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Everything posted by SasaMinks
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ARCHIVED Symptoms Getting Worse - At The End Of My Tether :(
SasaMinks replied to SasaMinks's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks everyone I really appreciate your replies and support My doctor has been Very very vague - he didn't seem to know what the endescopy looks for and when i said going gluten-free might affect it he said 'well it doesn't really matter you will probably just be told your ate intolerant anyway and will have the same advice to go gluten-free.' i had... -
ARCHIVED Symptoms Getting Worse - At The End Of My Tether :(
SasaMinks posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Today I'm feeling really down and at bit at the end of my tether. I just don't know what to do and could do with some friendly advice Basically I was diagnosed IBS years ago due to bloating/cramping/gas etc. Since my pregnancy last year everything has been so much worse though and my migraines/fatigue really stepped up to the point where I can barely... -
ARCHIVED Wedding Etiquette And Other Questions?
SasaMinks replied to seezee's topic in Coping with Celiac Disease
Im getting married this Saturday and the caterers have been fantastic about making me a gluten-free dish at no extra cost - if i were you i would contact the host and ask id there is anything that can be done. I know i would be more than happy to make any adjustments i could to make sure my guests get a nice meal - i know im coming from a gluten-free perspective... -
ARCHIVED Glutened Or Just Paet Of Recovery?
SasaMinks replied to SasaMinks's topic in Coping with Celiac Disease
Thank you so much everyone for your advice we are going time today so I am going to de-gluten the kitchen!! Im beginning to think I was glutened for sure - today my mother in law took put two slices of my gluten-free bread to toast and put it on the board covered in crumbs - when I said I couldn't eat that now she looked at me like im bonkers Another... -
ARCHIVED Liver Functions Linked To Gluten?
SasaMinks replied to SasaMinks's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
No - but thanks for the info! I was screened for Hep A B and C when pregnant so not related to that. Pretty sure it's the gluten :-/ -
ARCHIVED Glutened Or Just Paet Of Recovery?
SasaMinks replied to SasaMinks's topic in Coping with Celiac Disease
Thank you diana - I am staying at my mother in laws this week and its fair to say their kitchen is full of gluten!! Scones cakes bread - its a gluten nightmare... Would a small cross contamination make you feel that awful? I did read that U feel even worse from gluten if you get it once you have been gluten-free for a while? -
I have been gluten-free for two weeks now (not long I know!!) but have already seen a huge improvement especially with the brain fog, headaches and fatigue. today I feel awful though like completely back to square one but I've been soooo careful I don't know how i could have got glutened?? Yesterday i ate: Banana and milk protein shake Two slices...
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ARCHIVED Bad Experience At My Endoscopy Today :(
SasaMinks replied to Miss-Marie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That sound awful - I'm so sorry you went through that Just out of curiosity are you red headed? It's been proven that red heads need more sedation and anaesthetic than other people to put them out. I found this out the hard way when my anaesthetic stopped working mid way through a c-section here's some interesting research on it: Open Original Shared Link... -
ARCHIVED Is Eating Gluten Worth A Possible Diagnosis?
SasaMinks replied to aberlee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Im completely in the same boat! gluten-free for two weeks and I feel like a new person already - I can function without brain fog or insane fatigue at last!! Bloods were negative - but liver shows signs of being fatty - to do the endescopy id need to eat gluten again but im finding it hard to get people to take me seriously - my mother in law keeps offering... -
ARCHIVED Liver Functions Linked To Gluten?
SasaMinks replied to SasaMinks's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
See I very much agree with this - my doctor is rubbish though and keeps on saying its ibs- although he has put me in for a liver scan and re test of bloods. Should I push for an endoscopy though? Or, if my next lot of bloods show improved liver function, just stick gluten-free rather than having to back on it for an endescopy that might show nothing up and... -
ARCHIVED Liver Functions Linked To Gluten?
SasaMinks replied to SasaMinks's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Sugerdale - that's interesting... It sounds like maybe you didn't gibe it enough tine the first time? I read that withdrawel from gluten can make too feel even worse at first and for me I certainly felt worse foe a day or two. 8days in and I feel like a new person - less bloating/more energy/reduced migraine attacks. I wonder if anyone has a view on whether... -
ARCHIVED Liver Functions Linked To Gluten?
SasaMinks posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello! I had my blood tests back today and they are fine BUT doc says liver function is abnormal at 74 - given that I have lots of other symptoms could this mean I could have celiac still? or is it more likely just NCGI? I've been gluten-free for a week now and have noticed more energy/less bloating and less brain fog. If I stop eating gluten and my... -
ARCHIVED Negative Blood Test But Fbc Abnormal- Now What?
SasaMinks replied to SasaMinks's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
met with the doctor today and he said the blood tests showed that my liver function is showing abnormal enzyme levels - I;ve just read this can be a sign of celiac too is that right?? he said we will look a scan to look for fatty tissue but was unclear whether he thought that was celiac related or just a precaution? he did say stick to a gluten-free diet... -
ARCHIVED I Am Confused....
SasaMinks replied to Justsoconfused's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am in exactly the same boat! negative tests but anemic and with all the celiac symptoms - gluten-free for 6 days and I feel like a different person already - I don't know what to think either! -
ARCHIVED Negative Blood Test But Fbc Abnormal- Now What?
SasaMinks posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm so confused and would love some friendly advice/support... So I got my blood tests back yesterday and they were negative for celiac however my FBC was abnormal. They haven't told me what this means yet, they want to see me tomorrow but i'm guessing it's going to be that i'm anemic again despite taking supplements and eating an iron rich diet. ... -
ARCHIVED Day 5 gluten-free At Dr's Recommendation, Questions!
SasaMinks replied to Missmtl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello! wow your symptoms sound like mine and my dr said the same thing about having to accept I might just have to live with not knowing - an attitude I find shocking! I am only just getting bloods done now so I don't have a diagnosis but your story is so similar to mine, in particular I had IBS but my symptoms really kicked off during pregnancy - i've... -
ARCHIVED Dr Had Me In Tears :( Could Pupps Have Been Dh?
SasaMinks replied to SasaMinks's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you so much for your replies and support - it really helps! I got back to a different doctor today who is doing blood work for celiac, thyroid, vit D and some other things (I lost track...) oh and also wants me to have a scan. He did push the IBS thing - maybe he's right - but at least some sort of investigation is happening rather than just trying... -
ARCHIVED Dr Had Me In Tears :( Could Pupps Have Been Dh?
SasaMinks posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Dear all, Please help - I'm desperate for some advice! A few years ago I was diagnosed with IBS but when I fell pregnant last year my symptoms got A LOT worse. The few months (my son is 16 months now) it's been unbearable and today I ended up in the walk in clinic because my stomach bloated out by about 6 inches over the course of the morning. (I have...