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tinpins

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Everything posted by tinpins

  1. tinpins
    Thanks "squirmy" for your encouragement ... this community has been a life-line for me in finding my way out of the dark miserable place I was in. ... and "JynGann" when I first came to this site I burst into tears when I realized that I was not alone. Someone understood. Not that my husband isn't supportive and kind, but like you I quit sharing my misery...
  2. tinpins
    This is such a wretched condition that searching for solutions becomes priority number one. I feel so unwell today with nausea as well as the gut symptoms, that crawling back into bed is imminent. This condition has me feeling that I'm not as resilient as I thought I was. I too have been letting so much go ... and this is NOT me ... and the psychological...
  3. tinpins
    I am using the thyca guidelines but got too confident thinking that I could add yogourt to my morning smoothie every day.When my gut was so unhappy mid-day yesterday I had some yogurt as well for lunch I started Culturelle over a week ago and funny thing I forgot to take it the day before yesterday. I'm becoming even more vigilant about what I eat now...
  4. tinpins
    How awful for you ... it's a miserable thing to be experiencing.
  5. tinpins
    Finding the solutions ... connecting the dots ... it's a time consuming issue spurred on by major discomfort/pain. I'm using a modified SCD diet and obviously I'm going to have to modify it further. I need to exchange my printed foods list for one on a chalkboard at the moment
  6. tinpins
    Oh boy ... looks like I'm going back more than two steps today. The pain that woke me last night is still waging war in my gut. That's worse than my back at the moment ... I've been reading about iodine in milk and thought I was safe with an organic, non-homogenized yogourt. Thanks for all the info again ... I seem to be okay with kale but it's not store...
  7. tinpins
    Oh my ... I had no idea yogourt was so high in iodine. Open Original Shared Link Haven't seen the Open Original Shared Link before ... thank you I'll figure it out eventually.
  8. tinpins
    It's like learning to walk again isn't it? Thank you (again) ... you should write a book!
  9. tinpins
    Thank you! If there was an icon for a lightbulb I'd be inserting it right here. This could be why I have gut problems and I'm clawing at my upper back today ... yogourt this morning in my smoothie. That'll teach me. This is a two step back day for me!
  10. tinpins
    I'm so glad you responded ... I read your reply and thought ?sunflower seeds ... yes sunflower that is what I wrote. I meant to write pumpkin seeds! So sorry. Sunflower seeds are good but it's the pumpkin seeds that have the super iron content. I put some in my morning smoothie and they blend in really well. Pumpkin seeds have 20.7 mgs of iron...
  11. tinpins
    This was a symptom that was becoming more and more frequent for me towards the end of my gluten feasting life. It's a most unpleasant and worrisome experience ... I'm sure you've seen this info but for anyone who hasn't, this gives a good overview of what it is: Open Original Shared Link I have not had one episode of this since I went gluten free...
  12. tinpins
    It's all about "connecting the dots" and many practitioners are so specialized that those of us that present with too many "dots" are puzzling to a lot of them. I listened to an Open Original Shared Link last week, and he has the most watched TED talk ever. Part way through his interview with Charlie Rose he refers to exactly this issue. He refers to how...
  13. tinpins
    I was thinking late last night about how important a forum like this is for us to be able to begin to make sense of what is happening to our bodies. The "symptoms" issue was what prompted this post. Before finding this forum, there we are, all struggling along alone and wondering why no one else we know has constant headaches, pulsatitle tinnitus, bleeding...
  14. tinpins
    Sounds like you're on the right track if you can say you're feeling great : ) Re your itchy hands, I always get itchy extremities if I have an allergic reaction to something ... starts there and progresses, so maybe an allergic reaction to something in the jujubes? And roasted anything right now gives me indigestion and I didn't used to suffer with...
  15. tinpins
    At my dietitian's visit today she reviewed closely my diet for the past week and praised my morning smoothie which sounds exactly the same as yours. I usually add kefir or yogourt to mine as well and she suggested perhaps substituting greek yogurt for it occasionally because it is higher in protein. The other thing I add is a few tablespoons of ground almond...
  16. tinpins
    It's amazing when you start to list all the symptoms ... it's quite shocking actually what we end up coping with all because we didn't know that we were poisoning ourselves!
  17. tinpins
    Oh dear. This is a wretched journey for you. I am still covered in lesions but they are not insanely itchy any more and they no longer bleed profusely. Your situation sounds so painful and unbearable ... I too hope you can see your doctor really really soon.
  18. tinpins
    Like Jyn, today I too was smiling after seeing an excellent dietitian who assessed my diet and supplement intake. It's only when you start to heal that you realize how sick you have been and how much the quality of your life has been affected. Today my smile started to return from the inside and was not a pasted on "coping" smile. It's exactly four...
  19. tinpins
    I've never read so much in such a short time about a single subject! I'm almost to my one month anniversary without gluten and I'll update my progress after my appt with the dietitian on Monday. I found these articles by Sayer Ji, worth reading ... Part 1 Open Original Shared Link Part 2 Open Original Shared Link and there's a facebook page...
  20. tinpins
    I don't know enough about this to be able to comment intelligently other than to agree with "prickly" about the iodine intake and the tests ... this is a frightening journey to be on when there are so many unknowns. I'm thankful, as I'm sure you are, to have the support and insights of this forum. Please share your findings with us all Lyn. ((( hugs to you...
  21. tinpins
    It's sad isn't it that only in retrospect can we connect up all the dots. My osteo specialist did the right tests for celiac but mine came back negative ... no surprise now I know what I know! This paper from a seminar by Prof Peter Green points out the pitfalls in the diagnosis of coeliac disease on the fourth page. Open Original Shared Link
  22. tinpins
    Once I got a diagnosis of DH then right away I connected the osteoporosis to it ... what I found amazing with the osteoporosis diagnosis was that it was all negative ... the medical profession push drugs and scare you to death with facts like "just bending over to pick up a book can break your bones" and "don't fall, because if you break your hip .... " ...
  23. tinpins
    This is about DH and osteoporosis … I was diagnosed with osteoporosis 6 years ago. I was shocked … I was healthy (I thought!), active and ate a wholesome diet (lots of whole grains of course!). My GP recommended Fosamax and I said thanks but no thanks send me to a specialist to find the cause. Specialist did the appropriate tests including the tTG...
  24. tinpins
    Every little step forward is so encouraging ... are you using the SCD diet? I'm still picking my way through the permitted foods for stage 1 but am optimistic that this diet (modified for allergies) will help me. The sun was warm outside in the garden today and I found the lesions on my uncovered arms bothered by it ... not terrible but a warning that...
  25. tinpins
    I found an easy to read article explaining the Specific Carbohydrate Diet: Open Original Shared Link
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