Scarletgrrrl

From my understanding, it is the ends of the villi that produce the lactase that helps digest the lactose in milk. When the villi are damaged and inflamed, they don't produce the lactase which leads to lactose intolerance. Some individuals however may have a preexisting intolerance unrelated to the small intestinal damage. NCGI does not damage the small intestine...

My blood tests were negative. I had the biopsy and I have stage 1 lesions which would explain why the blood tests were negative. (It wasn't the full panel though). I have had a lot of symptoms though and since the biopsy have been diagnosed with iron deficiency anemia.

I will be getting the results next friday when we go for the follow up appt. I thought it would be a good idea to be prepared first. Thanks for the suggestion about contacting the celiac support group for a good GI. We definitely won't be going to the GI I saw. He had a locum at my initial appt who said "I probably had IBS" then said to just have 2 slices...

After recently being diagnosed with gluten intolerance (marsh 1 lesions), I got my 4 yr old son blood-tested. I am not sure which tests they did (they didn't do the full panel with me) but the nurse told me over the phone his gliadin is elevated and his iron levels are low. I have to wait a week until my appointment, but I thought I would post to see what...

Have you had your iron levels checked? Shortness of breath and wounds that take a while to heal are signs of iron deficiency. Also, have a look into FODMAPS diet. Cutting out certain foods may help with your GI isues.

My partner baked a packet mix cake (with gluten in it) and I couldn't stop sneezing smelling it cooking.

Thanks for your post Peter. I suspect this is celiac disease too. A friend was diagnosed in her 50s and her villi will never fully recover. I don't want that to happen to me and am taking this very seriously. I also suspect my dad and my son have it too. My dad is now in a nursing home with dementia and we are awaiting the blood results for my 4 yr old son...

Yes I am planning on remaining strictly gluten free. I am now so sensitive to gluten and have had my share of horrible symptoms: abdominal pain, breast and back pain, hair loss, tingling in the hands and feet, the list goes on...

I got my results from my endoscopy a month ago now and I am still trying to work things out. I have duodenitis (inflamed duodenum) with increased intraepithelial lymphocytes. My villous crypt ratio is 2:1. (I have read the normal ratio is 4-5:1). From my research this is called mild enteropathy celiac disease (one article even calls it a wolf in sheep's...

We have a similar result from the biopsies. I recently had an endoscopy and the results were that I had increased intraepithelial lymphocytes. This is a biomarker for celiac disease but you also have to have the villous atrophy. I was diagnosed with mild duodenitis (inflammation of the small intestine consistent with gluten sensitivity). My villous/crypt...

Thanks Lisa I am going to book my son in to see the doctor. I will also check out the newbie thread. I see my doctor tomorrow about my iron levels. I will ask her for a copy of the celiac blood tests (I had it done on 2 occasions). S

Thanks D

I just called the doctor's surgery and my iron levels are very low.

Hi Lisa thanks for your post. I suspected I had a wheat allergy as a 14 year old and tried my best to limit my consumption. I never even thought to get tested back then. In my 20s I got blood results back as borderline anaemic. The doctor didn't do any other tests putting it down to me being a vegetarian at the time. When I was about 25 I would get liver...

Thanks for your reply Cycling Lady I was very sick for the whole 7 weeks of the gluten challenge. I was so sensitive that I am not sure if I had enough gluten for the challenge. The gastro. seemed to think if I had celiac I would have to avoid soy sauce but with gluten intolerance I don't have to be so vigilant. I tested his theory yesterday. I was at a...