pocahontas30

My kids had some of the same results on their bloodwork. The pediatrician said they meant my daughter was negative for celiac, but the gastroenterologist looked at the results and said "we need to do more tests" because her results of IgA were too low to quantify anything. He said that some people who have celiac don't produce enough IgA to even test anymore...

My kids are newly diagnosed celiac. I took them out of town for a weekend trip for the first time since diagnosis and had a hard time finding places to eat. After researching, we went to a steakhouse with a separate gluten-free menu. A long wait later, and the waiter comes to take our order: Me: My boys will have the steak and salad. Please use clean...

I understand you wanting to have an official diagnosis. My family is dealing with this as well. I am certain that my husband and my oldest child have celiac (my 3 youngest were just diagnosed with celiac), but their blood tests were negative. It makes it harder to stick to the diet for them, and it makes it seem like it's more "optional" for themselves...

I just thought I'd let you know about my son's diagnosis. He was tested b/c his brother has celiac. His bloodwork came back questionable (Iga too low) so they tested IGg. It came back negative so the dr. said he doesn't have celiac. But after letting the dr. know that he still has symptoms (throws up a lot, migraines, complains of tummy aches), he decided...

My son was just diagnosed celiac after testing negative with 2 separate blood tests but showing villi damage to the intestines. From what I've read here, that's pretty common suggesting you probably do have celiac.

Thanks for the replies and the support!

With my kids being newly diagnosed with celiac, I am wondering how I can know if they are being contaminated with gluten. As far as I know, they don't have a lot of symptoms. They do tend to complain of belly aches more than a non celiac kid, and they do end up throwing up if they have had too much junk (before going gluten free), but other than that,...

In the last 2 months, 3 of my 5 children have been diagnosed with celiac and the 4th is likely NCGI. We are doing ok with the change in diet so far, but I just got a call that my 11 yr old son has iron deficiency. He was put on iron and vitamin C to help absorb this. The thing is that it was his pulmonologist that prescribed it. I told them that my son...

I'm new to this forum and to celiac. I have 5 children. Last month I had my youngest son (4) tested for celiac through blood tests (positive) and endoscopy (positive). This week I had confirmation that one of my other kids (who's 10) tested positive through same testing. I am working on re-testing my third child (8) because his blood tests showed abnormally...