JynGann
-
Posts
11 -
Joined
-
Last visited
1 Follower
JynGann's Achievements
-
-
Jyn, you need to remember that dh can present at any time for 2 yrs. or more even after going strict gluten-free. This is why dh is so vexing. How does one determine if it was food or simply a spontaneous outbreak? This is why my hubs & I will not eat anything that is produced on shared line, will not eat out, will only eat cert. gluten-free foods. This is how we keep from going crazy trying to figure out where the cc came from OR if it was spontaneous. The mental effects of this can be horrendous.
So, in short, in may or may not have been something you ate. And IF it was something you ate; it may have been the day before. It will screw your brain up & that's for sure!
BTW I love your screen name, lol. Thanks so much for your reply. I was so puzzled last night with so many things being a trigger it is indeed vexing. I haven't dared to eat out anywhere and I know it will be a long time if ever that I do. Right now I only trust myself to make my food.
-
Thank you all for your responses. I did check the Mrs. Dash website before I bought it and it does say it is gluten free, however, I know that even with gluten free some still react so was just wondering if others had a similar occurrence.
Overall I am still feeling much better and even with the new outbreaks my skin is doing so much better.
I went to a birthday party on Sunday but brought all my own food with me but often when I am around a lot of people within a few days I become sick so the virus thing might play a role. I'll just keep being vigilant about what I eat and continue with my food diary to see if I see a trend.
THANKS!!!
-
I have had an outbreak and was wondering if anyone has reacted to Mrs. Dash Table Blend? I cannot pinpoint one thing I've eaten today that could have gluten in it.
Breakfast: Morning Smoothie all fruits and vegtables
Lunch: Butterfinger (I know, terrible but busy day)
Dinner: Hamburger Patty with Mrs. Dash Table Blend (first time using it), Salad (romaine lettuce, spinach blend, real bacon bits, Ken's Country French Dressing) and Corn Chips
About an hour ago I woke up with an outbreak behind each knee, my lower stomach and left hand. Just looking for any insight as I am puzzled.
Thanks,
Jyn
-
I hope you are feeling better today tinpins.
My rash continues to improve. My skin still looks a mess but it does feel better. I slept the whole night without waking up itching for the first time in almost a year!
I have continued with my morning smoothies and I have to tell you I am eating better than I ever have. I also discovered coconut oil and will now be adding a tablespoon of it in my smoothie as well as cooking with it. It is a bit pricey but it is suppose to help with skin issues as well as lower cholesterol so I'll give it a go.
One other thing, a big thanks to everyone on here, before I found this site I felt so alone. I'm not trying to be blubbery but I know I have been so depressed and I quit talking to my loved ones about how I was feeling because not only did they not understand they would joke about how I was always sick. I know they didn't mean harm but it cut pretty deep. I'm only 40 years old and I felt like I was near the end of my life and sometimes I wished I was. So not only is my body feeling better but my mind is too.
Jyn
-
You're right; it is like learning to walk again.
Prickly has a good idea about making your own yogurt from low iodine milk. I have a low iodine milk source thankfully very locally. It's a family owned & run dairy & they pasteurize b /c it's the law but do not homogenize. They grow their own food for the cows & do all the milking, bottling & delivery to select stores. I was able to call them & inquire about their cleansing & milking methods. I posted a thread on here some time ago about why there is so much iodine in dairy products. If I don't forget; I will find it & link it before I post this. Anyway, this local dairy does not use iodine to disinfect the cows teats prior to milking; instead they use a bleach solution. They do not use iodine to clean the milking equipment. They only use iodine on the cows teats after the milking is done. So there will be a certain degree of iodine absorption into the udders from the post milking treatment & there is a certain amount in the mineral blocks the cows are given & maybe some in the soil in which the feed is grown & that gets into the milk but it is certainly quite a bit less than the big commercial milk companies. I have found that I can tolerate a limited amount of this local milk w/o getting iodine effects. If you can find something similar near you then you could possibly tolerate certain amounts also.
Okay, here's the link to explain why there is so much iodine in dairy products:
https://www.celiac.com/forums/topic/89923-iodine-levels-in-dairy-products/
Okay, now I want to address the subject of Kale. I don't know if or how much iodine might be in Kale but I know that in general the "greens" are high in iodine ---- these are "greens" I have read are high iodine:
Spinach
Turnip Greens
Collard Greens
Swiss Chard
Beet Greens
So, personally, I don't eat any of the "greens". That's just my choice. You may find the Kale does not affect you. If you do; then please let me know ~~~ I'll give it a whirl myself!
And just as a reminder ~~~ Asparagus is high in iodine. For some reason my brain just did not want to remember that one. (I LOVE asparagus) I always managed to catch myself before I bought it but it still tries to catch me from time to time. I find myself reaching for the asparagus in the store & then have to draw my hand back.
