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SusanB26

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  1. Just imagine it not only with a gluten-free crust but onion and garlic free sauce too. Bleh. Might as well go for vegetarian cheese and just call it something else altogether! Ha!
  2. Oh it's SO much more difficult than being gluten-free! There is onion, garlic, shallots, chives, etc in everything. I can find many great gluten-free items, but then I read the label and it contains my allergens so I'm stuck. The biggest thing that I am sad about is simply pizza. I've found excellent replacements for everything but pizza. I make my own...
  3. I understand it can take time to get an appointment in Canada, but why not see a gastro or an allergist and be tested? Until you do, you are your very own science project and there are too many variables to make an accurate diagnosis on your own. Like I said from my example- Certain things felt better once I went gluten-free, but I was not really better...
  4. What I've learned to do is write with a sharpie on a piece of tape on the lid of any condiment I use, "GLUTEN FREE NO DOUBLE DIP". My kids are old enough to know that means if you need more, you just take a clean knife/spoon. My sink is full of dirty utelsils now, but I don't care because I know they are following the rule and caring about me. I use...
  5. I have read this entire thread and I have to agree that this sounds like an allergic reaction to something. I felt horrible even being gluten free, until I completely removed, even trace amounts, the allergens that I tested positive for. I didn't play any guessing games as I felt sicker and sicker as time went on. I made an appointment with an allergist...
  6. Having been recently diagnosed with Celiac along with an allium (onion, garlic, chives, shallots, leek, scallions) allergy I am learning every day. Luckily I am a good cook and have learned how to substitute many things and our food still tastes good! I have a strong family hsitory of Autoimmune diseases. My uncle had type 1 Diabetes and my aunt has...
  7. Thank you to everyone who responded. I chose not to have the endoscopy/biopsy. I feel somuch better being gluten free I can't begin to imagine my life back on it. I had heartburn/reflux that I thought I might want to get the endoscopy for, but now that too is simply gone. I am living life as a Celiac and now use the term freely and comfortably. The more...
  8. I'm sorry you are having to go through this. I had a similar experience. Allergist says "try gluten free". After being gluten free and slowly becoming asymptomatic my blood work showed the prescence of antibodies, but very low. I then did a gene test which came back positive for the celiac gene (and an intolerance gene as well on the other side). There...
  9. I believe!! LOL That's why I came here to post this question. I want real life expertise and opinions, not a Drs. I was put through the ringer by Drs over the years with my thyroid. That's a long story too, but I've come to be my own advocate, making educated decisions not just listening to docs. So what would you do? Live life as a Celiac, say...
  10. Me too!! I have a similar reaction to alcohol and I don't know why. I can't have more than three drinks (I'm talking over a long period of an entire night, not in an hour LOL) or one strongly mixed drink or I get a stomach ache. Always gluten free alcohol. I never put it together that it could be from celiac, I just figured I have some weird alcohol intolerance...
  11. I have read it takes a long time for damage to heal after years of symptoms, and that 3 months is still enough time to be gluten free and get an endoscopy diagnosis?
  12. Hi to everyone. Long story short... I already have autoimmune thyroid issues (Hashimotos) and unbeknownst to me have had symptoms of having Celiac/Gluten issues for a long time. Autoimmune issues strongly run in my family; my father and his sibling all have (had) autoimmune disease, Type 1 diabetes, RA, and now we realize my dad most likely had Celiac...
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