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TammyTE

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Everything posted by TammyTE

  1. TammyTE
    Just got off the phone with them. So frustrating. I logged a complaint but I doubt it accomplishes anything. She said I can always call and check on a product. I told her that defeats the purpose of labels. I can't call every single time I purchase and what if they change facilities after I have checked an item? I said I felt that this was a purposeful attempt...
  2. TammyTE
    I went to Aldi because friends said they had a lot of gluten-free items. I bought Clancy's cheese curls thinking they were gluten-free but when I double checked before feeding my daughter the gluten-free logo looked different to me. It has the wheat in a box and gluten free is in a box next to that. The word naturally is above the box and the word food is...
  3. TammyTE
    Ha ha....determined woman. Yep. That's me. Thanks for the encouragement. I was hoping to find some really easy fix that I had possibly missed. ;-) I do try to take a peek before she flushes. Thankfully she forgets to flush and I honestly don't try to change it because I at least get to see it! One of the zillion things I never thought I would be doing...
  4. TammyTE
    Interesting about the rinsing. Thankfully my kids all eat pretty well. Lots of good fats and plenty of veggies. I just use rice as a filler to help meals stretch and keep them full. We don't do a lot of gluten-free breads because most of the those have egg and my youngest is allergic to eggs and they are expensive. ;-) I need to try to do some white...
  5. TammyTE
    Thanks Peter, for clarifying that.
  6. TammyTE
    After the initial blood test we went to the GI doctor thinking that's what we should do next. She laughed at us so we haven't seen anyone specifically about it since. Last Summer we had an appt with a pediatric dermatologist but I figured out the oat thing the night before. We went to the appt anyway and that doc agreed that it could be the oats, wrote us...
  7. TammyTE
    The test that was done was "celiac and gluten sensitivity from Genova Diagnostics. They tested: Biomarker: Result: Reference Range Total IgA 68 Sufficient 17-94 IgA (tTG IgA) <1.2 Negative <4.0 U/mL IgA (DGP IgA) 2 Negative ...
  8. TammyTE
    Interesting about the arsenic. Thanks. We already opened the packages and put the rice into a 5 gal food grade bucket to store. So I doubt we can take it back. I just called Costco to ask what the name of the other brand of basmatti is. It is Kirkland Signature (their store brand). I talked with the lady about it and she suggested I bring the other...
  9. TammyTE
    She had the blood test in 2012 after being on grains for four months. It did say positive for gluten intolerance but not celiac. The Nurse Practitioner said that I should treat her as true celiac because she had ingested such a small amount of grains for such a small amount of time in her short life at the time. She really believed that my dd was celiac...
  10. TammyTE
    I had no idea about the rinsing. Makes sense if I think about it. oops <blush> Why limit brown vs. white? We use basmati as I have read it is lower glycemic.
  11. TammyTE
    Thanks, I'll have to look into Lundberg Farms. I order gluten-free oats through a local amish store. I can see if they can get this brand. Thanks! I can't remember the brand we were using from Costco. It was in a purple/black plastic bag. It seemed to be okay but now I am just wanting to make sure the rice we use is gluten-free so there is no question...
  12. TammyTE
    I have five children. We started down the "dietary issues" path several years ago when I discovered that artificial dyes and preservatives affect my oldest two. That was 2007. Over the years we have done various elimination diets trying to figure things out. But most of the symptoms were behavioral and then some things like bedwetting, under eye circles...
  13. TammyTE
    Oh and I am unsure of what to do with the 40lbs of rice we have. My four older kids are gluten intolerant and don't seem as sensitive as my youngest. She is the one that reacted to this rice. On one hand, I feel uncomfortable give this rice to the older kids knowing they are sensitive and knowing it is cross contaminated. We eat a lot of rice. But that's...
  14. TammyTE
    We purchased rice at Costco (several pounds of it actually) and my daughter reacted to it. Zafarani is the brand name. I went to the company's website and they have a general blurb about how rice is a naturally gluten free food but nothing specifically stating it is gluten free. I called the company and sure enough, it is processed in a facility with wheat...
  15. TammyTE
    Thanks for helping me think it through. We are primarily using sunflower seed butter from Trader Joe's. My other kids are not the best at keeping PB out of 2yo's reach. ;-) We haven't had eggs in the house but recently my husband fixed some. 2yo somehow got in contact and had eczema and diarrhea. So I might keep eggs in the house and use them *in* stuff...
  16. TammyTE
    Thank you all so very much. I admit I am getting overwhelmed here. Playing private investigator for each of the kids and myself gets a bit confusing.LOL I think part of my problem is that when *I* am not eating right my mind doesn't function at 100%. Therefore, I miss some things with the kids. It is frustrating that these doctors don't want to work...
  17. TammyTE
    Thanks for the input Nicole. Nirole - We have done various "diets" over the years. It all started when I figured out my oldest couldn't do red40 food dye when she was about 2yo. When my 8yo son was 2-3yo he was having horrible behavioral and speech problems, night terrors, eczema (which they have all battled over the years), lots of behavior that would...
  18. TammyTE
    Thanks. So does that mean the NP didn't know what she was talking about? She basically said that if you "adjust this for her age" my 2yo should be considered celiac. What would you do in this situation?
  19. TammyTE
    So out of my 5 kids no one tested true positive as celiac. Here are the results all together: 10yo girl: Total IgA Ref Range 52-290 mg/dL 73- Sufficient Anti-Tissue Transglutaminase IgA (tTG IgA) Ref Range <4.0 U/mL <1.2 - Negative Anti-Deamidated...
  20. TammyTE
    Open Original Shared Link is his blog.
  21. TammyTE
    Thanks. I sure hope the allergist will listen. We've never seen him before. He has a blog and I've read several of his articles. He *seems* to have a very common sense approach, which is what drew me to him.
  22. TammyTE
    That is fascinating. Thank you for the link. I did find on the lab's website they had an example to look at. Their sample was for a 17yo person and the range was different. You would think though that the range would be different for an 8yo and a 2yo.
  23. TammyTE
    Well shoot. Do you think I should keep him on gluten (we still haven't stopped it because everything has been so uncertain.) for his allergy appt in a couple weeks? Then I could ask the allergist to run a new gluten panel. Does the number of 15 on the IgG seem like things could be close at all or am I over thinking it and maybe he doesn't have an issue...
  24. TammyTE
    Okay, I just got the lab numbers for my 8yo son as well. His test also showed a reference range for the total IgA as 17-94. So I guess that at least means their range was the same but could also mean they don't change the range at all whether it is a child or adult. Wouldn't that make a difference?
  25. TammyTE
    My 8yo ds was grain free for 10 months. We added grains back in for 3 months. He had blood work done but they forgot to order the celiac test. He had stayed on grains up until a week before the 2nd test. The 6 days before he had some quaker oats but nothing else until the day before. The night before the 2nd blood draw he had a sandwich The morning...
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