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MaZoodleTwins

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by MaZoodleTwins

  1. MaZoodleTwins
    Thanks for the replies everyone I have not yet cut dairy out of their diet, I was wanting to see if just a gluten free diet would fix the constipation. Only 1 of my girls were dx with Celiac but they both have the same symptoms so I am still trying to figure out if the other twin has it as well despite negative blood & biobsy tests, she did have...
  2. MaZoodleTwins
    Thank You, I hope it only takes a month or 2 for my girls too. One of my girls have been dx with Celiac and the other has the same symptoms but neg. blood & biobsy and a pos. fecal gluten test from Enterolab. I THINK she has Celiac but want to wait and see if the gluten free diet clears up her constipation before eliminating other things from the diet...
  3. MaZoodleTwins
    We have only been on the gluten-free diet for a little over a week now and I know it can take a while to heal and for symptoms to improve but I am just curious how long it took anyone who had constipation as a symptom of gluten to stop being constipated once going gluten free. They never had diarrhea, just constipation. My girls are 3 1/2 and are constantly...
  4. MaZoodleTwins
    I received Zoeys Procedure & Pathology report. After the receptionist told me I HAD to get it from the medical records place, I later talked to a nurse from the GI dept who said it was no problem and mailed me the reports. It looks like they took 12 biobsy, so I'm guessing that is quite a few. Here is what the paper says. The Procedure/Operative...
  5. MaZoodleTwins
    Lol, it's no big deal So far the only change I have noticed on the diet is that my extremely picky, barely ever eat much food at all girls have started eating! Like Zoey(one not dx with Celiac) has started eating meat, this is something that she NEVER NEVER has done no matter how much bribing I've tried to do. The only 'meat' she would ever eat was...
  6. MaZoodleTwins
    I feel like it is a huge pain in the butt, anytime I call the GI office I end up getting transferred somewhere else. I was asking the lady at the GI office yesterday and she said she didn't know anything about it that I had to talk to the records department. I am having my husband fax the forms today while he is at work and I will call the records dept after...
  7. MaZoodleTwins
    I don't have a son, this is for my daughter. One of my girls had a positve blood & biobsy for Celiac, we made the decision for the 4 of us to go completely gluten free and we started the diet last Thursday. Zoey is done with all of her testing, she had her Endoscope last Tuesday. Thanks
  8. MaZoodleTwins
    Before I decided to test through Enterolab I researched them a lot and found quite a few people who had negative results. Or 1 of their kids would be negative and 1 would be positive. And MY results were negative.
  9. MaZoodleTwins
    Thanks, I called the GI office and they said I have to get them from the medical records office(the GI is at a childrens hospital) so I called them and have to fill out paperwork and then fax or mail it back. The paper I have to fill out it a little confusing and I don't even know what boxes to check, I don't see why the GI Dr can't just give me a copy of...
  10. MaZoodleTwins
    They are my Moms brothers, so my Uncles. I don't have any photos here of them but if I remember next time I go to my Moms I will see if I can find some pictures of them. I know we have some, it would just be a matter of finding them. I would be very curious to see if you notice the look you're talking about.
  11. MaZoodleTwins
    Thank You! I feel so lost about all of this stuff but everyone here is being so helpful and nice . I will call the GI office to ask for a copy of the procedure report and pathology report. And I am going to call the Dr office to get a copy of her bloodtest result so I can see what all they tested for.
  12. MaZoodleTwins
    This is extremely interesting...my Mom must not be one of the Celiacs who have this because she is about 5'1"-5'2" and none of the facial characteristics. However, my Moms brothers are both well over 6' tall and they both have the characteristics you are talking about!! Both of them have multiple health problems and have for many years(all linked with Celiac...
  13. MaZoodleTwins
    Thanks for all of the replies, I guess I'll just wait to buy any future clothes. Neither myself or my husband are very tall so I don't think she will be that huge anyhow but I'm sure they would be taller than she currently is.
  14. MaZoodleTwins
    Did your child with the "mild blunting" have a positive bloodtest? Our daughter Madison with Celiac has had symptoms for a much longer time than Zoey so if Zoey has Celiac I am certain we are catching it at a very early stage. Like I was just remembering earlier, Madison(dd w/Celiac) has always had tummy problems since birth, always had constipation. But...
  15. MaZoodleTwins
    The GI Dr didn't mention anything about intraepitelial lymphocytes so I have no idea if they counted them. I'm not sure how many samples they took? Would the pathology report tell me that(because I'm going to get it)
  16. MaZoodleTwins
    How do I get a copy of the pathology report, just ask the GI office? Will the pathology report have what the GI Dr saw AND the biobsy results? Our GI Dr told us that he took samples of the mild blunted area as well as some other places but I have no idea how many he actually took. I do know that since her bloodwork was negative he went into this entire thing...
  17. MaZoodleTwins
    I am just curious how quickly kids start to grow once they are gluten free. And I also want to know if most kids catch up or if some kids stay pretty small. She was DX with Celiac and we just started a gluten-free diet this week(our entire house is gluten-free) Madison is 33.5" tall and 26lbs, she will be 4 years old at the end of October. She is VERY...
  18. MaZoodleTwins
    Our Pedi gave both of my girls the Celiac Blood Test and all I had to do was ask him to test. The GI will NOT do anything with any of your other kids unless your Pedi sends a referral for them. But there is absolutely no reason that your Pedi can't order the test. One of my girls bloodtest showed up positive and one of them showed up negative(although I suspect...
  19. MaZoodleTwins
    Thanks, this is very interesting. The GI Dr saw the mild blunting when he was doing the Endoscope(he told us this after her procedure), I'm not sure if there was any blunting when they looked at the biobsy pieces, does that make a difference? All the nurse told me about the biobsy was that it was normal and she didn't have Celiac.
  20. MaZoodleTwins
    I thought the same thing about 'mild blunting' like it HAD to be caused by something! One of the things he said was 'well she doesn't have classic Celiac symptoms-meaning diarrhea' and I reminded him that her twin sister with Celiac has the same symptoms. And that some people with Celiac have no symptoms or 1 totally vague symptom(I don't think he agreed...
  21. MaZoodleTwins
    Yes, my test from Enterolab was actually negative, my result was 9 units(with less than 10 being normal/negative). So everyone doesn't get a positive.
  22. MaZoodleTwins
    How common is it for someone to have Celiac Disease with a negative biobsy & bloodtest but a positive Gluten Sensitivity Stool Test from Enterolab & family history of Celiac Disease? Our history/symptoms: my Mom has Celiac Disease and in May we had both of my girls(fraternal twins) do a bloodtest to check for Celiac. Madisons came back positive...
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