And one last thing. The Omega 3's ~~~ make sure they aren't derived from fish oil or you will be getting the iodine as if you ate the fish.
Oh, I lied. There is yet another "one more thing". This caught Prickly & I both. If you take a multivitamin make SURE it does not contain iodine as many multis DO.
Everywhere you turn there are roadblocks & caution lights.
I'm not sure if I react to iodine. My rash has been extremely bad, my whole back, behind. stomach and patches on chest and neck, smaller patches behind my knees and hips, with large sores on my scalp. It started last June and has progressively worsened for the last 11 months. I have completely eliminated gluten but have eaten kale and other foods rich in iodine on a daily basis and while my rash is still there it feels better and seems to be healing and I've only had two new patches in (almost) three weeks. I have pictures but have hesitated to post them because they are not "G" rated. I will see what I can do about editing for modesty.
-
I'm so glad you responded ... I read your reply and thought ?sunflower seeds ... yes sunflower that is what I wrote.
I meant to write pumpkin seeds! So sorry. Sunflower seeds are good but it's the pumpkin seeds that have the super iron content.
I put some in my morning smoothie and they blend in really well.
Pumpkin seeds have 20.7 mgs of iron per cup. By comparison, almonds have 5.4 mgs per cup and sunflower seeds have 4.9 mg per cup.
The Gluten-Free diet book by Shelley Case (I referred to above) is excellent for figuring out how to maximize nutrient content of food, etc.
I eat lots of kale and she didn't make mention of it being a problem. I'll see her again in a few weeks and ask for her thoughts about kale.
The other tips she gave me were: 4000 iu of vit D a day max (I take 5000 iu of D a day), and take omega-3s if you don't eat fish and drink your caffeine between meals (mid morning or mid afternoon).
I read something a few days ago by Ann Wigmore that was made into a poster:
"The food you eat can be either the safest and most powerful form of medicine or the slowest form of poison"
No problem! Pumpkin seeds it is! Thanks so much.
-
At my dietitian's visit today she reviewed closely my diet for the past week and praised my morning smoothie which sounds exactly the same as yours. I usually add kefir or yogourt to mine as well and she suggested perhaps substituting greek yogurt for it occasionally because it is higher in protein. The other thing I add is a few tablespoons of ground almond (or almond butter) which she said is excellent, and finally she suggested throwing in a some sunflower seeds because you want to get your ferritin levels back up again and they are one of the best things to eat for that. And drink lots of water was her other comment.
Thank you! I have been using a cup of almond milk and planned on adding in yogurt. I was worried about kale and yogurt together but figured I'd try it and see. (Kale has something that blocks calcium absorption if eaten at the same time. I will definitely get some sunflower seeds to add into the mix. I gave up soda a few weeks before I started the gluten free diet and limit myself to one glass of lightly sweetened tea besides that I drink water, probably about 40 oz a day.
-
Hi Jyn & welcome to the board!
It's wonderful that you are getting some relief from the itchies. But I will warn you that it may not be permanent. Many, many of us begin getting almost instant (seemingly) relief when going gluten-free but then we get it back to varying degrees & this can last for 2 years or more until all the antibodies get out of our skin. When it flares, if it flares for you, try going low iodine & see if it makes a difference for you ~~~ it does for most of us. See Open Original Shared Link for a low iodine diet.
Also, NSAID's make it flare so do your darndest to not take any of those. If you have to take something Tylenol seems to be the lesser offender but for me, even Tylenol makes me flare so I take it only as a last resort.
Here are some other links for you:
Interesting Reading on DH:Descriptions of DH Types:Help for the Itching, Stinging, Burning, Pain of DH:DH Photobank:Newbie 101 for celiacsThank you for your post. I've been reading non-stop for the past three weeks and have a feeling I will be reading a lot more in the future. I am a seriously picky eater so at first this felt like a death sentence. I love fruit so after I did the three days of only smoothies I stuck with a smoothie for breakfast. I vary it daily but always put in at least three vegetables usually spinach, kale, and carrots and three fruits plus a tablespoon of ground flax seed.
My bf is not taking the cross contamination threat seriously so I have to be extra careful in the kitchen and prewash all my cookware and utensils. He tried to kiss me today after taking a huge bite of cake. The look I gave him could have turned some to stone, lol. I think once he sees the improvements he will do better. I can't bad mouth him too much he has spent an enormous amount of money on food for me to go gluten free.
-
Like Jyn, today I too was smiling after seeing an excellent dietitian who assessed my diet and supplement intake.
It's only when you start to heal that you realize how sick you have been and how much the quality of your life has been affected. Today my smile started to return from the inside and was not a pasted on "coping" smile.
