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Latest Celiac Disease News & Research:
Everything posted by Posterboy
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ARCHIVED Does MCAS go with celiac?
Posterboy replied to kkgirl's topic in Related Issues & Disorders
kkgirl, Check out this article by "The Celiac Patient". She has the best information I have read on the topic of the connection/association of MCAs in/with a Celiac diagnosis. http://www.thepatientceliac.com/2014/01/04/mast-cell-activation-syndrome-madness/ I hope this is helpful. Posterboy, -
ARCHIVED insomnia
Posterboy replied to sddave's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
sddave, Ennis_tx is right find you some Magnesium as Magnesium Citrate or Magnesium Glycinate. Here is the research on it entitled "The effect of magnesium supplementation on primary insomnia in elderly: A double-blind placebo-controlled clinical trial" Open Original Shared Link Taking Magnesium with each meal or 2/day and 1 hour before... -
ARCHIVED Brain Fog?
Posterboy replied to IrishTwins2009's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
IrishTwins2009, Your thread was featured in the celiac.com update email. I will probably ramble a bit but.. . . I wanted to provide you some clues/ideas of things you might try. *****None of this medical advice but might help based on my previous experience and deep research and many years of taking supplements myself to help similar axiety... -
ARCHIVED An Unexpected Celiac Test Revealed Positive Results
Posterboy replied to amyschicks's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Amyschicks, Have you considered your cramps could be from the Miralax itself. The cramps you describe are a known side effect of Miralax. You can google it for yourself but here is a link on Miralax's side effects. Open Original Shared Link they say to tell your doctor but they forget sometimes too that fibers can cause cramping... -
In Part 1 I mentioned many of the GI issues diseases I think this might help and have seen it help. But most people only think of an “official diagnosis” and not co-morbidities in the same person. Treating your Vitamin deficiency lets you treat your co-morbidities. It is known as a 2ndary diagnosis in Sjorgen’s diesease as Pellagra has also ...
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ARCHIVED Neuropathy and encephalopathy
Posterboy replied to Stepherwolf's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Stepherwolf, You might also want to read this thread. It deals with depression and other mind body connections of celiac disease. . . falling under the common term of "gluten ataxia". Here is the link/research that list many of the more common Neurologic and Psychiatric Manifestations of Celiac Disease and Gluten Sensitivity Open Original... -
ARCHIVED Does anyone know anything about the correlation between celiac desiease and depression?
Posterboy replied to Jesper's topic in Coping with Celiac Disease
Jesper, Ennis_tx has given you good advice try a B-complex and Magnesium Glycnate. Here is the research on Magnesium for depression. Open Original Shared Link entitled "Rapid recovery from major depression using magnesium treatment" Magnesium and B-Vitamins are best taken with each meal for the first few months then you can scale... -
Fbmb, I actually quoted the CBS article because I thought it gave a fair and balanced view. It mentioned that quoting "If someone has to use an NSAID for pain relief, the best advice is to use the lowest possible dose and for shortest amount of time possible." and then gave ranges for those doses considered to in the high range. It also noted...
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Fbmb, I would suggest you read the Tylenol thread (it covers NSAIDs well not just Tylenol) It covers this same topic well. I would also read this CBS article that summarizes the use of Ibuprofen (active ingredient) in Motrin well. Open Original Shared Link they say it well. quoting "Experts say the study is not meant to...
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ARCHIVED I'm sick, tired, and confused
Posterboy replied to Vonney's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Vonney, As cyclylinglady said we are all different. Some on this board supplement others don't. I was just trying to share what helped me with my fatigue, energy levels and cramps. ***** this in not medical advice but Magnesium is a recommended as an "appropriate nutrient supplementation in celiac diease". see this link about a study... -
ARCHIVED I'm sick, tired, and confused
Posterboy replied to Vonney's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Vonney, There are a lot! We are said to waste away when we when we don't have enough magnesium. the most exhaustive article I have read on it is this article by the britsh medical journal entitled Subclinical magnesium deficiency: a principal driver of cardiovascular disease and a public health crisis Open Original Shared Link probably... -
ARCHIVED New to this and so so clueless!
