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GlutenFree-MLDub

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About Me

Celiac disease, undiagnosed for 20 years

Add to that 9 years of denial and doctors telling me to ignore the diagnosis :huh:

Mix in 2 years of debilitating illness from complications of Celiac, leading me back to the gluten-free light

Diagnosed Celiac 4/2004

Moving on officially with GFD and Gluten-free since 5/2012

  1. It's true that a nice restaurant wouldn't use that 'mirin style' stuff. Open Original Shared Link is one of the nicer ones around and they use mirin to season their rice, but they cut it with soy sauce. Another restaurant I was at a couple years ago told me the brand of the rice vinegar they use (and it was a nice place as well), but that brand of rice vinegar...
  2. Ah, here we go. This mirin has fermented wheat protein as an ingredient. (You have to click on the 'nutritional info' link to see the ingredients) It doesn't indicate why theirs has soy sauce in it, but it's some evidence that it exists. I'm glad I finally found this. Another restaurant showed me this before and a the time I didn't know what mirin was so...
  3. I knew this was a questionable area and haven't located an exact answer on the forum here, but I just found out a little bit more tonight at a sushi restaurant in Bellevue, WA. Awhile ago, I discovered there is a rice vinegar that contains a gluten ingredient. I can't seem to find that now, but will keep looking. In the meantime, this restaurant wouldn...
  4. I keep thinking it can't possibly be the food from shared equipment because my TTG antibodies were only mildly elevated when they were. And I had three clean biopsies and a fourth that showed mild flattening and broadening of the villi. I can't seem to accept high sensitivity like this when the tests run on me had trouble finding it. I may have to start a...
  5. I'm pretty sure I've now been glutened twice by Trader Joe's products that were made in shared facilities. How can I know what products I can try? I really don't want to be so vigilant. Once, I marinated chicken with their Romano Caesar dressing. SICK. Very sick. Then, I ate their black bean chili... also made in shared facility with wheat. Again... SICK...
  6. My issues are severe enough that I'm not sure my ND is going to be enough. I had severe neuro complications. I'm not sure if Dr. Wangen can help me to the degree I need either. Part of me wants a celiac specialist from one of the centers to tell me that what I've been experiencing the past few years can all be attributed to untreated celiac. Even though I...
  7. I really needed to read this post right now. I was going to write a post, but never know where to start. I can't tell you how to deal with what you're dealing with because I'm looking for the same guidance. I'm not going to be an inspiration right now, but knowing there are other people out there like me is helping. I have lost the past year and a half of...
  8. I've been reading and searching and asking since I've started ditching stuff from my household and this is one topic I can't seem to get a straight answer on. What IS the deal with this stuff? I read on the forum somewhere that one of the moderators/admins said he didn't think vitamin e from wheat would be a problem (although don't quote me on this)...
  9. I don't have Crohn's, but have a couple friends who do. They tend to eat gluten free when they're having flare-ups, but said that honestly, when they're having a flare-up, it doesn't matter what they eat, it doesn't get better. And when they're NOT having a flare-up, it ALSO doesn't matter what they eat. Seems frustrating. One of them used to take the medication...
  10. Thanks Susan for the welcome! I'm going to keep Dr. Wangen in mind. Currently my insurance covers 100% in network, but that is going to end next year at which point, it may not be that much different to see someone out of network. I'll wait and see. I keep hoping there's a Peter Green type doc here, but it doesn't seem there is.
  11. I'm glad you mention this! Particularly for young girls to read. It really is true. I think someone who's been your boyfriend/husband for awhile and is persistently not accepting your needs on the Celiac front is a candidate to be kicked to the curb. But I think as we all know, it's hard to accept some of the requirements of this disease... even for ourselves...
  12. Hi, Does anyone know of a 'real' celiac specialist in Seattle? I know about Driscoll... and he's not what I'm looking for. He told me not to worry about my Celiac because I had a biopsy after a month on GFD last year and it was clear. I had records in my hand from Columbia 2004-2006 (from when I lived in NYC) which stated a Celiac diagnosis (although 'mild...
  13. Everyone here has good answers for your questions. The one thing I'll respond to is about the alcohol. I have no idea for sure, but I have lost my ability to tolerate alcohol. This happened BEFORE I was gluten free though... in the last couple years. I have read that this can happen with leaky gut (which is effectively a damaged gut that allows stuff to leak...
  14. Oh. And the guy is really nice so far - I think he is understanding-ish... but when you're not attached to someone, wouldn't you rather date someone who doesn't have a thing like this? Like he doesn't drink because he's in AA... and I'd probably rather be with someone who doesn't have that, right? It's just hard to drop bombs on people you're new to dating...
  15. So, since I didn't have any gluten, do you all think I probably got the stomach ache from the guy's 'filthy' mouth? How do you know what's causing issues for you when there are other variables like foods or cosmetics that may be giving you problems? Do you think people who don't get symptoms in the same situation are just not as sensitive or not...
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