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Miss-Marie

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Everything posted by Miss-Marie

  1. Miss-Marie
    Hi thanx for the replys, i was positive on the endomysial antibody test and the anti ttg test, but when I had my endoscopy I was pulling the tube out alot so the person who did the procedure said she couldnt really get a clear view in there, and she only biopsied 1 area too. Thank you for the info nvsmom, its helped abit but do you think they would be able...
  2. Miss-Marie
    Hi all, Just to recap from all thats been happening with me, I had positive blood tests for celiac desease and went for an endoscopy but that was normal. so my gastroenterology specialist said I do not have celiac desease and that I have gluten intolerance, I was really upset because I truly believed I had this and he was telling me I didn't have it, in that...
  3. Miss-Marie
    Powerofpositivethinking - thank you, that's very true some doctors just don't know how to speak to people, I was waiting over 4 months for that appointment and got my hopes up about having a diagnoses I guess that's why I was so upset, I just wish I could have a confirmed and like proper diagnoses because its hard also when people ask me why I'm eating different...
  4. Miss-Marie
    Hi Skyblue, thanks for the post, yes I was eating gluten when I had the endoscopy and didnt start my gluten free diet till I'd had all my testing done.
  5. Miss-Marie
    Is that a conference or something I'm not too sure what that means, thats interesting about the slight positive then negative the next day, I thought the endomysial antibody blood test was the best one out there, and that it was more specific than the others, i guess they are doing more research and seeing that its not that good? hmm
  6. Miss-Marie
    Thanks karen, I guess I could be gluten intolerant but the main thing that makes me think its celiac is the endomysial test, is there any way that I can still get a diagnoses now? ive heard of people getting a second opinion but i dont know how to go about that, and this appointment took over 4 months of waiting for it i dont know why its so difficult to...
  7. Miss-Marie
    I didnt get the ranges of the blood tests, just got a copy that said I had a ttg blood test which was 3 (borderline), and endomysial is weakly positive, sorry I'm not very helpful I was told there was 5 biopsies that were taken but have no idea which parts they were taken from. I will post here what the endoscopy form said: thank you HISTOLOGY-V5 HISTOLOGY...
  8. Miss-Marie
    Hi karen, thanks for the reply. I have copies of my blood testing and the endoscopy report etc, and the endomysial antibody test was weakly positive, and the ttg iga test was a 3. which he says was 'borderline', but im not sure what that word means, the person who did the endoscopy took 5 biopsys in total, and while I was having the procedure, I was pulling...
  9. Miss-Marie
    Hi everyone, I just had my gastroenteroligist appointment today and left the room crying, I felt like the doctor just didnt listen to me or take me seriously at all, he made me feel so small. he started off by saying that he has good news, that I dont have celiac disease because my biopsys came back normal, but when I asked him why my blood tests were positive...
  10. Miss-Marie
    Hi Celiac Mindwarp, I had my appointment and she looked through all the celiac tests that I've had and said I've already had the whole celiac panel already. I didn't know because I wasn't told lol, she said everything was normal except the endomysial one was positive and the ttg one. I'm glad I've had them done so I don't need to now, but she said something...
  11. Miss-Marie
    The only nutrient blood test I've had done was an iron test and my iron levels turned out to be low. I'd like to have all my vitamins tested but I don't want to ask my gp for too much or they might get tired of me lol. I have an appointment to see a nurse tomorrow and I'll ask her if she can give me blood tests for the celiac blood panel and the genetic test...
  12. Miss-Marie
    Hi Cara, I think I'll try and get all of the celiac blood tests that I haven't had yet and then if any of them are positive it may make the doctor more likely to diagnose me? Well hopefully. My doctor seems to know about celiac disease but I don't know if he will give me the diagnoses, I'm really hoping he will so I would receive nhs prescriptions for the...
  13. Miss-Marie
    Thank you cara and notme for your replies, I have another question about the report - you know where they said there is no 'significant' increase in acute inflammatory cells, does that mean there was inflammation in my bowel? but not much? that bits confusing, also when they said small bowel mucosa, is there supposed to be mucosa in the small bowel? I...
  14. Miss-Marie
    Hi everyone, I got my endoscopy report today and I think it's all normal, but I'll type it here what it exactly says, I'm not sure if this is the full report but this is the copy I was given by a nurse. Can anyone explain this to me please? Also I'm not sure what to do now because my blood test was positive and the endoscopy looks normal so does that mean...
  15. Miss-Marie
    I'm sure there is a connection too - I believe I have Celiac and am currently waiting for the biopsy results and I also have thrush that I've had for about 2 years, no medicines have worked. I wish the medical profession would do more research on this because I'm sure this is more than just a coincidence, also I have other members of my family who have thrush...
  16. Miss-Marie
    Sorry to hear that you had a bad time at your endoscopy too Carisima, hopefully your next endoscopy will go well for you. I'll make sure I tell the doctors before every future procedure about making sure I'm asleep etc, and hopefully it never happens to us again x Thank you Veggie gal, it was my worst nightmare too and I still cant believe it actually...
  17. Miss-Marie
    Hi frieze thanks for the info but I'm pretty sure I saw them putting the medicine in my arm so its not been used for anyone else lol Raven there was a lady who asked me questions like when was the last time I ate anything etc but they didn't say who they were so I'm not too sure, but it doesn't sound like there was one now. Is there supposed to be an...
  18. Miss-Marie
    Thank you all for the replies and being so kind, I went back to the hospital today and talked to the staff about it and they apologised and said that they will have a meeting with all members of staff so that everyone knows what happened and how I feel, so that they can make sure it doesn't happen again. I've decided not to make a complaint because they were...
  19. Miss-Marie
    Thanks Shadow I'll try and remember that if I ever have to be sedated again, I didn't think to let them know because it was something I put to the back of my mind, and I assumed everything would go smoothly but it was a very bad experience, I'll definitely mention this experience next time anyway.
  20. Miss-Marie
    Marcus - I know I'm still shocked about what happened, they just put the sedative in and I was still talking to them and I was trying to pull the scope out which shows them that I am fully awake but that didn't stop them Hopefully I can move on from this but at the moment I keep having flashbacks in my mind of the choking feeling and panicking, I might make...
  21. Miss-Marie
    Thank you Diana, I hope I get the results that can diagnose me x Dek - they didnt put anything in my hand but they put a needle in my arm and injected the sedative in there, with sedation I dont usually remember anything Shadow - Once i woke up half way through a dental procedure but then fell back asleep fast so it was okay, but other than that...
  22. Miss-Marie
    Hey everyone, I had my endoscopy today and I actually feel traumatized now. I said I wanted to be sedated for my endoscopy and so they assured me I would not be aware of what was going on and that I wont remember anything, but I was fully awake and aware of everything that was happening and I remember every detail :'( they gave me the sedative called Midazolam...
  23. Miss-Marie
    Thank you for your fast replies taynichaf - I really hate needles too so that will probably be the worst part too for me lol, as long as I'll be sleeping when its all happening I should be okay, my main worry is that I'll wake up with a camera down my throat but I'm sure that wont happen, although once I was having a tooth removed and had to be sedated...
  24. Miss-Marie
    Hi taynichaf, I'm having my endoscopy on the 29th of this month and I'm getting really nervous about it, how did your endoscopy go? im going to have the sedative but im worried that I might wake up during the procedure and im thinking all kinds of things, its scaring me any words of advice would be great x also how did you feel after? did you feel okay or...
  25. Miss-Marie
    Thank you for the links Marcus they were very informative
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