jacksonsmummy

I never said that the breads and cereals were naturally nutritious ...... That is why they are fortified! Most gluten-free replacements are not so her point was that with out proper supervision and education people who eliminate the gluten and simply replace them with gluten-free food replacements run the risk of not getting what they need. Dr Fasano was...

I am not arguing with anyone, just adding some info from our Dr. I am new here and new to this issue think I shall just lurk

This was the article I read and brought to my pedi when I was looking for a substitute for the cows milk, there is a lot of good information out there and fortunately tons of milks! I bake with rice, coconut, almond, sunflower... each one has something a bit differently nutrition wise but my son doesn't like the taste of any but the goats. I bake with the...

My son is not allergic to milk but because his gut is a mess he can't tolerate it. Goats milk is the closest milk to human as far as digestability and he tolerates it beautifully! Of course one should never introduce a new food with out supervision.

I make a great Mac and Cheese ! I use rice pasta spirals and then melt goat cheese with natures balance butter substitute and some sea salt. It tastes like the Annie's my son always loved! Goat cheese and milk is great, tastes almost exactly like cows milk but no allergy issues!

Our Dr explained that keeping children on a gluten-free diet when they don't need one is not the best idea. Most of out " fortified" foods are the breads and cereals. Our trace vitamins and minerals are in those foods . Keeping kids G F but not deficient in those vitamins and minerals is a careful balancing act that should always be done under professional...

My son is 8 and we are I. The process of testing with Dr Fasano at MGH Boston. I had one an elimination diet on him several months ago due to tummy issues, rashes, low grade temps, terrible mood swings..... His IGG was positive after being Gluten free for a few months so he had us put the gluten back or 4 weeks to see if we can tease out the IGA as well...

We saw him today and he was wonderful! A very gentle and kind man. He spent a few minutes giggling with my son over his troll t shirt and just making him feel comfortable. He is not an alarmist or one to be passive. I feel so lucky he is in Boston.

Dr Fasano is WONDERFUL! He was so kind and so weet with my son. He said it all looks to be celiac but because he was Gluten free for 6 weeks when they tested his blood he wants to retest in 3-4 weeks. He wants my son to have Gluten twice a day until the test and see if we can't tease out the IGA antibodies. He is already IGG positive but he said the fact...

Really? This is new territory for us. I have always know " something" was wrong He has had Migraines, " abdominal Migraine" with projectile vomiting, pretty wild mood swings... rashes.... I started by eliminating chemicals in the house as much as we can. We use soap nuts for laundry, chem free cleaners and soaps..... the eliminated artificial flavors and...

Thank you so much for the input! I called back because when I made the GI appointment they asked if I wanted the Celiac clinic or GI. I wasn't sure which they wanted me to go to so I said GI. When I double checked after reading this the Rheumatologist said he wanted my son seen in the Celiac clinic. I changed the appointment and we will be going Thursday...

Thank you! I talked to the Dr, today and he said that he strongly suspects Celiac. He is sending us on Monday to Mass General for Children and we will see GI. If they do the Biopsy I want him on Gluten again before the test so we know for sure what we are dealing with. It is interesting what you said about Dairy. I have had him off Dairy as well because he...

But what I am saying is that he did has a positive test, it was the ttg Ab Igg which I am told can be positive off gluten because it is not an indicator of Glten being present but an antibody associated with the Leaky Gut component

I ihave had my son on a low sugar, no gluten, Dairy,peanut, soy,..... elimination diet due to a constellation of odd symptoms. He had rashes, low grade temps, chronic head ache, tummy aches, mood swings, joint pain and low energy. We brought back corna nd he was fine, we brought back soy and he was fine but I tied wheat and he started with thee temp and rashes...