GwenO

Wow. I had no idea about that either. Just left a message for her doctor, because I don't actually know what bloodwork was done other than the TTG and vitamin D and iron.

I hadn't thought of this. I'll call her doctor. I naturally gravitated towards Starbucks because nothing else have changed at home. I do the cooking for her and everything is separate like I said. She's very regimented with her foods. i.e. toasted (in her own toaster) gluten-free bagel prepared on a plate on her own counter top with her own cutlery. ...

As an add on; my son has some learning disabilities and is likely to be living at home for awhile yet.

Hmmmm. Well we have managed to go way down while not having a gluten-free house. I have an eighteen year old son who continues to eat things like frozen pizzas, noodles etc. - on a different workspace. I don't know that I couuld afford it - being completely gluten-free - very difficult. Just seems odd to me that we go down dramatically for two years...

So my daughter is fourteen. She was diagnosed with celiac at eleven. She was very sick, hospitalized etc. I'm not sure if they count TTG numbers differently in different places, but at that time her numbers were "greater than 400". We've worked hard. We are not a gluten free home, however, we are very careful - she has all of her own kitchen stuff, toaster...

Wow. Thanks so much everyone. I'm going to meet with the teacher and the tour leader (separate tour company) and see what we can do. I was feeling very defeated by this, and guilty because she wants to go so badly. I appreciate the input. And I may indeed ask more questions from you!

Thanks. Interesting replies. I'm going to talk to them about supplying her own food. I'm just worried about cross contamination - she's already so thin. I haven't personally been anywhere over there, interesting to know that they're so aware of it.

Fourteen year old daughter wanted to go a school trip to France and Spain next summer. They stay in people's homes - eat their food. It's too risky I think. Really crappy that this disease can keep her from such an amazing opportunity.

Yes, she's ok now thanks. Frustrating because her numbers were so high when she was diagnosed two years ago. They continue to come down but are still not "normal". Then this kind of thing happens.....

Thanks for the input everyone. I have time to figure it out I guess (or try to steer her in another direction) since this will happen in september. Her current teacher gave them all candy on Friday before spring break started. He told her it was gluten-free. Wasn't. Sigh.......

My daughter will be starting high school next year (it starts in grade 8 here - she's 13). She very much wants to take cooking class. I do know that they cook/bake in groups. So I'm wondering: if she's working with regular flour I'm assuming breathing it in would be the same as eating it? And I'm looking for opinions about what concessions/changes...

We're at almost two years with my daughter. They're going down, but it's a very slow process........

Thanks everyone. She is quite vigilant. Her numbers have definitely gone down, just still high. I don't have the details in front of me but the pediatrician when she was in hospital said they were some of the highest numbers she'd seen, and there has been steady improvement. The pets are gluten free - one has allergies! The house is not, there are a...

So, after two years of being very vigilant, I foolishly gave my 13 year old daughter daughter a couple of bites of my broccoli with cheese sauce (packaged veggies). Ingredients clearly say wheat flour . She didn't seem to suffer any symptoms, but I'm wondering how badly that will affect her. Two years of being very careful and her numbers are still really...

Right before diagnosis, when she was really showing the signs or malnutrition, my daughter's hair (she was only 11 then) fell out in handfuls. It was really awful for her. Got very thin. After a few months it stopped falling out, and started to grown in. Then it happened again! She's now been gluten-free for just about two years, her hair is nice and...