niese
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Latest Celiac Disease News & Research:
Everything posted by niese
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ARCHIVED So Frustrated
niese replied to niese's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I am sorry for the confusion I meant when I had the biopsy and first set of blood work I was eating gluten at that time. I knew nothing about Celiac disease. After those results my old GI doc said I had Celiac must go gluten free see you in 6 wks. He didn't explain the disease even when I said I didn't understand he just sent me on my way. That should... -
ARCHIVED So Frustrated
niese replied to niese's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes I have the copies of all test results. -
ARCHIVED So Frustrated
niese replied to niese's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I hear that, He ran different blood work for Celiac he said my old doc ran the old test so staying gluten free until I have positive results and even if he says I don't have Celiac prob will still remain gluten free just feel its better for my body. BTW is does KWIM mean? -
ARCHIVED So Frustrated
niese replied to niese's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks, I am staying gluten free until I get my results not worth the risk of causing more damage. Just so frustrated that doctors can't be honest if they aren't educated in Celiac. This new doc is suppose to be a Celiac Specialist so I just hope and pray he is and can figure out what is causing this Chronic D, bloating, fatigue and mild abdominal pain... -
ARCHIVED So Frustrated
niese replied to niese's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
No I was totally gluten at the time of all test -
ARCHIVED So Frustrated
niese posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Went to new GI doc today and here is what he said. The old GI doc read the biopsy incorrectly. In order to have Celiac need 2 things to show up on biopsy and I forget what they are, I only have 1 of them plus the old doc ordered the wrong Celiac blood work. So the new doc is ordering my slides from my biopsy to read them himself and he had me do the correct... -
ARCHIVED Is It Possible To Get Gluten From The Dishwasher?
niese replied to niese's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks everyone I thought I was safe with the dishwasher, just wanted to make sure. -
ARCHIVED Is It Possible To Get Gluten From The Dishwasher?
niese posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I have my own set of pots and pans which I only cook gluten free in them and I wash them by hand separate from anything else plus my cooking utensils. However I wash my plates, cups, glasses and silverware in the dishwasher along with gluten dishes ect. Am I asking for trouble using the dishwasher this way? After I wash my pots and pans then I wash the... -
ARCHIVED Lab & Colonoscopy Results?
niese replied to mcdonald.khadijah's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
DId u have an upper scope done where they go down ur throat? That is the biopsy that you need. -
ARCHIVED What In The World Is Going On With My Body
niese replied to niese's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks I should do the food diary. I am thinking maybe its my colitis acting up. I go to GI dr on the 20th new dr suppose to be specialist in Celiac -
ARCHIVED New, Massive Pain When Glutened
niese replied to Munzie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Dani, Welcome aboard! Please check out that newbie thread, you will learn alot there. This is an awesome place everyone understands and is very helpful. If you have any questions just ask someone will be able to answer or direct you to the answer. I was so blessed when I first found this site, learned so much and still learning. https://www.celiac... -
ARCHIVED Can Someone Please Help With My Blood Results
niese replied to niese's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thank you -
ARCHIVED New, Massive Pain When Glutened
niese replied to Munzie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I totally understand your pain I had abdominal pain for 2 1/2 months 24/7 dr tried different pain meds on me and nothing helped, I had to learn to deal with it. Finally after several test and months later found our I had Celiac. Since going gluten free that pain has left. I do experience it when I am gluten from cross contamination, I am still new with... -
ARCHIVED Can Someone Please Help With My Blood Results
niese replied to niese's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thank you -
ARCHIVED Can Someone Please Help With My Blood Results
niese replied to niese's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks for the info I do have these test on my list to ask my dr for. I will call my old GI dr tomorrow to request the test results of my biopsy, thanks for being so helpful. I DO NOT want to return to eating gluten I was way too sick and in too much pain it was so bad no pain meds helped me I just had to deal with the pain -
ARCHIVED Ds And I Seem To Keep Getting Glutened
niese replied to megsybeth's topic in Gluten-Free Foods, Products, Shopping & Medications
Are you rinsing your quinoa before cooking, even if it states already rinsed do it anyway. I wasn't rinsing mine and it was making me sick once I started rinsing I was fine with it. -
I like how you put it about the e coli, I will be using that line.
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ARCHIVED Can Someone Please Help With My Blood Results
niese replied to niese's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks Nicole, so when I request these other test you suggested do I have to go back to eating gluten for them? I pray not cause I feel about 75% better now that I have gone gluten-free. If dr can just get my bowels under control life would be great. -
ARCHIVED Can Someone Please Help With My Blood Results
niese posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Here are my blood results, my GI dr said I am boarderline Celiac, ok whatever doc. I have found a new GI dr that is suppose to be a specialist in Celiac but I don't see him till Aug 20th. IgA Serum 248 Reference range 81 to 463 Gliadin Antbody, IgG 23 Reference range <20 Gliadin Antibody, IgA 6 Reference range <20 tTG... -
ARCHIVED Craving Pasta--Help!
niese replied to Trapp's topic in Gluten-Free Foods, Products, Shopping & Medications
I haven't tried it yet but my cousin tells me that squash spaghetti is awesome taste just like regular but more healthier for you. -
ARCHIVED What In The World Is Going On With My Body
niese replied to niese's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
thank you for the information.....never thought of dish soap what brand do you use? I am using Suave shampoo heard it is gluten free is that true? As far as beauty products am I looking for the same ingredients as in food or are they different? Thanks so much for your help. -
ARCHIVED What In The World Is Going On With My Body
niese replied to niese's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
thanks for the info I was freaking out about my makeup and was about to throw everything out lol -
ARCHIVED What In The World Is Going On With My Body
niese replied to niese's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks everyone for the advise. Now that makes sense I don't feel the usual sickness with diarrhea so thinking its just my body flushing out the toxins. I do only take 1 probiotic but only been taking them for about 3 weeks now along with digestive enzymes. I do take 2 digestive enzymes before each meal thinking I will cut back to 1 per meal and... -
ARCHIVED Question About Digestive Enzymes
niese posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Are digestive enzymes and pancreatic enzymes the same thing? -
ARCHIVED What In The World Is Going On With My Body
niese replied to niese's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Oh boy this disease is enough to drive me crazy with everything there is to learn. I don't wear makeup too often maybe once or twice a month. Thats only cause I am not working at the moment, when I worked I wore it almost everyday. I never gave all this a thought that you said. I do wash my hands alot especially before touching or eating any food, of...