kelly97

I was diagnosed about a month and a half ago, similar to how yours went. I was having an endoscopy & colonscopy to look for cancer. While they were in there, they discovered the Celiac's by how it looked and multiple biopsies (my doctor's words to me, "You meet the gold standard for celiac's"). My doctor told me to switch to gluten-free (which, like you...

Thanks everyone. Yes, I had an endoscopy & colonoscopy looking for cancer tumors. They also discovered by biopsies & how it looked that I have Celiac's. The report said something like duodenal mucosa with abnormal villous architecture & increased intraepithelial lymphocytes. And with my colon, something like colonic mucosa with crypt architectural...

Yeah, I don't understand why a GI doctor wouldn't know what to do and tell me what I have 100% for sure. And why he would tell me that they don't typically treat patients with Celiac's when the Univ of Colorado Hospital states on their webpage why you should go there - because of their expertise in diagnosing and treating patients with Celiac's. They're...

Thanks everyone for your answers. I haven't made an appt, yet, to see my primary care doctor. Basically, because I think she's an idiot and when I'm done with all of this (my oncology stuff), I'm getting a new doctor. When I told her that I was losing all of this weight - dropping from about 120lbs to now 92lbs, she told me that I just wasn't eating enough...

Hi everyone, I was diagnosed with Celiac's maybe a month and a half ago. When I was speaking with my GI doctor yesterday, he said that I had something like crypt architecture distortion in my colonic mucosa. I asked if that was Celiac's related and he told me, "No." And that it's typically seen in people with inflammatory bowel disease or Crohn's. Does...

Hi, What type of doctor do you see for your Celiac's? The GI who diagnosed me at the University said that GI doctors don't typically see people who have Celiac's. I kind of basically took it to mean, once you're diagnosed you're on your own - or try to ask questions of your primary, instead. Thanks, Kelly

Thanks everyone for replying. I'll make sure to bring up to my doctor that my diet hasn't really changed that much now that I'm "gluten-free". Then, maybe he'll see that could have effected the results of the blood tests that I had for it. They're also working me up for cancer, so I'm really not sure if it's Celiac's or cancer with regard to my constant...

Sorry, one more thing - my Marsh Classification is 3b. Now I'm just worried with my blood work, then my GI doc is going to say I don't have Celiac's now after he diagnosed me with it. I can't help but think if I had been eating more of a gluten diet, then my bloodwork would be more positive.

BTW, the blood tests that were ran were IgA, IgG, and tTG.

Hi all, I was diagnosed 2 or 3 wks ago with Celiac's based on my biopsies and my symptoms. The biopsies the doctor took showed duodenal mucosa with abnormal villous architecture and increased intraepithelial lymphocytes. And my colonic mucosa with crypt architectural distortion with no evidence of colitis. Essential, he says I meet the gold standard for...

My dietician was just talking to me this last week about vitamins. Because of malabsorpsion, she says we need fat soluble vitamins delivered in a water soluble way. She was going to send me either info about them or a prescription for them. I'm not for sure which. Maybe you should talk to your doctor about them? Take care, Kelly

Thanks Diana, Rose, & Paul. And thanks, Paul, for posting all of those websites that I can go to do research. I'm definitely that kind of person. I always want to know everything I can about my disease. And Rose, I sent you a personal message - at least I think I did - not 100% for sure how everything works on this particular forum just yet. I made...

Hi All, I was diagnosed last Monday with Celiac Disease. My oncologist sent me to a GI doctor to do further investigation, so I was double scoped (looking for tumors). The biopsies the doctor took showed duodenal mucosa with abnormal villous architecture and increased intraepithelial lymphocytes. And my colonic mucosa with crypt architectural distortion with...