SiandAshs Mom

Thanks stephm. My son also has extremely dry skin (it flares into full blown eczema at times). He licks his lips when he's nervous and gets a huge angry red rash around his mouth almost instantly - I can tell if he's stressed by the rash around his mouth! Never thought it could be related to fat malabsorption but that makes sense. Interesting that your...

Thanks Jkta. Yes, it always seems like a struggle to get him to drink water! That is definitely something we need to work on - I'm sure it would help. All the best with your daughter - I hope the endoscopy goes well.

Thanks for your input ravenwoodglass. I thought the same thing but she caused me to question that. In all fairness, she did say that an elimination diet may be a good idea in the future - she just felt that he could be missing out on some vital nutrients while growing if we did an elimination diet now. Also, she suggested that we waited until he was...

Hello all. My 7 y/o son has been struggling with chronic constipation since he started solid foods. He has been on PEG (miralax, restoralax) for a couple years and we have had to continually up the dosage to keep him somewhat regular. His paediatrician tested him for TTG IgA (he was negative) as well as thyroid tests (also negative). We were referred...

Hi all - I kind of threw this on the end of a previous thread I started but thought I would start a new one for simplicity sake... I have been negative on all celiac blood tests. The tTg, and AGA tests were absolutely negative - like nothing at all registered there. DGP IGG was 2. My DGP IGA was 6 (0-19 is negative). I'm curious - is it considered...

Just posting a recap of new happenings this last year - I would love some more advice. I personally have had more blood work done (while travelling in the USA). All blood work is negative. tTg IgA - negative (completely - nothing even registered) gliadin IgA - negative (pretty much completely) gliadin IgA - negative (completely) DGP IgA...

Hi winjer. I am far from an expert but can maybe help a little... Do you have the results of the biopsy? Could you get them? Do you know how many samples were taken and from where? If the gastro is not really educated on celiac they may have missed the damage or not taken enough samples to get an accurate picture of your intestinal health. I would think that...

Open Original Shared Link Just an update - we have had my son on a low iodine diet and his rash seems to be clearing up. It's difficult to know what's what as his rash seems to flare up and then improve on its own for no apparent reason. It never seems to fully go away though (except when he was on prednisone). We'll get him back on iodine and see what...

Thanks - it's nice to know I'm not way off track! Lol! We have never put him on a gluten-free diet so I'll probably try to get a biopsy before we eliminate it. A 12 week challenge would suck! I appreciate your input

That's good to know - we will give it some time when we lower his iodine intake. Thanks so much for all your help

Thanks everyone. We will try to lower his iodine intake to see if it helps. So yesterday evening his elbows started looking inflamed/infected (I didn't get a picture as he's already really self-conscious about it). They are now like this... Open Original Shared Link He still claims it's not that itchy... I just don't know what to think. I'm afraid...

Hmm... I haven't really noticed that it gets worse with iodine but I'm not really familiar with high-iodine foods. Would that be foods with lots of iodized salt? He does crave salty foods...

Open Original Shared Link Here's another pic - would this be considered a flare-up? He really doesn't seem to find it that itchy... I don't think it has ever kept him up at night or anything... Thank you all for your replies and input And sorry for the giant pictures! I don't know how to make them smaller... And bluewhitesky - I hope you are...

Very interesting - thanks so much Nolev. Yeah, prednisone is terrible - I really hope he never has to be on it again Good to know that psoriasis reacts the same... food for thought.

That is super helpful - thanks so much!