For five years I suffered with diarhea, depression, stomach pains, and bowels so bad everything went right through me, finally I had a endoscopy that was proven I had celiac. I went on the gluten-free diet and lost over 50 lbs and felt terrific, but I decided to have a second opinion, and I went on a gluten challenge for 3 months, had another biopsy and it was normal, no celiac, so now they told me about a year ago, I don't have celiac, but since I've been eating regualar foods and getting back the symptoms, I asked another stomach doctor to check me, another endoscopy, but he won't because he said the person who concluded I wasn't a celiac was the best doctor in diagnosing celiac in Boston. Anyway I still feel I have it, I can't eat without running to the bathroom afterwoods and I'm getting that bloat feeling again, and tiredness back. I was very anemic with the first diagnosis so bad my red blood cell were depleted in my storage cell area. I also have a problem with affording the food, but usually I'll just eat veggies. Anyway I have two brothers that have it and a nephew so far who are willing to do the testing, everyone else seems to be in denial and won't even talk about it. My youngest brother diagnosis first in 1968 when he was born doesn't stick to the diet because his doctor told him he didn't have it that bad, now we all no that's not even true, if you have it you must be on the diet and nothing else. My older brother got checked after my first diagnosis and he discovered he had along with his son. He sticks pretty much to the diet. Anyway I know I have it but I can't get a doctor to recheck me and give me a firm diagnosis. They said if you felt better on the diet just continue it but it will be an expense and I can't get it off my taxes without a doctor's note. Help???
Unclear Diagnosis
in Post Diagnosis, Recovery & Treatment of Celiac Disease
Posted
For five years I suffered with diarhea, depression, stomach pains, and bowels so bad everything went right through me, finally I had a endoscopy that was proven I had celiac. I went on the gluten-free diet and lost over 50 lbs and felt terrific, but I decided to have a second opinion, and I went on a gluten challenge for 3 months, had another biopsy and it was normal, no celiac, so now they told me about a year ago, I don't have celiac, but since I've been eating regualar foods and getting back the symptoms, I asked another stomach doctor to check me, another endoscopy, but he won't because he said the person who concluded I wasn't a celiac was the best doctor in diagnosing celiac in Boston. Anyway I still feel I have it, I can't eat without running to the bathroom afterwoods and I'm getting that bloat feeling again, and tiredness back. I was very anemic with the first diagnosis so bad my red blood cell were depleted in my storage cell area. I also have a problem with affording the food, but usually I'll just eat veggies. Anyway I have two brothers that have it and a nephew so far who are willing to do the testing, everyone else seems to be in denial and won't even talk about it. My youngest brother diagnosis first in 1968 when he was born doesn't stick to the diet because his doctor told him he didn't have it that bad, now we all no that's not even true, if you have it you must be on the diet and nothing else. My older brother got checked after my first diagnosis and he discovered he had along with his son. He sticks pretty much to the diet. Anyway I know I have it but I can't get a doctor to recheck me and give me a firm diagnosis. They said if you felt better on the diet just continue it but it will be an expense and I can't get it off my taxes without a doctor's note. Help???