Posterboy replied to KTgoesGF's topic in Coping with Celiac Disease
KTgoesGF, Here is a thread that might help you. They have all given you good advice. Protein bars are a nice fall back until you find your new routine! I hope this is helpful. posterboy, -
ARCHIVED I'm sick, tired, and confused
Posterboy replied to Vonney's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Vonney, I knew I was forgetting something. Here is huffpost article confirming ravenwoodglasses' point. Open Original Shared Link quoting dr. hyman. he says in "In light of the new research on the dangers of gluten sensitivity without full blown celiac disease" "Many doctors (often my words) consider elevated anti-gliadin antibodies... -
ARCHIVED terrible symptoms, need feedback
Posterboy replied to Ecgmmom's topic in Parents, Friends and Loved Ones of Celiacs
Ecgmmom, ***** this is not medical advice just my experience with taking Magnesium to help my charlie horses. sometimes I get busy writing and forget to say that. I don't know why your daughter reacation's would be after a meal specifically. unless her stomach acid is non-existent as to just low. . . the difference between hypochyloridia... -
ARCHIVED I'm sick, tired, and confused
Posterboy replied to Vonney's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Vonney, This can be a sign of low Magnesium. WE need magnesium to make energy. Magnesium Citrate or Magnesium Glycinate are the best forms to take it in. 3/day works well (with each meal) for most people. Iron deficient anemic people often have low energy levels as well. see this link on Iron deficiency anemia. Open Original... -
ARCHIVED Saccharomyces Boulardii-anybody tried this?
Posterboy replied to BarryC's topic in Related Issues & Disorders
BarryC, Ennis_Tx has given you great advice I have used some of them (his suggestions) myself. So as to not duplicate his response I was in CVS today (there are several locations) so this should be easy to do. I don't know how well they travel though. But they have "No Cow bars" which are both casein and gluten free bars. **** I have... -
ARCHIVED Gluten Sensitivity-Severe Hives
Posterboy replied to Kberry1's topic in Coping with Celiac Disease
Kberry1, Kareng is right with you having removed gluten from your diet before testing . . .. your tests would be inclusive at best. Though having said that I did some research to answer your question about their association? And they are diseases that are concomitant in the same person often. see this link entitled "Celiac disease is highly... -
ARCHIVED Hyponatremia and celiac
Posterboy replied to Kelly Copey's topic in Related Issues & Disorders
Kelly Copey, **** this is not medical advice but I have found if you have an electrolyte problem you should look into taking Magnesium preferable as a Magnesium Citrate or Magnesium Glycinate since these are well absorbed forms. Are you by chance taking a diuretic. Hyponatremia is a rare but serious complication of taking diuretics. here is... -
Gemini, I agree. like cyclylinglady I have had enough bad drug reactions (through the years) to have a natural suspicion. Ironically as they work out sometimes as I was commenting on the rebound headaches (which is a nice read if you get the chance) for any considering taking NSAIDs -- no matter how brief. . because it lays out well which are...
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ARCHIVED mouth and tongue sores
Posterboy replied to seameruok's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Plumbago et al, (maybe a moderator can move Plumbago's response about Lysine from the "Tylenol thread") Yeah the issue about the pregnancy is a great point. I usually tell people that is not medical advice (but sometimes get in a hurry) and don't always qualify my statements. Cathy listen to Plumbago (if you are pregnant) but I assume... -
ARCHIVED mouth and tongue sores
Posterboy replied to seameruok's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Cathy and Plumbago, I see this a lot so (mouth sores and the lysine issue) so I wanted this thread response to show what the research says about it. I was rushed yesterday and am a little tonight so I will try and be brief. But I have noticed how one generation has ti learn what the other knew much like a parent passes to a child their knowledge... -
This is why I don't take them regularly unless I really need them. Rebound headaches are a real thing especially when you overuse certain pain meds. some are worse than others. . . and why some people get stuck on them. see this mayoclinic article about this phenomena. Open Original Shared Link I hope this is helpful. posterboy...
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ARCHIVED mouth and tongue sores
Posterboy replied to seameruok's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
seameruok, This is from a previous thread see below. Or just search for canker sores on celiac.com if this is not helpful but I think you will find it helpful. good luck on your continued journey Cathy. 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” see this thread in it it spells out how I took Lys... -
GFinDC, I know what you mean. . . sometimes you wonder how this seemingly safe drugs can have drastic health consequences. I ran into some rather startling news about NSAIDs' that might be worth sharing about a year ago but wasn't sure where might best be the place to share until this thread come up. Most people are at least a little aware...
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ARCHIVED tooth extractions and gum problems
Posterboy replied to AnneNewMilford's topic in Related Issues & Disorders
mom2boyz, Oral hygeine was not my underlying cause it was demineralization or enamel defects. see this niddk article about it. Open Original Shared Link quoting "Dental enamel problems stemming from celiac disease involve permanent dentition and include tooth discoloration—white, yellow, or brown spots on the teeth—poor enamel for...