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rorenchan

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Everything posted by rorenchan

  1. rorenchan
    I'm sorry your family is the same. It's so frustrating. I'm getting pretty good at saying no, but this one dinner they're just adamant about, and I couldn't find any way to get them to let it go without lying. It's going to take a while for them to really understand my limits.
  2. rorenchan
    My only brother is getting married next week. I really don't want to go because it's the first time I'll have to travel with celiac disease, but also because I dislike every one that will be attending the wedding (and they all dislike each other, it's a jerry springer episode in the making). I'm very lucky I wasn't roped into being a part of the wedding...
  3. rorenchan
    For those asking, we used to live nearby each other and frequently hung out together, but she moved away right before we both were diagnosed, so I don't get to see her in person anymore. We just talk on facebook these days, where I see her food posts getting more out of control, and since she is so far away now there literally is nothing I can do except...
  4. rorenchan
    Right? You would think she would know this already since she has Hashimotos and Celiac Disease, not sure which came first since she was diagnosed with both at the same time, and it was her Dr's quick thinking to screen her for both when she went in for the goiter. I think she has some false hope in her recovery from hashimotos means her celiac disease is...
  5. rorenchan
    Thanks again GottaSki! Good to see you are still here. I'll check out that thread. tasha - Thanks, yeah I think I'll just keep and eye out in case she needs me to be there for her if (when) it starts to get bad. It's a good thing we have the internet to find people we can talk to. I don't know what I would do without you guys.
  6. rorenchan
    I have blood and biopsy diagnosed celiac disease. The only other celiac I know is my friend who was blood diagnosed the same year as me, but she didn't have an endoscopy because she had a hashimotos goiter complicating the procedure, and the doctors never followed up with it after her surgery. After she recovered from hashimotos, she started eating gluten...
  7. rorenchan
    It's been almost 3 months! I'm starting to feel some small but marked improvements! I'm still very tired, bloated, and the pain of digestion usually knocks me out every meal, so I still can't eat with friends just yet, but my mood is better, and my appetite is strong. My hands feel warmer, and I don't clench my jaw when I sleep as much, which helps...
  8. rorenchan
    I got my lab results in the mail yesterday. It reads: A. Duodenum, Biopsy, Second Portion: - Lymphocytic Enteritis with Intraepithelial Lymphocytes and Subtotal Villous Blunting. B. Duodenum, Biopsy, Bulb: - Lymphocytic Enteritis with Intraepithelial Lymphocytes and Total Villous Blunting. So I guess that means I'm marsh stage 3c in the...
  9. rorenchan
    Thanks guys! I'll make sure to request those vitamin tests. Especially since today my gastroenterologist emailed me back to tell me that I have marsh stage 3. He didn't say a, b, or c though. He's mailing my pathology report today so I can take a better look at it in a few days .
  10. rorenchan
    Endoscopy results are in and they are positive as expected. I got my official letter of diagnosis in the mail today. They didn't say what my marsh level is though. Is that something I have to ask for? My gastroenterologist didn't seem interested in seeing me in a followup, but instead has referred me to a nutritionist. I'm not sure who to ask to check...
  11. rorenchan
    Amazing, congratulations! I hope my recovery goes as well as yours does! I'm just getting started.
  12. rorenchan
    I am fully embracing the gluten free diet as we speak! I asked my grocery store manager if they carry gluten free hamburger buns about a week before my endoscopy, and I explained to her that I have celiac disease and can't eat the regular buns, and the day before my endoscopy I went to stock up on food she told me they started carrying udi's! She ordered...
  13. rorenchan
    Oh yeah, I know what you mean. I'm pretty sure I've had celiac disease most of my life, my mom knew something was wrong some time around 6th grade when I started having near constant stomach pain. She took me to get allergy tested, but even after removing all of my food allergies, it didn't help, so I got deflected to psychiatry when I was about 12. I...
  14. rorenchan
    My doctor only ran the one blood test, we haven't ran any tests for IgG yet. It's all so new to me, I'm still trying to figure out what the different tests represent. My doctor said that depending on the results of my biopsy, I'll be able to get an official diagnosis, and then he'll refer me to a nutritionist who specializes in celiac disease, so perhaps...
  15. rorenchan
    Hi guys, just an update. I had my endoscopy yesterday. It was pretty much a non-event. I was scared going in, that I wasn't able to sleep the night before, combined with being so hungry from fasting, I basically fell asleep on the hospital bed before they even gave me the sedative. They thought it was pretty funny. All I can remember was the burning...
  16. rorenchan
    A regular step stool could totally work and be a whole lot cheaper, yeah.
  17. rorenchan
    I have the same problem. What ended up working for me was an increase of fiber, and a squatty potty. Open Original Shared Link
  18. rorenchan
    Thanks everyone. It's good to know that there is such a supportive community that I can talk to. It's comforting not being alone in this. I'm on my way getting used to the gluten free diet, but is it normal to be a little bit ocd about it? My husband is a gluten eater, and he's a kitchen tornado. His favorite food is noodles and beer (he's Japanese...
  19. rorenchan
    I know, I was quite shocked. Actually my cellphone says they called at 7:39am and the call lasted a grand total of 1 minute. I'd almost think it was a dream if I didn't have my call history on my phone as evidence. I have a tendency to forget everything that happens within the first 15 minutes of waking up.
  20. rorenchan
    If I need to keep eating gluten for my endoscopy, how much gluten is too little? If I am going to have to eat it, I want to make the bare minimum effort. lol.
  21. rorenchan
    This morning at the crack of dawn (7:45am to be exact), I was suddenly awoken to my cellphone ringing. When I got off the phone, It took me a minute to realize what just happened. It was my doctor's nursing staff, calling to inform me that my blood tests came back positive for celiac disease, and she scheduled me for a mandatory endoscopy on Halloween,...
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