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PLGW2012

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by PLGW2012

  1. PLGW2012
    Wow, thanks so much for the replies. This is so frustrating, because I start to feel like we have it down, then we learn about something new, like cross-contamination! We've been careful with peanut butter and jelly jars, but the pots and pans never occurred to me. I did stop using regular flour, because I read that it stays in the air, and now the whole...
  2. PLGW2012
    About nine months ago my nine year old was diagnosed with Celiac disease during a routine blood test. She has no symptoms, except for scalp psoriasis which may or may not be related, according to her doctor. When she was diagnosed, her blood work was off the charts with every marker for celiac, according to the nurse (not sure if that's true). Her upper...
  3. PLGW2012
    My 8-year-old was diagnosed last month and I just want to recommend the book "Eating Gluten-Free with Emily". My daughter loves it and it has really helped me explain what's going on. It inspired her to be a "gluten detective", which has been very helpful when friends are offering snacks or my clueless husband offers something she can't eat.
  4. PLGW2012
    Today was my 8-year-old's biopsy. The doctor brought out pics that they took during the endoscopy and showed me that her upper intestine was "flat" with "blunted villi", redness, and swelling. One dr already told ,e that with the positive TTG greater than 100, the positive titer (1:160) ema, the positive IgA and IgG, he is 100% certain she has celiac disease...
  5. PLGW2012
    Thanks for all of the info. I can already tell this is going to be a challenge. Last night at dinner at a restaurant (after I'd researched what she could eat) my husband handed her a breaded mozarella stick and she ate it before I could stop her. My husband and friends were saying, "Oh, it's a process, we'll get used to it." But after the dr told me...
  6. PLGW2012
    Thanks for the suggestions, I feel more confident now about starting to go gluten free immediately after the procedure. I'm glad you mentioned Eosinophilic Esophagitus because they are doing some kind of procedure that I am still reading about at the same time of the endoscopy Tuesday to check for that. The doctor keeps referring to it as EoE and says...
  7. PLGW2012
    Wow, thanks so much nvsmom. Every time I read this forum I learn something new. I never thought to check vitamins! And thanks for explaining all of that...it's crazy that a kid with those blood tests could be mostly without symptoms! That is very valuable input. I think we will do a "last oreos" and "last pizza" and that's it. I was getting really confused...
  8. PLGW2012
    My 8-year-old just had blood tests and the doctor told us that based on her blood work he wants her to limit her gluten consumption to 1 piece of bread per day before her endoscopy Tuesday. I've read conflicting information. Most of what I read on celiac.com says that she should eat the same diet she always has and then go gluten free right after the biopsy...
  9. PLGW2012
    Oh my gosh, gluten free soap? It looks like diet is only part of it then. She loves lip balm and Chapstick (I shouldn't have said "gloss", she's only 8 so it's not like she's wearing makeup. So I'm gathering that basically anything that could potentially get n her mouth could cause problems, right? Her dr is a self-proclaimed "celiac expert" but he only...
  10. PLGW2012
    Thanks so much for all of the info! I'm so glad I found this forum. I'm especially curious now to see if there are symptoms she is having that we haven't recognized that may become more obvious as we start avoiding gluten. Is celiac disease the same as gluten intolerance? I was mentioning to a friend that my daughter was diagnosed with celiac, and they...
  11. PLGW2012
    My 8-year-old daughter was just diagnosed with celiac disease, and I'm overwhelmed (which I'm sure is very common). How careful should I be? Do we need to keep food separate, use different utensils, avoid French fries that may have been contaminated in a fryer, etc? She doesn't really have symptoms, so I don't think it will be super obvious when we accidentally...
  12. PLGW2012
    OK, sorry, I have more test results! Endomysial Abs, S (IgA) Positive Titer 1:160 (high) and Immunoglobulin A 74 (The range says 28-180, so I assume this one is OK). My doctor is a little hard to get ahold of; does anyone else know what these mean? Do ALL of these tests measure gluten intolerance? And is gluten intolerance the same as celiac...
  13. PLGW2012
    Thanks everyone! We are going through a local Children's Hospital. I will make sure I mention the 6-sample thing for the biopsy. The allergy doctor was kind of excited about it, and kept saying, "Wow, we test for this all the time and we rarely get kids with results like this." He also said he would be stunned if she doesn't have Celiac. I'm glad he's...
  14. PLGW2012
    Sorry, one more question: Is there a strong likelihood that the biopsy will show that she doesn't have celiac? Or is the 100+ result a good indicator that she does have it?
  15. PLGW2012
    Thanks, I appreciate the info! Does it matter that the numbers are so high? Maybe they are not that high, but if greater than 30 is a strong positive, does that mean 60+ & 100+ indicate something serious? Also, is there other testing aside from the biopsy that I should request?
  16. PLGW2012
    Hello, my 8-year-old daughter was being tested for a pet allergy and her doctor did some blood work. Her allergy testing was all negative except for these results: IgA Gliadin = 63.1 IgA TTG = GREATER THAN 100 EDIT: I forgot to mention the IgG Gliadin = 53.7 The reference value says: Less than 20: Negative 20 to 30: Weak Positive Greater...
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