SMDBill

Donna, I'm on round 2 of going gluten-free. Round one told me I am gluten sensitive per the diagnosis, but when I went back on gluten (gluten challenge recommended by my GI) it took a long time to see symptoms again. But here I am again with identical symptoms, which for me is confirmation that the diagnosis was right and I'm not as urgently sensitive to...

That was a great article. Thanks for sharing!

You can definitely get the caffeine through tea and soda, but they'll likely be in smaller amounts than a cup of coffee. I'm a big coffee and tea drinker myself and I can go through an entire day with no effects from missing coffee as long as I have tea or soda. It's probably not the full amount that matters, but just getting some into you that keeps from...

My GI asked me to introduce gluten to be sure of his diagnosis of gluten sensitivity. It took me quite some time to feel symptoms and I failed to grasp as each came on that they were related, just like before my diagnosis. You may feel badly or it may take time, but if you are sensitive to it or celiac, you'll regret introducing it again (unless you're trying...

I am currently going through rough stomach pain that is improving since being back to gluten-free. It was excruciating and would wake me as my intestines cramped. It got so bad at one point I thought I had a bladder infection because it was even sensitive to the touch right where your bladder is, but it was intestinal instead. To me it sounds like you may...

After 25 years of marriage, all I can say is that love finds a way. If he truly cares for you, YOUR interests, feelings and health will be top priority. After all, you're only fun and happy when you are safe and healthy. His job is to make sure you are all those things. If he's not living up to that, I'd have to question the strength of the relationship...

My GI diagnosed gluten sensitivity and actually recommended I go back on gluten to see if it caused harm. It's been 2.5 years, but now I'm having the same symptoms as last time when I finally went gluten-free to rid myself of them. I didn't suffer immediate issues at all, but today I have many that are now clearing up slowly after just a few days so far of...

Is it possible when you went gluten free, your salt intake dropped a lot due to the change in diet? If so, you may not be retaining the amount of fluid your body is accustomed to retaining. Just a guess. I supplemented with vitamins and minerals when I went gluten-free and found improvement in the skin on my feet, hands and elbows. Seems odd you'd be so...

I may be one of those people the OP gets frustrated with, but my trip through wondering if I had celiac or a sensitivity to gluten taught me a lot. 3 years ago (I think), I went through some terrible intestinal trouble and a host of other symptoms. I avoided the doctor and tried to figure it out myself. I found out about celiac and gluten sensitivity and...

I think a major part of your problem may be that you've been gluten-free for so long. Damage may not be present, so if you are celiac or just intolerant, neither will show physical evidence. I was gluten-free for only 2 months and I showed no signs of damage so my gastro could not conclude definitively if I'm celiac or NCGI. In the end it really doesn't matter...

What a wonderful story! It's always great when our little ones get back to their old selves. And you already have your answer for his problem whether or not the doctor agrees What a blessing.

I wonder if you could have an intestinal issue that could be caused by sugar, other grains, or a combination of celiac and something else? However, when you ate foods with gluten and had no reaction, and based on the fact that you were diagnosed based on deficiencies rather than blood or biopsy confirmation, maybe you don't have celiac. That's a pretty good...

It sure appears possible. My question is whether you have been completely gluten-free or just light? If it's DH it would suggest you haven't been totally gluten-free and you mentioned Thanksgiving and carryout. Were those foods prepared gluten-free as well?

Did your GI mention anything about gastritis or other digestive issues that are also present? I am not a medical professional so this is all guessing, but I'm wondering if an over the counter drug like Prilosec OTC or similar would help ease discomfort when eating? Digestive enzymes as well if you knew which type you needed and in what quantity. For example...

Low iron is very common in celiacs. All my blood work and my biopsies came back negative, but I had been gluten-free and that could be why. So the only indication I had that anything was out of the ordinary, other than visual damage to my stomach (erosive gastritis), was low iron. It's not low enough to require treatment, but it does require daily supplementation...