worriedseattlemom
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Oh no! Virtual hugs to you. I know this ordeal has you embarrassed, but I'd love to make a small donation to put toward some meat/veggies/fruit or other gluten free food for you. Do you have a paypal account or other way I could contribute?
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ARCHIVED Child Not Getting Better After Being Gluten-Free
worriedseattlemom replied to ryannshelly's topic in Parents, Friends and Loved Ones of Celiacs
Hi there, How are things going now that it's December? I have a nine-year-old daughter going through something similar, though her main complaint is nausea. She also has a slightly hard and distended tummy at night, chest pain and constipation. Also on Miralax daily. We are going to a new GI doc next week. I'm at my wit's end. We're also going to a naturopath... -
Thanks everyone! Yes, she had a respiratory virus that turned into a sinus infection. She does have anxiety for sure, and third grade hasn't been a good year for her due to a bully and a not-great teacher, and I do believe this contributes to her nausea, but isn't the only cause. Not sure about a bowel obstruction. She does get constipated, which we treat...
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Hi there, I haven't been on in a while. Back in November my 9-year-old daughter was diagnosed with celiac. We cut out all gluten, though it took another month or so to cut out everything as she was still eating a few things with gluten that I didn't realize. I am confident that she is gluten free now (though I worry about vinegar, caramel color, etc....
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ARCHIVED Does Any One Feel Nausea?
worriedseattlemom replied to MELINE's topic in Related Issues & Disorders
Thank you so much for your follow up post. It gives me hope. My daughter is about 5 weeks gluten-free and still nauseated much of the time. -
ARCHIVED Just Diagnosed
worriedseattlemom replied to massagemamaof3's topic in Parents, Friends and Loved Ones of Celiacs
I don't have a whole lot of advice since we are new to this as well, but I just wanted to say hi! I'm not going with a full gluten-free kitchen at this time because my son is allergic to dairy, eggs, peanuts, and tree nuts, and wheat is something he can reliably have. I just can't pull that from him now. That said, I've been really careful about x-contamination... -
That's what I wasn't sure of, but I just found out that anything over .05 is positive, so....yah....she's tested very high.
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ARCHIVED What Does Low Iga Mean?
worriedseattlemom replied to kellysensei's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My daughter has low IgA as well, so her celiac test was inconclusive. She has tested positive with more sensitive blood tests however. I don't know what these tests are, but there are supposedly more accurate than ELISA, which is what most labs/doctors use. Good luck! I hope you're able to figure this out soon! -
That is so great to hear, Gemini. Thank you for sharing that. We've decided against the scope for now. I scheduled it today, then they called back to say she would need to gluten load for two weeks and then be scoped. I just can't take that step backward with her right now. We're on the right path I feel and I don't want her to feel terrible for however...
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Thanks once again for your amazing support! I'm not sure what the test is that they use in her T1 study. I can ask for more info on that, though. I would love to be able to provide that information. The GI doc here in Seattle did say that all of the kids who come out of this study, if they test positive for celiac in the study, they are ALWAYS positive. In...
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Update: Hi all! Not that you were waiting breathlessly for my update, but here's what we've learned: Claire tested negative for her TTG, but her GI doc said that's only because she's IgA deficient. If she weren't IgA deficient, the doctor believes her TTG would be positive (like I mentioned before, Claire has tested positive numerous times on a more sensitive...
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I'm really new to this, too, with my 8-year-old daughter, but I just wanted to reach out. This is SO tough, seeing your child feel badly and not improving quickly. We're dealing with celiac and thyroiditis. Feel free to inbox me if you ever just want to kvetch. I know I'm feeling very overwhelmed. Hugs!
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Hi everyone, I have an update! We got in to the pediatric GI doc at Seattle's Swedish hospital a day early. Didn't love the GI doc we went to bedside manner-wise, but she seemed to really know her stuff. She said about ten times that Claire seems like a "classic celiac" case. She read her report from her '09 scope and was shocked that the GI doc at Children...
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Thank you for your support, everyone!
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I'm humbled that you all took the time to read my post and respond. Thank you! It means so much! Claire hasn't had her thyroid blood work done yet. That should happen one week from today when she has her other blood work for celiac. I honestly noticed the goiter (it's relatively small and my husband can't even see it), a month or two ago, Googled and...
