have been good enough. I'm still new to all this! Thank you for your thoughts on a possible course for me to take. It is unfortunate that the biopsies are so expensive. For that reason, I'm hoping I can...
  14. I so appreciated those who wrote a couple of weeks ago when I received my test results. Ever since then I have been uncertain what to do next. Briefly, I'm 31 and have several symptoms including loose stools and diarrhea, gas, abdominal cramping going down into the legs, abnormal level of fatigue, mild feeling of loss of balance/lightheadedness, canker...
  15. Thank you for those additional ideas. MitziG, I agree that it could take a while for me to see all the symptoms go away, and during that time, if I do not have a diagnosis, I'll be likely to worry that I'm not really celiac and that I am missing the real problem. I'll be seeing my doctor again and asking about retesting some time in the future.
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