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taynichaf

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by taynichaf

  1. taynichaf
    An answer, for some reason, is very important to me as well! So i get it The only test for celiac that doesnt require a gluten filled diet for accuracy is the genetic testing... This alone wont diagnose you with celiac though, and I've heard this test has resulted in negatives for people later diagnosed with celiac by biopsy/blood tests. I think that...
  2. taynichaf
    It will all work out.... I started out so overwhelmed because I felt like I needed a diagnoses as well... Now I just want to be positive that I do not have celiac disease, but after the testing i'm going gluten free for life.... Just start by making a simple doctors appointment, and just tell them your symptoms. Tell the doctor what you think the problem...
  3. taynichaf
    I'm over the thought of having to explain to people about my gluten problem... I could care less if they believe me lol. Its just my mom.... She has called me a hypochondriac, and I just feel like I need to prove something to her. She thinks shes gluten sensitive, but not as far as celiac disease. I still live with her, and I just want to absolutely rule...
  4. taynichaf
    Lol, I know this now! I'm not leaving the office unless it's the tests I want! Thanks for everything
  5. taynichaf
    Ok... I'll make a new doctors appointment and have all the tests picked out and everything... thanks! And I will do research on the other two, but I don't think I have crohns because I have C instead of D, and weight gain instead of weight loss.
  6. taynichaf
    Awesome, thanks!
  7. taynichaf
    I've had people tell me that there are many false negatives and the blood testing isnt all that reliable... and then theres the people that say false negatives are rare with blood testing.... WHICH IS IT?! I'm really freaking confused on wether or not to go through with my endoscopy or not because my tests were negative(although they were not the full...
  8. taynichaf
    Guys... My mom is really against me getting the endoscopy due to money... This is just making everything worse! Ughhh... I just feel like crying.
  9. taynichaf
    I was going to get the genetic test done, but i've been told even that is not all that accurate because there are different genes besides the 2 usual celiac ones... if that makes sense. I'm also just going for the endoscopy because i would rather have a diagnoses. thank you very muchhh <3
  10. taynichaf
    2 years!! Thats awesome! But it sucks that you have to do the challenge after such a long period of time... I was only intentionally gluten free for 2 weeks, and light gluten since January.. I don't think i'm willing to wait 12 weeks of feeling like complete crap to finally get a diagnoses.. I feel like i've already wasted much of my high school years...
  11. taynichaf
    I have very bad anxiety too! I think it is due to gluten... this gluten challenge has me overwhelmed about the littlest things!
  12. taynichaf
    Im only kind of "gorging" on gluten because it doesnt fill me up. You think i need to wait longer than 5 weeks?? I know this is my last shot so I want to make sure to give it long enough. How long are you doing the gluten challenge?
  13. taynichaf
    Yes! I had the "brain zaps" too! It wouldnt last long, but how i described it was my brain vibrating, then i would get a little dizzy... I havent had this for awhile, but its nice to know im not the only one! I wonder what it actually is though..
  14. taynichaf
    I just got an endoscopy scheduled for about 3 weeks from now... Do you think thats going to be enough time eating a lot of gluten?? I've already been eating a lot of it for about 2 weeks... Also, (I live in the U.S.) how am I supposed to pay for this?!?! I'm still under my parents insurance but my mom says they probably wont cover any of it.. I'm 18 and...
  15. taynichaf
    Ok! Thank you!
  16. taynichaf
    I think I need to have the endoscopy so i can no for sure... I'm just getting soo frustrated with all of this! But ohh welll... I really tried getting my doc to order those tests! But I don't want them to think, that I think, I know more about all this stuff then them...if that makes sense? ha If I don't go thru with the biopsy, then I will DEMAND those...
  17. taynichaf
    Okay, this gives me hope! Thats great that your feeling better! I'm going to message you with a few questions..
  18. taynichaf
    It was hand written, but it was readable! The first doctor said they didnt have all the tests I asked for... And the second doctor I dont think even checked. And I pointed it out to BOTH of them! Very frustrating... And the thing is I have been going to doctors for a few years now and have had a lot of testing, so everything else is pretty much ruled out...
  19. taynichaf
    Before I was so sure that I just needed a biopsy and then this would all be over with... But I think this gluten challenge is making me so anxious and overwhelmed.. ughh. And both times I went to the doctor I wrote down all the celiac tests and gave it too them and I even underlined and bolded the world FULL celiac panel..
  20. taynichaf
    It was the TTG IGA AB test.... I think it's better to be patient then to be guessing forever too:/ But now I just have my doubts. How do you get tested for food intolerances??
  21. taynichaf
    2nd blood test = negative!!... And once again, the doctor only did one test. She gave me an option of the next step of the biopsy.... but should I even bother?? Or should I just end my testing here and concider myself non celiac gluten intolerant?
  22. taynichaf
    I dont know for sure how long I was gluten free... I only found I had a gluten problem by doing a low carb/high fat diet for two weeks, and then I ate a bunch of gluten followed by random stomach pains for like a week. So i started research, and then would try gluten free for a week and then eat again and I've done that for awhile. Also, Since the begining...
  23. taynichaf
    This is actually one of my first "glutened" symptoms. And I get out of breath just from walking!
  24. taynichaf
    I can't give you much advice... but we live in the same state! I thought that was kinda weird ha... we live like a few hours away from eachother. If your afraid of CC you could probably lock up your pots and pans that way you KNOW no one has used them. As for going out... just don't eat the food! Like you said, your broke anyways, so just save all the...
  25. taynichaf
    Or maybe I never noticed?? But I'm starting to get sores on my gums that are turning into ulcers.. Is this a gluten intolerant thing? Or does it indicate lactose intolerance?
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