It's exactly four weeks ago that I started on my gluten-free-for-life journey and the change is remarkable. I was diagnosed with DH on May 16th (International Celiac Awareness Day!). Within a very short time of being gluten free the "suicide itch" started to lessen, and the constant headaches, fuzzy eyes, nose bleeds, tingling feet (and nose!), etc. simply all went away! The first few days I experienced nausea after eating but that slowly subsided. About 10 days into gluten free I ate buckwheat and that gave me grief, and a few days later rice did the same thing, with stomach ache and gut pain that lasted over night, so in desperation I turned to the SCD diet and it worked! I started with the phase 1 of the diet but added some safe foods from phase 3 or 4 (blueberries and raspberries in my morning smoothie). My supplements include Culterelle, Open Original Shared Link, Vit D 4000 iu, Omega-3 - 2000 mg, Open Original Shared Link and Open Original Shared Link. My diet is simple with no processed foods at all ... just simply cooked chicken, fish or beef with vegies and lots of green vegies (all cooked) and lots of apple sauce and bananas. I will stay on the SCD and slowly start to incorporate grains like quinoa and chickpeas back into my diet if I can tolerate them. I have a lot of food allergies so my purpose of visiting a dietician was to ensure that I was providing my body with the proper nutrients for healing.
My dietitian confirmed the appropriateness of the diet and only wanted me to include foods that had more iron in them to increase my ferritin level (like pumpkin seeds) and to drink more water.
The books and dietitians she highly recommends are:
Shelley Case
Open Original Shared Link
Alexandra Anca
Open Original Shared Link
Open Original Shared Link
My journey back to good health is only just beginning and I still have to be checked for kidney function because it appears there is something not quite right there, but I am optimistic that now that I am not slowly poisoning myself to death, the damage can be reversed or at least halted. Osteoporosis is reversible (see my post # 75) and my dermetitis herpetiformis is slowly lessening in intensity so that I no longer look for ice-packs for relief. My healing journey has begun and I'm getting my life back
I'm so grateful for this community that helped me and pointed me in the right direction. Thanks to everyone here who is so supportive and encouraging.
I also have had problems with waking up with a bloody nose and have noticed that my nasal allergies have almost disappeared, I didn't make the connection until I read your reply.
-
Hi all,
I finally figured out I had DH after 11 months of sleepless nights and thinking I might go crazy from the rash that covered my behind, back, stomach, space between my breasts, neck, and scalp and vaginal area. I do not have health insurance and am currently umeployed so I have been going to a free clinic and made two trips to the ER. I was prescribed many different things and offered several diagnosis all of which I just knew were wrong. I had eliminated any scented soaps and detergents plus double rinsed my laundry. Showered only twice a week in cool to cold water and used Eucerine non scented lotion only, no perfumes, no deodorant, no styling products (my bf loved this, lol), I even bought Neem soap to use. Nothing I did helped. Finally while searching the internet I found some pictures of someone's behind who had DH and I was, Wow, that could be me in that picture. I went back to the free clinic and didn't really receive any help they didn't confirm or deny that I was right and suggested I see a specialist, now if I could do that don't you think I would have been doing that all along. So 19 days ago I started a gluten free diet. The first three days I just made smoothies from fresh veggies and fruit then I started adding things I knew were safe like romaine lettuce topped with grilled chicken breast. The fist 14 days were really hard because I was still extremly itchy and missing my favorite foods. Then about four days ago I noticed I did not itch constantly and the rash seemed to be healiing. I tried not to get too excited because it has appeared to be healiing before but then within a day or two comes back with a vengence, but I have had several days of continued progress and for the first time in 11 months I have HOPE!
After reading up on Celiac I realized that I have nearly all of the symptoms and have for years. Chronic diarrhea, bloating, fatigue, joint pain, headaches, foggy feeling, hair lose, and vomiting. I had my gallbladder removed seven years ago and had been told the loose stools and diarrhea was just a reaction to having it removed. It didn't make sense to me because that was one of my main complaints when I had a gallbladder. Anyway I could go on and on but I am just relived I finally know what is going on and smiling because I have hope again that I can be "normal".
Jyn
Mrs. Dash Table Blend?
in Dermatitis Herpetiformis
Posted
Yes, you did warn me about iodine. I don't think I have a reaction to it but I did cut way back on yogurt and stopped using table salt (therefore the Mrs. Dash.) I do not eat a lot of dairy besides yogurt and an occasional bowl of ice cream. I was eating at least a cup of yogurt a day often more so I cut back just to see if I notice a difference.
On a new subject. When I went shopping yesterday I very nearly had a meltdown after about the 10th thing I picked up had gluten ingredients or a wheat warning. (Chicken Bouillon, really) I know I am still very new to this but I thought I was past this stage already, Guess not. My bf must have noticed even though I was trying to hide it from him so he made a special trip on his lunch break to bring me The Raw Flying Cupcake goodies (they are vegan and gluten free). The brownie was amazing and I'm saving the cupcake for tomorrow.