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MaZoodleTwins

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I have 3 1/2 year old twin daughters, Madison & Zoey. Madison had a positive Celiac bloodtest & positive biobsy. Zoey had a negative bloodtest & mild blunting with negative biobsy but a positive Gluten Sensitivity Stool Test of 176 Units(Enterolab) and I have been suspecting she too has Celiac because she has the same symptoms as Madison.

I have Hashimotos Hypothyroid, PCOS, abdominal pain, joint pain, fatigue and lots of other symptoms and my Mom has Celiac. About a year ago abdominal pain got so severe I had an Endoscope that revealed severe gastritis, duodenitis, ulcers and I forget what else. GI Dr was "positive" I had Chrohns although I didn't have diarrhea but I did tell her my Mom has Celiac and she said she had been doing her job for a really long time and she was sure it was Chrohns and we'd wait for bloodwork to confirm, pretty much ruled out Celiac(and hadn't looked for it during Endoscope) Chrohns test came back negative(I knew it would) and then I began having diarrhea, it ended up getting so bad at one point that I was having mucous & blood. Then had a colonoscopy that revealed NOTHING and my GI Dr told me that nothing was wrong. I asked what caused all of my problems then and she said these things often happen for NO REASON and that it was probably stress. I told her that I have NO stress, I have the most stress free life, nothing had changed. I am pretty sure that she just didn't have a clue what was going on so the easiest and only answer that she could give me was to say STRESS. My GI Dr told me I didn't have Celiac, I THINK she did bloodwork and I did a Gluten Stool Sensitivity Test(Enterolab) that came back negative/normal at 9 units.

We turned our entire house gluten free June 7, 2012 so I will see if mine & Zoeys symptoms go away. I still suspect that both Zoey & myself have Celiac based on our symptoms and reguardless of what any tests show, only time will tell.

  1. Thanks for the replies everyone I have not yet cut dairy out of their diet, I was wanting to see if just a gluten free diet would fix the constipation. Only 1 of my girls were dx with Celiac but they both have the same symptoms so I am still trying to figure out if the other twin has it as well despite negative blood & biobsy tests, she did have...
  2. Thank You, I hope it only takes a month or 2 for my girls too. One of my girls have been dx with Celiac and the other has the same symptoms but neg. blood & biobsy and a pos. fecal gluten test from Enterolab. I THINK she has Celiac but want to wait and see if the gluten free diet clears up her constipation before eliminating other things from the diet...
  3. We have only been on the gluten-free diet for a little over a week now and I know it can take a while to heal and for symptoms to improve but I am just curious how long it took anyone who had constipation as a symptom of gluten to stop being constipated once going gluten free. They never had diarrhea, just constipation. My girls are 3 1/2 and are constantly...
  4. I received Zoeys Procedure & Pathology report. After the receptionist told me I HAD to get it from the medical records place, I later talked to a nurse from the GI dept who said it was no problem and mailed me the reports. It looks like they took 12 biobsy, so I'm guessing that is quite a few. Here is what the paper says. The Procedure/Operative...
  5. Lol, it's no big deal So far the only change I have noticed on the diet is that my extremely picky, barely ever eat much food at all girls have started eating! Like Zoey(one not dx with Celiac) has started eating meat, this is something that she NEVER NEVER has done no matter how much bribing I've tried to do. The only 'meat' she would ever eat was...
  6. I feel like it is a huge pain in the butt, anytime I call the GI office I end up getting transferred somewhere else. I was asking the lady at the GI office yesterday and she said she didn't know anything about it that I had to talk to the records department. I am having my husband fax the forms today while he is at work and I will call the records dept after...
  7. I don't have a son, this is for my daughter. One of my girls had a positve blood & biobsy for Celiac, we made the decision for the 4 of us to go completely gluten free and we started the diet last Thursday. Zoey is done with all of her testing, she had her Endoscope last Tuesday. Thanks
  8. Before I decided to test through Enterolab I researched them a lot and found quite a few people who had negative results. Or 1 of their kids would be negative and 1 would be positive. And MY results were negative.
  9. Thanks, I called the GI office and they said I have to get them from the medical records office(the GI is at a childrens hospital) so I called them and have to fill out paperwork and then fax or mail it back. The paper I have to fill out it a little confusing and I don't even know what boxes to check, I don't see why the GI Dr can't just give me a copy of...
  10. They are my Moms brothers, so my Uncles. I don't have any photos here of them but if I remember next time I go to my Moms I will see if I can find some pictures of them. I know we have some, it would just be a matter of finding them. I would be very curious to see if you notice the look you're talking about.
  11. Thank You! I feel so lost about all of this stuff but everyone here is being so helpful and nice . I will call the GI office to ask for a copy of the procedure report and pathology report. And I am going to call the Dr office to get a copy of her bloodtest result so I can see what all they tested for.
  12. This is extremely interesting...my Mom must not be one of the Celiacs who have this because she is about 5'1"-5'2" and none of the facial characteristics. However, my Moms brothers are both well over 6' tall and they both have the characteristics you are talking about!! Both of them have multiple health problems and have for many years(all linked with Celiac...
  13. Thanks for all of the replies, I guess I'll just wait to buy any future clothes. Neither myself or my husband are very tall so I don't think she will be that huge anyhow but I'm sure they would be taller than she currently is.
  14. Did your child with the "mild blunting" have a positive bloodtest? Our daughter Madison with Celiac has had symptoms for a much longer time than Zoey so if Zoey has Celiac I am certain we are catching it at a very early stage. Like I was just remembering earlier, Madison(dd w/Celiac) has always had tummy problems since birth, always had constipation. But...
  15. The GI Dr didn't mention anything about intraepitelial lymphocytes so I have no idea if they counted them. I'm not sure how many samples they took? Would the pathology report tell me that(because I'm going to get it)
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