Miss-Marie

Hi thanx for the replys, i was positive on the endomysial antibody test and the anti ttg test, but when I had my endoscopy I was pulling the tube out alot so the person who did the procedure said she couldnt really get a clear view in there, and she only biopsied 1 area too. Thank you for the info nvsmom, its helped abit but do you think they would be able...

Hi all, Just to recap from all thats been happening with me, I had positive blood tests for celiac desease and went for an endoscopy but that was normal. so my gastroenterology specialist said I do not have celiac desease and that I have gluten intolerance, I was really upset because I truly believed I had this and he was telling me I didn't have it, in that...

Powerofpositivethinking - thank you, that's very true some doctors just don't know how to speak to people, I was waiting over 4 months for that appointment and got my hopes up about having a diagnoses I guess that's why I was so upset, I just wish I could have a confirmed and like proper diagnoses because its hard also when people ask me why I'm eating different...

Hi Skyblue, thanks for the post, yes I was eating gluten when I had the endoscopy and didnt start my gluten free diet till I'd had all my testing done.

Is that a conference or something I'm not too sure what that means, thats interesting about the slight positive then negative the next day, I thought the endomysial antibody blood test was the best one out there, and that it was more specific than the others, i guess they are doing more research and seeing that its not that good? hmm

Thanks karen, I guess I could be gluten intolerant but the main thing that makes me think its celiac is the endomysial test, is there any way that I can still get a diagnoses now? ive heard of people getting a second opinion but i dont know how to go about that, and this appointment took over 4 months of waiting for it i dont know why its so difficult to...

I didnt get the ranges of the blood tests, just got a copy that said I had a ttg blood test which was 3 (borderline), and endomysial is weakly positive, sorry I'm not very helpful I was told there was 5 biopsies that were taken but have no idea which parts they were taken from. I will post here what the endoscopy form said: thank you HISTOLOGY-V5 HISTOLOGY...

Hi karen, thanks for the reply. I have copies of my blood testing and the endoscopy report etc, and the endomysial antibody test was weakly positive, and the ttg iga test was a 3. which he says was 'borderline', but im not sure what that word means, the person who did the endoscopy took 5 biopsys in total, and while I was having the procedure, I was pulling...

Hi everyone, I just had my gastroenteroligist appointment today and left the room crying, I felt like the doctor just didnt listen to me or take me seriously at all, he made me feel so small. he started off by saying that he has good news, that I dont have celiac disease because my biopsys came back normal, but when I asked him why my blood tests were positive...

Hi Celiac Mindwarp, I had my appointment and she looked through all the celiac tests that I've had and said I've already had the whole celiac panel already. I didn't know because I wasn't told lol, she said everything was normal except the endomysial one was positive and the ttg one. I'm glad I've had them done so I don't need to now, but she said something...

The only nutrient blood test I've had done was an iron test and my iron levels turned out to be low. I'd like to have all my vitamins tested but I don't want to ask my gp for too much or they might get tired of me lol. I have an appointment to see a nurse tomorrow and I'll ask her if she can give me blood tests for the celiac blood panel and the genetic test...

Hi Cara, I think I'll try and get all of the celiac blood tests that I haven't had yet and then if any of them are positive it may make the doctor more likely to diagnose me? Well hopefully. My doctor seems to know about celiac disease but I don't know if he will give me the diagnoses, I'm really hoping he will so I would receive nhs prescriptions for the...

Thank you cara and notme for your replies, I have another question about the report - you know where they said there is no 'significant' increase in acute inflammatory cells, does that mean there was inflammation in my bowel? but not much? that bits confusing, also when they said small bowel mucosa, is there supposed to be mucosa in the small bowel? I...

Hi everyone, I got my endoscopy report today and I think it's all normal, but I'll type it here what it exactly says, I'm not sure if this is the full report but this is the copy I was given by a nurse. Can anyone explain this to me please? Also I'm not sure what to do now because my blood test was positive and the endoscopy looks normal so does that mean...

I'm sure there is a connection too - I believe I have Celiac and am currently waiting for the biopsy results and I also have thrush that I've had for about 2 years, no medicines have worked. I wish the medical profession would do more research on this because I'm sure this is more than just a coincidence, also I have other members of my family who have thrush...