Jump to content

ragtag

Advanced Members
  • Posts

    13
  • Joined

  • Last visited

ragtag's Achievements

  1. Other weird symptoms... I often see vision trails. They aren't very distracting and only last an instant, but this seems like a strange one to me. I also see very fast moving tiny spots... different from floaters in that they move (shoot through my vision) while my eyes are still. I told this to the eye doctor and she looked at me like I'm insane and said...
  2. Wow, thanks so much for all the responses! Thanks for this suggestion! I've thought that there's a possibility of something being 'off' in terms of my blood pressure regulation. Sometimes it's so weird... if I stand up and sit back down in the span of a minute, I see stars for maybe 15 seconds... they almost look like fireflies. There is nothing...
  3. An update to this, and looking for insight from people who may have dealt with something similar. I went to a neurologist shortly after writing this post. She claimed that the weird skin sensations were paresthesias caused solely by celiac. Being that these sensations began after my diagnosis and even after my TTG antibodies normalized, I still find this...
  4. I agree with those above who say that it is valuable to get a diagnosis if it is at all feasible. I also wanted to add that if you do suffer from dermatitis herpetiformis, you likely would not have to have an endoscopy to get a diagnosis - with DH they can simply biopsy the skin. I haven't had that done myself, but I have to think that it is less expensive...
  5. Ugh, I just drank a single serve carton of their 'Mocha Latte Almond Milk" and started feeling weird pretty quickly. The product claims it is gluten free (and the company claims their gluten free products test to below 10ppm), so this is pretty upsetting.
  6. I've developed some neuropathy as well. I'd heard that celiac can have neurological manifestations and I believe this is true for me, because brain fog and coordination issues were among the first of my symptoms. My neuropathy comes and goes and mostly feels like something is crawling on me, it is not painful but pretty distracting. No numbness, but there...
  7. I'm currently struggling with a lot of the same issues: numbness, tingling, brain fog, feeling uncoordinated... feeling worse after being on the diet for almost 5 months. My last TTG test was negative, and my household is gluten free, so I suspect that my issues are not due to continued gluten exposure (at least not in quantities high enough to affect those...
  8. Hey everyone, I'm so thankful to have the support of this community and all the resources and help it brings. I was diagnosed with celiac disease back in the beginning of May. I've been strictly gluten free ever since and a follow up test on my TTG levels revealed that they are negative, so I know I'm doing well in adhering to the diet and avoiding cross...
  9. Thanks so much to those of you who responded a few months ago! I just figured I'd provide an update. I've been gluten free since my biopsy and many of my symptoms have resolved, especially the digestive issues I was having. I'm still working on bringing up vitamin levels, but I got some great news a few days ago. A follow up test on my TTG levels showed...
  10. I just wanted to revive this thread to inquire if anyone has been able to visit Senza yet. I'd love to hear your experiences. According to Yelp, many people, even non-gluten-intolerant or celiac folks are loving this place! They now offer baked goods from 9-noon T-F as well so I plan to stop by there for a few items once my schedule frees up during the day...
  11. Yes, I just checked the report and the samples were 0.1-0.3 cm in size, and with several yards of small intestine that is indeed a tiny portion represented. At this point I guess I just have to proceed as celiac is the only problem and reevaluate if my symptoms persist. I'm not looking for a reason to deny celiac, rather I'm relieved to know that I've figured...
  12. I believe they took 8 samples...
  13. Hello everyone, I'd just like to get the opinions of some people who have dealt with celiac. I have been feeling off for years, the first complaint that might be celiac related that I went to the doctor for was 7 or 8 years ago - brain fog, feeling out of it. This persisted but a few years ago, I had a total physical meltdown and developed such extreme...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.