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Findin my way

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Everything posted by Findin my way

  1. Findin my way
    Hi Ninja. Thanks for responding. I was taking them with meals. The bottle said to take one with each meal. I decided to try not take any for about 36 hours and then try again. I felt better, but when I tried one more I felt crappy again. I think I'll hold off on them until I have some time at home. That way if I don't feel well I won't have to go anywhere...
  2. Findin my way
    I was wondering if I could get some advice/information about these. I was passing some really bad smelling gas so I decided to try some digestive enzymes. I got a brand that's gluten/dairy/soy and corn free (all the "frees" I need). My gas went away, but now I'm sick as a dog. I'm so nauseated I don't want to eat anything. I've read that the enzymes...
  3. Findin my way
    Thanks for the welcome everyone! I'm not sure why my gastro doc is so relunctant to say Celiac. I'm suppose to tell HIM if I have it on our next appointment. Pegleg, Kitchener's not too bad for the gluten free stuff. There are three places I go to that specialize in gluten free stuff, so I'm able to get treats when I need them.
  4. Findin my way
    Hi Pegleg84. You and I are not so far neighbours. I'm in Kitchener. I went out to eat for the first time since I first learned about Celiac, which would be about 10 months. I haven't been officially diagnosed yet and need to tell my gastro doc that I'm Celiac next week. Should be interesting. (He didn't do a full Celiac panel and I only had mild...
  5. Findin my way
    Mushroom were your sublinguals hydroxycobalmin? That form of b12 is known to cause acne. Also methylcobalamin is very sensitive to light and heat. Both (or each) will break down methyl to hydroxy rather quickly. All b12 supplements should be kept below 20C (about 70F) and out of light. From what I understand those reactions are usually from...
  6. Findin my way
    Pegleg84 thank you so much for this. I've finally accepted that I can't have soy anymore, but I love stirfrys. My daughter has decided she's vegetarian now, so stir frys were my go to meal. I'd do tofu for her and meat for her dad and I. I was wondering how this was going to work. I'm going to look for the coconut aminos today. Amen...
  7. Findin my way
    That certainly sounds like a casein issue. I get all of that, minus the sour milk taste, when I have dairy. I just don't have dairy anymore. There are all kinds of milk alternatives on the market now, so I really don't miss it. Cheese on the other hand.... As for my morning coffee I use a coconut creamer. It's specially designed for coffee. It doesn...
  8. Findin my way
    nvsmom beat me to it. I too had ITP and only got an enlarged spleen then. I used to get really sick when my platelets were low. I would start with a tickly throat and then 3 hours later have a fever of 104F, without fail! If she's fighting something that is even mono-esque ask what her platelet count was/is at. I can't say that my spleen gets enlarged...
  9. Findin my way
    Oh boy do I know about casein intolerance. I gave up dairy about 2 months after gluten. That was in the summer. Over the holidays I mistakenly had some real cheese. I thought the gluten free pasta dish I bought had the vegan cheese. Well I didn't react too badly so I had cheese again the next day, then the next. Christmas I had trifle with mascarpone...
  10. Findin my way
    I'm dairy free as well as gluten free. Over the holidays I had cheese and cream. My gums became incredibly inflamed (among a myriad of other problems). It took several days to calm down. Maybe you're having a problem with casein as well?
  11. Findin my way
    Sorry 'bout that. I was pretty tired when I wrote that. I didn't mean for the statement to be definitive, more speculative. Meaning that the epsom salts MAY have helped some IF your magnesium was low.
  12. Findin my way
    My first thought was low magnesium. It can cause itching. That would explain why your epsom salt baths help. Epsom salts are magnesium sulfate.
  13. Findin my way
    Hi SleepyBunny, 98 for a platelet count is low, but it's not dangerously low. I had ITP as a kid and my platelets were usually in the teens. NOT FUN!! Anyway, this could all be related to the b12 deficiency you were talking about. I know your blood serum level is over 2000 but that doesn't really mean anything. It's the amount of b12 (both active...
  14. Findin my way
    Owlmuse, I don't know when they want to treat your thyroid, but if you have a little time you could try l-carnitine. It's an amino acid and been shown to help with hyperthyroidism. Open Original Shared Link Good luck. I hope the docs can figure out something less drastic for you.
  15. Findin my way
    I can't say that gluten free relieved my depression. Large doses of methyl B12 and methylfolate (MTHF) did.
  16. Findin my way
    This is a case where numbers don't mean anything, symptom relief does. Your numbers should be going down as long as you're on a strict gluten free diet. If you're feeling better then that's all that really matters. The numbers you should be worried about are for vitamins and minerals. Make sure your numbers for b12, calcium, folate, iron and D are all...
  17. Findin my way
    Hi Donna, Is the autoimmune clotting condition ITP? If you look around this board you'll find a larger percentage than the general population with this disease. I had it as a teenager myself. Is the autoimmune thyroid problem Hashimoto's? That's very prevalent in the Celiac community too. You've mentioned several autoimmune problems. Celiac...
  18. Findin my way
    Luckily that nerve pain only lasted the night. I was better by morning. Whew! I`ll try the canned air and blow the crap outta the motor to see if that helps. Thanks for the tips. I didn`t use any baking utensils. They`ve all been replaced anyway. All the ingredients were weighed directly into the bowl. We have two toasters now. Unfortunately...
  19. Findin my way
    Thanks for the replies. My mixer is a Cusinart. It has been used and abused. Before Celiac I was a specialty cake baker. I've done some gluten free cakes in it. It has been throughly cleaned many times. The blade is metal, but it has (I think) teflon on it. That has worn away a little and there are scratches on it. I'm just surprised I'm that sensitive...
  20. Findin my way
    So I've been gluten free for almost 6 months and dairy free for about 3 months. I found a recipe for dairy/gluten free shortbread. I finally got around to making the dough and baking up some cookies. Unfortunately I mixed it all in my old mixer. I haven't replaced it yet. We just don't have a couple hundred dollars lying around to do so. I had three...
  21. Findin my way
    A lady on a different, unrelated forum just told me her nephew was diagnosed with 50% Celiac.
  22. Findin my way
    Hi Nicole, You could try a good b complex vitamin. I think it's b6 that's needed for hair growth. Get one that has methylcobalmin (b12) and 5-MTHF (folate). AOR is a respected brand in Canada and their b complex is pretty good. I'm so sorry to hear about the possible Lupus. Hopefully it's not Lupus, but something more treatable. Thinking about you...
  23. Findin my way
    Were you diagnosed with pernicious anemia or a b12 deficiency? The two are not necessarily the same thing. Pernicious anemia is a very specific disease. As I understand it you are b12 deficient because you are missing Intrinsic Factor which is necessary for the transport of b12 during the methylation cycle. So, I think, Celiac really has nothing to do...
  24. Findin my way
    Thank you everyone for your help and responses. My family doctor wants to defer to the GI doc. She's unwilling to say Celiac unless he does. I had my yearly physical yesterday. She's testing a bunch of vitamins, but refused to test the T3 or T4. She started giving me lessons on how TSH works. It's the first time I've ever been pissed at her. The...
  25. Findin my way
    Hi everyone, I've seen so many posts about tests, ttg's, iga's, etc, and now I'm confused. This is the only celiac type of blood test my gastro doc ordered. So which one, of the many tests mentioned, is this? Also the test was negative: my number 2.5 range <10 U/mL I had an endoscopy too. I think he only did three biopsies. I asked...
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