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justa

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Everything posted by justa

  1. justa
    Glad it went smooth
  2. justa
    The endoscope is way worse for us a parents. The just go to sleep and it only takes about 15 mins. It really is not bad
  3. justa
    Miralax but I know this from iron and pregnancy. It doesn't make you go just easier to go.
  4. justa
    We had similar issues and were offered straight to endo so we did that. < Easiest thing for him and he got a popcicle He has intestinal inflammation , minor damages and been diagnosed an odd "borderline celiac" We have been taken off gluten and did a celiac pediatric panel which came back negative but I haven't seen the results. At least this point we...
  5. justa
    Or diverticulitis comes to mind... Also diet change Nothing with nuts or seeds like strawberries
  6. justa
    Have you had other things tested? This was how my friends Crohns started. Just an idea.
  7. justa
    Should I even worry about it or press it... or just go gluten-free and forget about it? Did they even run right tests before?
  8. justa
    My PA ran tests on me 5 years ago because I had requested it having GI symptoms and bloating pain. They called me then and told me it was negative and I just said ok. Well since my son just got diagnosed I wanted to see my actual test. I realize just now when I got them it says Celiac Disease Comp Final, infant. ttg antibody, IGA <3 *<...
  9. justa
    Ok this makes sense.
  10. justa
    This is where I get confused.. They recommed to go gluten-free bc after the endo testing is basically done until they are older. So your saying keep giving them gluten until they retest?
  11. justa
    These children are tiny and not all positive blood work means celiac however our kids may not have damage either since they are so little which is what they use to confirm in endo and genetic testing is an only could be test also so just all puzzle peices as I have been told. Unfortunately only time will tell. What confuses me most is going gluten free...
  12. justa
    Sounds very similar to our case.
  13. justa
    I got my 2 year old's endoscope Wednesday and everything "looked fine" Biopsy results showed different. So you never know. I know it takes longer there in Canada but we had full biopsy results Friday afternoon.
  14. justa
    Is it possible at the softball event she just had a virus? I can't comment on the sleepover but maybe there was no messup at the event and she was just sick? Not being sarcastic but that could happen too, gluten-free doesn't stop virus. I'm new so I am wondering myself here.
  15. justa
    Salax- I think you nailed it. I think it is hard and like I said he told me he never has to make this phone call.. it is either "he is or isn't" I guess in some cases although rare it can happen. Just like in a pregnancy you can be "pregnant" with a Molar pregnancy which isn't really a pregnancy just acts and mimics a pregnancy and the embryo is random...
  16. justa
    disregard.
  17. justa
    He also said he did lots of biopsies and more than he does just looking for Celiac to rule out infection. He said no infection was found. Inflammation but no damage yet.
  18. justa
    So I talked to him. I am sure this will get people going. He said that 99% if the time he gives a yes or no answer, he says go all the way or not. He said my child is in the 1% and odd ball case he can not do that. His biopsy result was literally dead center and his bloodwork was dead borderline. In children his age it is not always clear cut and time...
  19. justa
    Honestly I am not sure. He said his tummy was clear but there was obvious inflammation of the intestines. He said he was almost positive it was Celiac. I don't know enough to argue this or what questions to be asked at the time so I said ok. He said call him back with further questions so I will do that. I was more relieved at the time. I just don't know...
  20. justa
    I am not offended I think this is equally as new and hurtful (sensitive) for me right now as it is frustrating to you and your knowledge base. If you get what I am saying. I think my Pedi is just trying to have us do one month cutting out and then all out in a month from then on. I am calling his office and asking for clarification. If I don...
  21. justa
    This is just a lot for me to take in. The thing is he is 2 years 10 months. This is a young diagnosis in general. My Pedi has been very active in finding resolve for us. He was in for an ultrasound and endo within 2 weeks of his first appointment. He said that the type of inflammation he had was not common in children his age and he rarely gets biopsy...
  22. justa
    First of all I literally found out this morning. 2nd he said he had intestinal inflammation and early signs of Celiac. I wrote what he told me. He is a pedi GI From what I read celiac sensitivity can be different for everyone. I think your response is a bit harsh. I am asking for help not judgment.
  23. justa
    He said don't go overboard but it out anything obvious. Come back in a month bc 2 weeks is the longest he has gone without throwing up. If he throws up call immediately.
  24. justa
    The are positive from the endoscopy with intestinal inflammation... What next?
  25. justa
    Mm- thank you. This gives me some relief. While I don't want this diagnosis I welcome it because we can treat it at home. I also think overall it will help our situation. Thank you for all the replies. I am waiting results
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