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mama.liz07

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Everything posted by mama.liz07

  1. mama.liz07
    I checked out this last article and then linked from there to a study done by the FDA. I thought this was interesting. "In sum, these findings indicate that a less than 1 ppm level of gluten in foods is the level of exposure for individuals with celiac disease on a GFD that protects the most sensitive individuals with celiac disease and thus, also...
  2. mama.liz07
    Mine did too and because of that, I just assumed certified foods would NOT be produced on shared lines. I was very surprised to learn otherwise. And for foods that say "gluten free" but aren't certified, when I called and asked about cross contamination, the companies often said, "there is no chance of cross contamination." I assumed that meant dedicated...
  3. mama.liz07
    Thanks! That is a massive list!
  4. mama.liz07
    Thanks for sharing! I'm glad you've figured out what works for you too! And I agree--I think most companies do a good job following the guidelines of the FDA, certification groups, etc. I just didn't realize until recently how many of my products--even healthy ones like butter, chicken, frozen veggies, canned fruit, etc...are processed on shared lines...
  5. mama.liz07
    Well, that's good to know. But I sure have been getting sick on shared equipment foods. When I looked at the regulations--how often they have to test, how large the sample is, etc, I think there could be parts of the food that are higher and parts that are okay. And they don't have to test every batch. But whatever is happening, my son and I finally getting...
  6. mama.liz07
    Gluten Free Facilities Ancient Harvest Badger lip balm (Look for gluten free label. They produce some products in another facility) Bakery on Main Better Body Foods Bob’s Red Mill Bush’s beans Cannon Fish Carnation Evaporated Milk Carrington Farms Coconut/Ghee Choice tea Crunchmaster Crackers Dakota Grass Fed Beef Derma-e ...
  7. mama.liz07
    FYI! Certified gluten free foods (tested below 10ppm) are often made on shared equipment. Also, foods labeled gluten free (tested below 20ppm) can also be made on shared equipment. Cumulatively, this could be too much gluten. i.e. If you use too many brands that all contain trace amounts of gluten then you could accumulate too much...
  8. mama.liz07
    Wow, thanks everyone! I don't have time to reply to each person right now, but I am going to read and consider everything. We'll make this work! :-D Really appreciate it!!
  9. mama.liz07
    Thanks for your replies! I love the baking mat idea. What do you use to wash down the table? And gloves...you are probably right--he wouldn't play with his lips with gloves on. Maybe just at home would be enough to break the habit. Something to think about. It's nice to know we're not the only one! :-) Any other ideas? :-D :-D
  10. mama.liz07
    Hi! My 9 year old son and was diagnosed with celiac disease about a year ago. Since then, we have discovered that he is VERY sensitive to trace gluten. Also, he's just one of those absent-minded, really smart, day-dreaming-type boys who is always in another world, thinking...thinking. And when he is thinking, he usually pulls at his lips without realizing...
  11. mama.liz07
    Thank you for your responses. Cycling lady, we had a pretty good diet to begin with. Avoided processed foods and ate lots of whole foods, so I think it is probably the gluten free diet that is helping him. I did do some reading and learned a bit about his gene-type. There are celiacs with this gene, it is just rare. Looks like he might just...
  12. mama.liz07
    Okay, the dr just wrote a note on the test. "Celiac genes not present. Not likely that he has celiac disease. Most likely a gluten intolerance." But the test says equivocal. ? Confused. Background, he had a weak positive antibody test. When the pediatrician called with the results, she didn't tell us to stay on gluten, so...
  13. mama.liz07
    We decided to do a genetic test on our older son and these are the results: DQ ALPHA 1 02:01, 04:01 DQ BETA 1 02:02, 04:02 Celiac gene pairs: equivocal The dr will call next week, but I was researching and trying to see what this means this weekend (just curious). I haven't seen a 04:01 or 04:02 in anything I've read...anyone know what...
  14. mama.liz07
    I'm essentially in the same situation you are, except my blood test came back negative. I don't think I need the definitive diagnosis to eat like I have celiac (i.e. be really careful and not cheat). I have two family members with celiac (one with a negative blood test too) and when I went off gluten I felt better than I've felt in years...and then when...
  15. mama.liz07
    No, it wasn't a complete panel...just a TTG. That's really frustrating. Good to know though, thanks!! I still feel really fatigued...hope it calms down faster than months :-( We've thought through everything I did Friday and Saturday and simply can't think of anything else that could have caused such a reaction. Nothing else changed in my diet...
  16. mama.liz07
    Hmm. Yeah, I guess I do usually eat that many carbs in one day. I mean, I don't usually have two waffles (they were my other son's blueberry toaster waffles so they're small). But I try to eat something from each food group for each meal, so that ends up being a grain for each meal. But, yeah, that was a lot of wheat...we usually do other grains too like...
  17. mama.liz07
    Hi! I need some opinions!!! My son has celiac disease and I've been tested a couple of times, both came back negative. My dr recommended I go off gluten for a month and then get back on to see what happens, so about a month ago I did that. I did start feeling better. Then, on Friday, I ate gluten. Two whole wheat waffles at breakfast, two pieces of...
  18. mama.liz07
    Thanks Kareng! I'm still new to this. Funny you mention Cheerios because that was the product I was curious about (wondering if they are really safe). Gluten Free Watchdog...I'll check it out! :-) Thanks for your help...sorry to commandeer this post.
  19. mama.liz07
    Thanks everyone. I do know how serious it is to avoid gluten, that is why I'm concerned. If you don't feel symptoms when you accidentally ingest gluten, how will you know to avoid it. For example, if you're eating a brand that is supposedly safe, but really has problems with cross contamination, how would you know? Seems you could eat a little gluten...
  20. mama.liz07
    So, does that mean once someone is gluten free for a year or so (or however long it takes to heal) that person might not have symptoms if they accidentally eat gluten? If if that is true, how do you know if you are glutenated....and thus avoid whatever the problem food is in the future?
  21. mama.liz07
    Thanks again for all the advice and support. All his tests came back negative, so we're on to just experimenting with diet. I've started giving him a really good probiotic which seems to be helping a bit. Stools look more normal and he's sleeping a little bit better. Next step is to try gluten free...we'll see how it goes :-)
  22. mama.liz07
    Sure hope you guys get some answers. My boy is in the upper % too of height/weight, but the kid eats non-stop.
  23. mama.liz07
    I was tested when my sis came back positive. I have no symptoms and my test results indicated I don't have celiacs. But, are these the right tests? TRANSGLUTAMINASE IGG AB -- less than 3 (normal is less than 6) ENDOMYSIAL AB IGA --- negative And are these the tests they should do for my son? My other son has asthma, which someone mentioned their...
  24. mama.liz07
    Thank you so much everyone. I will email the dr right now to request blood work. He's a very nice dr so I doubt he'll fight me on it...too bad it seems he doesn't know much about this condition. Then we'll go gluten free. I guess I just needed to hear other people say they agreed with my suspicions before I got started. Really appreciate it...will keep...
  25. mama.liz07
    Hi everyone, I'm new here and am hoping to get a bit of help. My son is 26 months old. He's always had a sensitive tummy which has disrupted his sleep and makes him fussy/clingy off and on during the day. He has gas pains and really bad smelling gas, plus his stools are never formed and also smell awful. They're not usually watery, just messy and...
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