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ms-issippi

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by ms-issippi

  1. ms-issippi
    Okay, so I finally got my hands on the actual labs, and the flagged results are: MCH (H): 32.1 pg (ref 27.0-31.0) Monocytes: (L): 3.2% (ref 5.0-10.0) Absolute Lymphocytes (L): 0.97 K/ul (ref 1.00-4.80) Absolute Monocytes (L): 0.12 K/ul (ref 0.16-1.00) Iron (L): 46 ug/dL (ref 50-170) Total Iron Binding (L): 247 ug/dL (ref 250-400) INR Value (L): ...
  2. ms-issippi
    I met with my neurologist for a follow-up and had a very frustrating visit. He went over the notes from the neurosurgeon and, after basically accusing me of lying because he had written information down incorrectly, said that the surgeon didn't think I have trigeminal neuralgia, but rather some for of atypical facial pain or migraine disorder. Which is not...
  3. ms-issippi
    The nurse called with my lab results today and said everything was normal, although when I asked her to give me more specifics, she said I had some abnormalities in my monocyte and lymphocyte results but "nothing to be concerned about." My celiac panel was negative, which either means I've been doing really well with my diet or was misdiagnosed in the first...
  4. ms-issippi
    Well, I saw the neurosurgeon today and, like my GI, he also said he wasn't aware of any connection between celiac disease and trigeminal neuralgia. He more clearly defined mine as the atypical form, which means it doesn't respond well to medication but is also a bad candidate for surgery. I pulled out the University of Chicago's description of celiac-related...
  5. ms-issippi
    But can I trust my initial diagnosis? I didn't have a blood draw at the time - I changed jobs and temporarily lost insurance right after my endoscopy/biopsy. At this last visit, the nurse practitioner said my chart showed eosinophilic esophagitis, and that got her saying there could be other non-celiac causes. She wasn't clear on whether that could mean ...
  6. ms-issippi
    Ah, I see. I've done a lot of reading over the past ten months, but I guess I didn't put all of that together. I went to the GI last week with the thought that a celiac panel would reveal if I was still ingesting gluten by accident, but now if I get a negative result I'll be all the more questioning of my diagnosis. I'm supposed to go back in a month, so...
  7. ms-issippi
    Thank you all for the input. The nurse practitioner I saw at my GI's office actually said that my initial endoscopy results showed inflammation (esophagus, stomach, duodenum) that could be caused by any number of issues, including other food intolerances, so I'm even more addled by the potential sources of my pain. I also asked the NP to clarify if the...
  8. ms-issippi
    I was diagnosed with celiac disease via biopsy last October. I began a gluten-free diet immediately, but did not notice significant changes in how I felt overall. This past April, after two episodes of sharp, intermittent pain on one side of my head, I was diagnosed with trigeminal neuralgia. No obvious physical causes were found - no tumor or MS on the MRI...
  9. ms-issippi
    Flickr won't give me a direct .webp link, so I hope embedding the image links will work ... This is his celiac panel: Open Original Shared Link Open Original Shared Link by Open Original Shared Link, on Flickr This is his whole workup: Open Original Shared Link Open Original Shared Link by Open Original Shared Link, on Flickr Open...
  10. ms-issippi
    Thanks, Peter, I appreciate the welcome and input. I forgot to mention that at this last check-up my son's weight had dropped down the charts, from about the 15th percentile to the 5th, despite no major diet or appetite changes. So that's another red flag for me.
  11. ms-issippi
    Hello, all. I'm very new but wanted to jump in with a question that's a little time-sensitive. My 6-year-old son has been officially diagnosed with "short stature" since he was three years old. Basically, he was of average height and weight until he was about 18 months old and then just stopped growing. I took him to an endocrinologist in 2011 and all...
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