Jump to content

SiandAshs Mom

Advanced Members
 View Profile  See their activity

  • Posts

    58

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by SiandAshs Mom

  1. SiandAshs Mom
    Thanks stephm. My son also has extremely dry skin (it flares into full blown eczema at times). He licks his lips when he's nervous and gets a huge angry red rash around his mouth almost instantly - I can tell if he's stressed by the rash around his mouth! Never thought it could be related to fat malabsorption but that makes sense. Interesting that your...
  2. SiandAshs Mom
    Thanks Jkta. Yes, it always seems like a struggle to get him to drink water! That is definitely something we need to work on - I'm sure it would help. All the best with your daughter - I hope the endoscopy goes well.
  3. SiandAshs Mom
    Thanks for your input ravenwoodglass. I thought the same thing but she caused me to question that. In all fairness, she did say that an elimination diet may be a good idea in the future - she just felt that he could be missing out on some vital nutrients while growing if we did an elimination diet now. Also, she suggested that we waited until he was...
  4. SiandAshs Mom
    Hello all. My 7 y/o son has been struggling with chronic constipation since he started solid foods. He has been on PEG (miralax, restoralax) for a couple years and we have had to continually up the dosage to keep him somewhat regular. His paediatrician tested him for TTG IgA (he was negative) as well as thyroid tests (also negative). We were referred...
  5. SiandAshs Mom
    Hi all - I kind of threw this on the end of a previous thread I started but thought I would start a new one for simplicity sake... I have been negative on all celiac blood tests. The tTg, and AGA tests were absolutely negative - like nothing at all registered there. DGP IGG was 2. My DGP IGA was 6 (0-19 is negative). I'm curious - is it considered...
  6. SiandAshs Mom
    Just posting a recap of new happenings this last year - I would love some more advice. I personally have had more blood work done (while travelling in the USA). All blood work is negative. tTg IgA - negative (completely - nothing even registered) gliadin IgA - negative (pretty much completely) gliadin IgA - negative (completely) DGP IgA...
  7. SiandAshs Mom
    Hi winjer. I am far from an expert but can maybe help a little... Do you have the results of the biopsy? Could you get them? Do you know how many samples were taken and from where? If the gastro is not really educated on celiac they may have missed the damage or not taken enough samples to get an accurate picture of your intestinal health. I would think that...
  8. SiandAshs Mom
    Open Original Shared Link Just an update - we have had my son on a low iodine diet and his rash seems to be clearing up. It's difficult to know what's what as his rash seems to flare up and then improve on its own for no apparent reason. It never seems to fully go away though (except when he was on prednisone). We'll get him back on iodine and see what...
  9. SiandAshs Mom
    Thanks - it's nice to know I'm not way off track! Lol! We have never put him on a gluten-free diet so I'll probably try to get a biopsy before we eliminate it. A 12 week challenge would suck! I appreciate your input
  10. SiandAshs Mom
    That's good to know - we will give it some time when we lower his iodine intake. Thanks so much for all your help
  11. SiandAshs Mom
    Thanks everyone. We will try to lower his iodine intake to see if it helps. So yesterday evening his elbows started looking inflamed/infected (I didn't get a picture as he's already really self-conscious about it). They are now like this... Open Original Shared Link He still claims it's not that itchy... I just don't know what to think. I'm afraid...
  12. SiandAshs Mom
    Hmm... I haven't really noticed that it gets worse with iodine but I'm not really familiar with high-iodine foods. Would that be foods with lots of iodized salt? He does crave salty foods...
  13. SiandAshs Mom
    Open Original Shared Link Here's another pic - would this be considered a flare-up? He really doesn't seem to find it that itchy... I don't think it has ever kept him up at night or anything... Thank you all for your replies and input And sorry for the giant pictures! I don't know how to make them smaller... And bluewhitesky - I hope you are...
  14. SiandAshs Mom
    Very interesting - thanks so much Nolev. Yeah, prednisone is terrible - I really hope he never has to be on it again Good to know that psoriasis reacts the same... food for thought.
  15. SiandAshs Mom
    That is super helpful - thanks so much!
  16. SiandAshs Mom
    Oh, I have one more question - are the biopsies quite painful and invasive? I'm sure it's nothing like an endoscopy but I'm not really sure what the procedure entails...
  17. SiandAshs Mom
    That's great advice - I have found that the docs we've seen so far have been pretty dismissive but I'll try to get a referral to a derm. Our allergist has been the most willing to work with us so I'll see if she'll refer us. Wish us luck! And all the best with your DH - I can't imagine how difficult it would be to live with.
  18. SiandAshs Mom
    Well, he kind of is in a way - he has an allergic condition called cold urticaria (basically he's allergic to the cold). If he gets cold/wet he gets hives and itches. He doesn't really complain about being itchy even though he gets hives a lot... From what I have learned here though DH is so unbearably itchy. I can't imagine that he wouldn't complain if he...
  19. SiandAshs Mom
    Thanks so much for responding squirmingitch. That's what I was thinking. If DH does progress and itch more over time, he's had it long enough that it would probably be bothering him more by now. It just looks so much like DH (and he's had it so long) that I thought I'd ask. One more question - he was on prednisone a while back due to asthma and the rash...
  20. SiandAshs Mom
    Hi all. My 8 year old son has had this rash on his elbows for well over a year now. He says it doesn't really itch though I see him scratching/picking at it a lot. He has some digestive/immune/mood issues we're trying to figure out and I'm wondering if I'm totally barking up the wrong tree thinking it's gluten. He had attg iga test and it was negative. His...
  21. SiandAshs Mom
    Thank you for the info! I will give it a good thorough read when my kids are in bed tonight
  22. SiandAshs Mom
    Yes it could definitely be hormonal. I just don't know. I would be fine eating gluten free without a diagnosis but I think gluten may be an issue for my kids and my family has been pretty unsupportive of any dietary changes because doctors say they're fine. If there is an issue, it would be great to actually have a doctor help - I know a diagnosis just might...
  23. SiandAshs Mom
    Thanks so much. I did have a TSH test come back (what I consider) high. But since it was within the labs 'normal' range my doctor won't run any more thyroid tests. I may have to shop around for a better doctor! LOL. I appreciate the advice and I will look into it further. Is hashimoto's genetic? I have family members diagnosed with hypothyroid but I don't...
  24. SiandAshs Mom
    Awesome! Thanks very much!
  25. SiandAshs Mom
    Ugh, I wish I could! I am in Alberta, Canada. The attg iga is the only test here. I could pay $300+ for the antigliadin iga and igg tests from a naturopath but can't really justify it (especially since it isn't the most accurate test). If I travelled to the U.S. could I pay for tests while I'm there? We just noticed that my 5 year old's teeth are crumbling...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.