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scdurs

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  1. scdurs
    Before going gluten-free I would opt for the biopsy, for both of you. Your daughter may look good on the blood test, but still might be celiac. Tissue Transglutaminase test is merely an indication - not proof of anything, especially if it shows a low number. Biopsy is the only definitive test, and you need to be consuming gluten for at least 6 weeks prior...
  2. scdurs
    Interesting... Thanks for sharing the data on the genetic testing. When I was diagnosed the doctor was looking for the cause of abdominal pain and anemia. The doctor was looking for stomach ulcers during the endoscopy and biopsied the small intestine at that time and found the celiac disease. So it was probably more of a "search for other causes" than it...
  3. scdurs
    Thanks for the comments. I have recently read that the biopsy is not necessarily proof, but the genetic testing is now considered the gold standard. Not only had I considered that they meant a negative biopsy is not proof, but thought they also meant a mis-read positive biopsy is possible. After all, a biopsy has to be interpreted by a human, right? I'm not...
  4. scdurs
    I was experiencing stomach pains and gasiness and was referred to a gastroenterologist. She performed a colonoscopy (I am 50) and an endoscopy. I had a positive biopsy leading to my celiac diagnosis. At the time, May of 2013, they said that was the gold standard for testing, so I accepted it as fact. Still had pain issues, but less gas and I was no longer...
  5. scdurs
    I saw a nutritionist after diagnosis, and she had a lot of great tips and pointers about finding gluten free products. Don't worry, she shouldn't write a diet for you unless that is what you want.
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