stacytr

More info here: Open Original Shared Link As someone pointed out earlier and according to this article, the problem isn't rice in general, but rice in the USA that's the problem. It's basically grown in the South and California. You might want to check/email/call where manufacturers get their rice from (and then post here!)

I realized that I hadn't updated here. Emma had her endoscopy in late July. The results came back less than a week later -- she is definitely celiac. She has gained 3 pounds this last month+!! (This is after not gaining anything this last year) She has also measurably grown too (but I can't remember by how much). I am so thrilled for her (though she's heavier...

Just remember that if the blood tests being ordered include a celiac panel, that you need to be consuming glutton for some period of time for the blood test (or an endoscopy) to be valid.

My kids both nursed till they were 4, and were delayed in eating solid foods. We are currently pursuing a celiac diagnosis for my daughter, but I'd be willing to bet that the reason she's doing so well despite her very high lab #'s is the protective benefits that nursing provides. WTG to your mom!!

I just wanted to update -- this is my post from my doctor thread. Ok we had our appointment with Dr Liu at the Arcadia extension of Childrens Hospital Los Angeles. First impressions: I REALLY liked him. He was kind, good presence, gentle with Em. He really listened and really answered our questions. I had printed off the stuff about the new guidelines...

Ok we had our appointment with Dr Liu at the Arcadia extension of Childrens Hospital Los Angeles. First impressions: I REALLY liked him. He was kind, good presence, gentle with Em. He really listened and really answered our questions. I had printed off the stuff about the new guidelines -- he read them through and gave a thoughtful response. He talked about...

Interesting -- maybe they've changed things? I told her that Emma was positive on her celiac panel from her bloodwork. I told her I could give her the #'s over the phone if she wanted. She said to bring that in, but that the GI would be the one to officially diagnosis. So it seemed that as far as CHLA was concerned we were not yet confirmed Celiac.

Thanks -- Em's not actually very thirsty or really peeing a lot -- she just FEELS like she has to pee a lot (so a lot of urgent feelings without a lot of output). But when they tested her for UTI they also looked at sugar and said it was fine. I will definitely let them know though. I didn't know there was a connection between diabetes and celiac. We...

Thanks so much for letting me bombard you with questions. We have a CHLA authorization and when I called they said that Dr Pietzak would only see us if we were confirmed celiac. The receptionist booked us with Dr. Liu and said a lot of positive things about him when I grilled her about him. Hopefully Emma's case will be more straightforward than your daughters...

Ok -- sorry -- last one I swear! I just don't know anyone else who knows anything about GI docs! Are you familiar with any of these docs at CHLA? (Arcadia extension) Chuan-Hao Lin, MD Quin Liu, MD Jaya Punati, MD Ardath Yamaga, MD

Mamaupupup! I was on the phone a lot today -- with CHLA and then our medical group trying to determine if Dr Pietzak was a covered specialist. Finally I just called our pediatrician's office and asked if we could be referred to the CHLA extension right here. They said YES! They couldn't guarantee that we'd be able to see Pietzak -- but we can try. Thanks...

I just find this a little bit funny -- Em doesn't eat that much compared to other kids on any diet! But thanks for your feedback -- that helped me

Oh I am sorry you had to go through that with your daughter! It's so scary when little ones have to be hospitalized! I SOOO appreciate the support and lack of judgement. We have decided to go ahead and do the scope -- and have reintroduced gluten. It was a tough call and we went back and forth -- but the idea that a definitive diagnosis might be helpful...

You can also had a little bit of blackstrap mollasses to oatmeal (gluten free). It's very high in iron. My daughter only liked table foods as a toddler so you could also cut into strips some gluten free nuggets or just some chicken pieces. Dipping sauces make them fun too (if a bit messy). Basically everything was finger food for mine when she was little...

Ok new question. Would you recommend any of the CHLA ped GI's? I spent an hour on the phone this morning just trying to find out if she was a contracted specialist with our medical group. So far, the most I've gotten is that we can petition to get her, but usually the way these things go is that they turn it down if there's someone else in network. I was...