hmitchell

Thank you for that !! Can you have DH but test negative for the celiac genetic test ?

I was using Aczone on my 4yr and it dried her skin up too, to the point where I stopped using it. however i tried a few weeks later and applied it with a bit of coconut oil and it worked a treat , it dried up the wounds and closed up the punched out holes in her skin which were very deep. I used a lot of coconut oil virgin unrefined (from trader Joes in...

Can someone please point me in the direction of the full Celiac blood panel info, I know I have seen it here but I can't find it thanks hmitchell

I just wanted to give a quick update So we went ahead and did a celiac panel blood test which of course came back negative even though I started giving her gluten for 10 days prior, our Dr seemed to think that was sufficient time.... 5 Days on Gluten and there was no change in the 'spots' but on day 6 they flared up and new patches appeared all down the...

Every dermo we have been to just prescribed Steriods (or eladel, protopic or other crap )each time stronger and stronger ones, and no one knew what is was and one even thinks its papular eczema..... I have not given her oral steroids as she is too small for such aggressive drugs which is why I don't think I can give her oral dapsone. which is why i was...

That does suck! I am consedering a celiac blood test just so i know for sure, the not knowing is too hard with little ones who can't tell you how they feel once you have fed them so you don't know if you are making it worse of not. i wonder how long i have to give her gluten for before the testing? Thanks again for all the info.

Thank you again Squirmingitch, your info is very helpful. Mendylou, the spots are definatly craters, like the skin is eating itself and making a deep hole, and instead of healing its working in reverse getting wider and wider punched out hole (they start off tiny holes and get huge) when I put cream on her I "fill in" the holes, its painful to see. This...

Thank you so much for replying , thats all great information. We have been Gluten free but I have only recently learnt about Iodine so we are going to try that too. Reading all the info on here I know now that her biopsy was a joke as they took a sample from a young blister, we were gluten-free....and now she has a scar on her arm for nothing :-( How...

My 4 Year old has had these spot for 2 years We have been to see several Dermatologist and all said they don't know whats wrong with her skin , we did a biopsy and it came back inconclusive. The allergists we have seen did not know either as the blood tests were negative for allergies too. She scratches so much at night, (even with antihistamine) if...

These are pictures of my 4 year olds blisters Do they look like DH? We have seen many Dermatologists and Allergists who said they don't know what it is but it looks like DH so we had a biopsy which came back inconclusive. We have been Gluten free for 18 months but the spots keep coming, When she has Dairy or Soy she scratched all night even with Antihistamines...