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livelaughlove3885

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Everything posted by livelaughlove3885

  1. livelaughlove3885
    HI All, I'm really happy because i think i finally figured out my problem, after experimenting with foods for over a year.... the problem is SUGAR! I don't think i have the enzyme to break down sugar or simple carbs or something. Here is my story, maybe others can relate and it will help you. April 2012 get EGD, the finding is duodenal intraepithelial lymphocytosis...
  2. livelaughlove3885
    thanks for the reply! This sucks doesn't it? I saw a celiac specialist gastro doc and he said non-celiac gluten sensitivity, so that means not autoimmune or allergy related... but i do react to it. Since that is the case, I feel no one believes me. It is very frustrating. I keep saying it is not in my head! If i eat wheat i get folliculitis, itchiness, red...
  3. livelaughlove3885
    Hi All! I think I accidentally got glutened last night. I can't order out from anywhere (and should have learned my lesson by now... but when you work all day, come home and are starving... and didn't have time to food shop and prepare ahead because busy with children... sometimes you just think I need to eat... i'll take my chances). So i ordered fries from...
  4. livelaughlove3885
    Thanks! I never had a skin biopsy, i just went to derm after having this breakout for 6 months and he just looked at me and said Oh you have folliculitis. Now, my brother has dyshidrosis on his hands and he also had alopecia areata for a while on his head, and he has digestive issues, so i kind of wonder if he may have celiac or maybe he is just like me....
  5. livelaughlove3885
    Hi! I work for gastro and I see this all the time. I used to be just like you until I made some dietary changes. I am a 35 yr old female so what i did was increase fiber, slowly over a 2 week period, and now i eat 30 grams per day. Now i have no diarrhea and no gurgling (borborygmi) and I am gluten-free and do FODMAP diet... I seem to have fructose intolerance...
  6. livelaughlove3885
    Hi all! I've been posting all over this forum trying to figure something out. I had an EGD and my entire duodenum had a "granular" appearance. Pathology showed Duodenal Intraepithelial Lymphocytosis, top heavy at villous tips. Mild crypt hyperplasia. Negative H pylori. And no, I do not use any NSAIDS or medicine other than vitamins. So since this pattern...
  7. livelaughlove3885
    Hi. I am really frustrated because I am in the no man's land of pathologies. I had an EGD and biopsy of duodenum shows Duodenal Intraepithelial Lymphocytosis, especially at villus tips. Mild crypt hyperplasia. Negative H pylori. I don't use NSAIDS. So then I had bloodwork including haplotype testing and I am negative for celiac genes. So the gastro doc just...
  8. livelaughlove3885
    thanks for the replies... Here's the deal. I did elimination dieting... first gluten-free for 1month... felt onlyslightly better. Then glutenfree and dairy free for a month... felt really good... then did a paleo/FODMAP diet... felt the best I ever felt. But still I can't pinpoint any one thing. I didn't do elimination dieting correctly. But here is what...
  9. livelaughlove3885
    Hi everyone... I do not have celiac disease but I have something that mimics it and I can't figure out what is causing it. I had an EGD with biopsy and it showed duodenal intraepithelial lymphocytosis, top heavy at villous tips. Other than that, just some mild gastritis and esophagitis. The duodenal IELS in that particular pattern can be indicative of latent...
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