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tinpins

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Everything posted by tinpins

  1. tinpins
    Ice packs ... who knew. They work. Thanks also for the website for the gluten free meds. Today I was reading forum threads about blood in clothing and sheets ... boy can I identify. When this first started 15 months ago I was away from home for two months in a rental apartment overseas. I was almost paranoid about bleeding into the sheets and would...
  2. tinpins
    This is wonderful! Again ... I feel like I have been given a most wonderful gift. All this information is invaluable. I just had my husband apply liberal amounts of witch hazel on my back, and while it was still moist to fan it. A few minutes of relief ... but now I'm off to get an icepack : )
  3. tinpins
    Again ... thank you, thank you! I was all set to make a list for myself this evening. And for the last few days I've been carefully checking everything before it goes into my mouth (like vitamins). Once I get myself familiar with the process I'll be fine. I've had to avoid lots of foods (curry = anaphylaxis) and drugs (aspirin, NSAIDs, sulfa, etc.) for ...
  4. tinpins
    Jane thank you ... I believe there will be a smiley face but I think it's a bit in the distance yet. This feels so wretched that there is no way I would want to poison myself with gluten just to possibly get a positive diagnosis. I've done enough damage to my body ... it's time for healing. I'm off gluten and I'll get off the iodine too as soon as I've...
  5. tinpins
    Squirmingitch, Pricklypear and Sisterlynr, ... thank you I read your posts and am most grateful for all your helpful advice. As I put together my medical records to see my specialists in the next week and organize them into date order, the realization that I have been struggling along on this journey for 40 years shocks me. Many, many allergists and dermatologists...
  6. tinpins
    Thank you Lyn ... you have had a rough journey and I appreciate you sharing your thoughts. I have been reading about the topical Dapsone so it is of interest to me if I can tolerate it. When one of the members (I think it was Squirmyitch) used the term "the suicidal itch" to describe this condition, I actually burst into tears of relief. Someone understands...
  7. tinpins
    Think I might have figured out a way to share a photo with this link ... it shows part of my torso that is affected ... same on the other side and both arms. Open Original Shared Link Thank you again for all your helpful advice ... I'm finding it everywhere as I read through the posts
  8. tinpins
    Thank you so much for all the links and your advice. I am so sure that this is what I have that going totally gluten free immediately was a no brainer. I have already learned so much from my reading on this site. I know that there is no miracle cure but I feel like I have come to a place of understanding ... and support. I've been trying to post a photo...
  9. tinpins
    Thank you .. I will follow your advice and check out thyca.org also. I have much to learn but I also have hope finally.
  10. tinpins
    I found this forum after several days of researching on the internet and I have been reading through the threads of this forum. I’m so grateful that so many have shared their knowledge and their journey. It has helped me to feel less alone and more confident in what I must do. I'm sharing my journey in the hopes that it will help someone else who is s...
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