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mamat78

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by mamat78

  1. mamat78
    I can get her into her regular gp to request it as well. Hard to get into ped but could try that route as well.
  2. mamat78
    not sure if it was coincidence or not but dinner was the only meal my daughter managed to eat a lot of and also didnt feel sick...gluten free pasta. I am going to chart what is going on for the next little bit. We are supposed to go back to the ped doc early november so I may just bring her to our family doc and ask for those blood tests. Looking at my "list...
  3. mamat78
    i forgot to add that she has been getting headaches more in the last 6 months as well. not every day by any means but at least 2-3 times per month for 1 or 2 days in a row.
  4. mamat78
    HI everyone, I have been here for a while because I live a gluten free lifestyle due almost entirely to skin issues. My daughter (adopted but biologically my cousin) is 10 years old and less than the 5th percentile for both height and weight. Over the summer, she has actually lost weight which is a bit of a concern for me. It dawned on me last night when...
  5. mamat78
    I actually have a great gluten free flour mixture that I have used and the kids love it but we had company today so I didnt want to throw foreign food items her way! So far though, I feel ok and my skin has not broken out...thank goodness!
  6. mamat78
    I would suggest getting your b12 checked. I am not b12 deficient but my levels are in the low range. If you have mild villi atrophy, there is a good chance you are not absorbing b12. I also take a bcomplex vitamin for energy and stress. Seems to help
  7. mamat78
    So, despite working so hard for the last 2 months to NOT contaminate myself, I went and ate the little pancake cooked droplets while I was talking on the phone with my mother in law. STUPID ME! I directly contaminated myself! THe amount was minute (only one tiny little piece) but still, so much for a clean system! Now, I will see if there are any effects...
  8. mamat78
    about 5 weeks ago, I had some bloodwork done prior to a CT scan for Pulsatile Tinnitus and so I asked my dr if she could test for B12 as it is often related to Pulsatile Tinnitus. Long story short, I got an answer to my PT but also found out I have "mild cerebral atrophy" which (when I looked it up) is connected to low B12. My B12 results were around 3...
  9. mamat78
    I have been away for a week or so but I am glad I came back to read! I will make an appointment tomorrow to see my doc this week. I am usually really good at asking questions but she skipped over the "mild cerebral atrophy" line and went straight to the actual cause of the pulsatile tinnitus, which she didnt even understand! I cant seem to find a whole lot...
  10. mamat78
    so sorry that you had to deal with that outbreak! I totally connected with you when you talked about prednisone because I marched into my doc after 3 months of an outbreak and was willing to take anything that would possibly work. Prednisone was at the top of my list but at the bottom of my dr so I dealt with it for another 3 months before it finally cleared...
  11. mamat78
    I would have stopped but I actually only asked for the B12 blood test on my way to the clinic prior to my CT bloodwork. I am going to increase my B12 fthrough supplements and see if I notice a difference of any kind. BTW I think I ate non gluten free soy sauce last night. I broke out this morning in various itchy spots. Holding onto hope that they dont...
  12. mamat78
    Well, I have had a super busy week and lost track of the postings! Soon, but not soon enough, I will be on summer holidays. For now though, its report cards and the chaos of the end of a school year! Anyways, CT scan results: -mild cerebral atrophy...doesnt sound good to me, especially becuase I am only 35! Any insight on this would be appreciated!...
  13. mamat78
    ok so I also have the forehead bumps! I have never had an acne problem or a blemished face but for the past couple of months, I have had a really bumpy forehead. Not itchy or painful but noticeable to touch. My daughter even asked me why my forehead was so bumpy....oh the joys of sorting all of this out! Glad to hear you are feeling ok today. I just...
  14. mamat78
    I actually only got the message last night. I will make the appointment today and who knows how long it will take to get in. I have to ask, does anyone get rough, bumpy skin in spots? I have had this on my arms off and on for a very long time. It seemed to have cleared up but lately (the last week or so) it is back. ALso, my head has been so, so itchy...
  15. mamat78
    CT scan...done yesterday. They said it would take a couple of days to get back to my doc. GOt a call today wanting me to go in to go over the results. Now I am scared. They dont ever seem to call unless there is something to report but maybe because its a CT they would? ANyone have any thoughts on this one? Should I be worried??
  16. mamat78
    so sorry you are feeling so yucky with eating the wrong foods. I havent had any digestive problems since going off but I didnt really suffer consistently before either. My stomach issues would come and go. I would get shooting pains up the middle of my stomach for about 3 months and then it would stop, then I would get horrible indigestion for a while. For...
  17. mamat78
    Jyn it is just nice to know there are other people who "get it" as simple as that sounds!
  18. mamat78
    I have been gluten free for 10 days and the pulsatile tinitus has not stopped, or even slowed down...I wish I could say it has!
  19. mamat78
    Speaking of pulsatitle tinnitis, I am finally getting a CT scan to see if they can find the cause. I actually had to get upset with my doc about getting it done becuase she was going to send me away with the idea that I have to suck it up....just like the rest of the issues! WHo knows if there will be an answer...or perhaps its low b12 and is a simple fix...
  20. mamat78
    I am now at the end of day 8 of gluten free. So far, I feel great and thanks to you tintin, I got started! Icould not wait for another outbreak. I nod my head over and over while reading these posts but I am still not in the "I know its DH " stage yet, as I have not truely seen any healing. (after 6 months, a very strong cortison finally started the healing...
  21. mamat78
    No I didn't. I have been reading lots about iodine content but was just worried about gluten free to start. I had it happen again tonight. I have never had itchy palms so it seems funny that suddenly, after 3 days gluten free, I am getting that reaction? Did you call the company to find out if the salt they use in the chips is iodized or plain? If it...
  22. mamat78
    well, thanks to no answers and not willing to wait for a new outbreak (they have been lasting 6 months or more) to get a biopsy done, I have decided to bite the bullet and commit to gluten free for 6 months to see what happens with my skin. I took a 5% cortisone which finally helped (took over a week to touch it) and now my skin is finally on the mend...
  23. mamat78
    Yes, I do know that cortisone will give a false negative but my derm wouldnt do a biopsy on the current area becuase I havent had a new blister that he felt would get agood result (I have had this breakout for 6 months now) and wanted to wait for a new breakout before testing...I am not willing to wait for it. I am seeing my gp on thursday, getting a new...
  24. mamat78
    I don't know why I keep holding on to the dx of dh but I have been, even though I know what I need to do to get relief. it is not the dx, it is removing gluten from my diet! I have been reading lots about other things going on and one of them (as crazy as it is), is pulsating tinitus. When reading about it, a huge % of people are lacking B12, a common issue...
  25. mamat78
    I took dapsone and couldnt tolerate it past 10 days (although I am 100% sure it was making a difference) and then ended up with the topical. It would help with the intense itch for afew hours but then would be back again. It did nothing to clear the rashes. I am now on the strongest cortisone cream they will prescribe me and it has done nothing for me so...
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