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mamacat

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Everything posted by mamacat

  1. Hi, I noticed with some prepared gluten-free flours that there is a slipperiness to it and I'm wondering which ingredient it comes from specifically. I often use Bob's Red Mill gluten-free pizza dough and whenever I make it and wash my hands I notice my hands feel like they are coated in some kind of slippery residue. Does anyone know what causes this? I...
  2. I had increased Intraepithelial Lymphocytes on my biopsy with no villous atrophy (Marsh 1) and my dr. diagnosed me with celiac, but I was at a celiac center so maybe they are more knowledgeable than a regular GI doc? I think you need a second opinion. I has negative tTG but very high deamidated gliadin IgA tests, so combined with multiple symptoms (joint...
  3. If pernicious anemia were a cause of B12 deficiency, wouldn't that go away once you were on the gluten-free diet long enough to let your gut heal? I certainly haven't been on the diet long enough to tell, but I'm going to get the B12 and B-complex and see if that helps. Thank you all for the info. Hopefully this will go away with maintaining the gluten-free...
  4. I have been gluten-free for around two weeks now and I've noticed my tongue has become very painful- it almost feels like there are open cuts all over it, thought I don't see any on my tongue. I'm starting a food journal to try and track possible causes, but I was wondering if anyone else out there has had a similar reaction like this, and if it was caused...
  5. Thank you!!!
  6. I saw Pizzeria Uno has a gluten-free menu, which includes gluten-free pizza. It got me wondering about cross-contamination and whether they were really using different pans, etc. to keep it separated. If a restaurant has a gluten-free menu, should I still ask questions to confirm that it's truly gluten free, or are there standards for gluten-free menus so...
  7. TimothyWelch said you could try to slowly reintroduce old foods after the diet but it didn't work for most people introducing it too fast. Glutengirl42 also mentioned she heard some claiming to eat anything after SCD. I've heard that too so thats why im questioning it b/c I have yet to see any evidence that shows you can go back to gluten. I want to know...
  8. Some people have posted that being "cured" by SCD actually just means being symptom free and you still have to stay off gluten. Others make it sounds like you an go back to gluten or eat whatever you want after SCD. I have a hard time believing that people can go back to eating gluten after they've done the SCD. My question is: Is there any evidence or...
  9. My dr. didn't see visible damage on me either with an endoscopy but saw damage under the microscope which gave me the Celiac Dx. You never know until they see it up close- the devil is in the details.
  10. Hi Cara, I totally hear you! The best doctors I've had had always been willing to listen and HEAR my concerns, and work with me on finding the right diagnosis. I think some doctors just don't realize their role should be as a partner in managing your health. Instead, some have a "god-complex" who treat their patients as uneducated minions who should just...
  11. I was wondering what the blue v. green v. greyed-out-blue folders mean on topic threads. Thanks!
  12. They can also do a fine-needle biopsy and look at the cells to see if Hashi's exists. I never got tested for that but had a partial thyroidectomy to remove some large nodules, and it was when they looked under the microscope that they saw the Hashimoto cells... and thyroid cancer. So, no thyroid for me anymore, but at least I know I have Hashimoto's (in addition...
  13. I just wanted to share my story in case someone else is searching for more information on testing for celiac. I had terrible joint pain, stomach issues, fatigue, and other symptoms, which led me to get tested by my dr. The celiac panel was from Quest Diagnostics and included the Total IGA, ttG, and Deamidated Gliadin IGA tests. Of these, I was ONLY positive...
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