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tommysmommy

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About tommysmommy

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  1. tommysmommy

    Hurry Up September 4Th

    Yes, your symptoms give you every reason to consider celiac or even NCGS. And forget what others say, IMO gluten related disorders are the most misunderstood of all health issues and YES IT IS THAT BAD, for some it is way worse. Don't fear...
  2. Wow, gluten and dairy together - you are a brave one! Ledge talk down time. It sounds to me like you are experiencing something that not everyone goes thru but plenty do - it's called gluten withdrawal. Google it (you may also find it under...
  3. Testing is not perfect, particularly with a young child. While a medical diagnosis is preferred, if your baby is obviously healthier on a gluten free diet.. make her gluten free (dairy and gluten problems often go hand in hand), it's only...
  4. Well done being your own advocate, it sounds like you found your answer (or at least part of it). You are not alone in your frustration with the medical community (I suggest you check out gluten dude's blog online for others doctor horror...
  5. tommysmommy

    Newly Diagnosed And My Head's Spinning!

    Hey, this is a good thing! Yes, it is a hassle (especially at first when you are learning) but once you start feeling well again, it will all be worth it! There is a ton of great info on this site & on Facebook & twitter - those...
  6. Good for you, it sounds like you have your answer! Sadly, it is all too common for real problems to be overlooked by doctors (it's all in your head) & anxiety/depression to be "treated" instead of finding the root cause. If all of your...
  7. Another smart momma, sounds like you found your answer. Talk to your doctor - maybe they can try blood test before it's totally out of his system. You are not the first mom to try gluten free & see it work, then have to face the doctor...
  8. Amazing. Glad you figured it out. Some days I feel like life is a jigsaw puzzle, if you keep looking - eventually the pieces will fit.
  9. Sure sounds like you have reason to suspect gluten intolerance. Note in your daughter, there is evidence that celiac blood tests can produce false negatives in young children - and well, even if it's not celiac, gluten intolerance can show...
  10. I meant Chrohns not Crowns...autospell drives me nuts! PS, you may want to call the GI who will see you in Jan, tell them you have celiac in the family & just went GO - ask them to order the blood work in advance of your appointment...
  11. Wow, yet another doctor giving bad advice, it seems to be an epidemic! If celiac runs in your family & you are having so many possible symptoms - there is every reason to do the test (it's like a $300 blood test for godsake, not a big...
  12. Add... Ice Pops (most) Goldfish Puffs Cheetos Fritos most potato chips (not pringles) Tostitos (not all tortilla chips are ok) Hershey Bars M&ms Reeses (except seasonal shapes)
  13. tommysmommy

    Just Started Gluten Free.

    Sure sounds like you are going through gluten withdrawl, which is a pretty good sign gluten is a problem for you. Google gluten withdrawl & you'll see it is not uncommon - for some of us gluten/wheat has an opiate like affect on the...
  14. tommysmommy

    Really Struggling With Diagnosis

    It does such at first but I promise it will get easier. Eating out and convenience are a problem, but you'll figure it out and there is an active celiac community (here, fb, twitter) willing to help. We all get it. It's almost frightening...
  15. My 7yr son was the same - got much better on gluten-free diet but 6 months later was back to stomach pain, we eliminated most dairy & the pain & other issues (he was also having constipation & often had burning red ears) went...
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